Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Way to go, . Great news. Feeling better and better about this Friday when I get the cance to dance! Can't wait to feel the joy you're feeling!!! PhillyJude Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 ROTFL!!!! LOL LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 <<<There are 3 of us at work who've had gastric bypass. 1 had an open-has lost 140 lbs. and constantly complains things get stuck in her " stoma " . 1 Had a lap RNY in Aug. and has been vomiting almost constantly,has had 3 roux limb dilitations,and is scheduling a fourth,and then me.Down 84 lbs and planning a 6 1/2 Jazzercise marathon. This surgery speaks for itself! .>>> I read this and for some reason flashed on the story of the three little pigs. Probably inappropriate, but, you know, this little piggy had lap RNY, this little piggy has something stuck in her " stoma " but this little pigg had it JUST RIGHT (thanks to MGB!). LOL. Just a whimsy! from California 11/9/00 240 BMI 45 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Hi all, just got home from the hospital for 's knee surgery. Everything went well. brought me home and then she and Rich will go back and bring her home when she is out of recovery. Thanks for all the good thoughts and prayers. I'm going to be a good girl and go upstairs and rest. I have LOTS of good books to start and will find something else to do that will keep me quiet. LOL Don't worry bout me, I have learned my lesson. Going to try to prop up my feet and get the swelling down... Know I love ya all bunches and I promise to be a good girl from now on. lOL hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 , Happy to hear s surgery went well. Now you rest. Sandy -- Re: Re: update Hi all, just got home from the hospital for 's knee surgery. Everything went well. brought me home and then she and Rich will go back and bring her home when she is out of recovery. Thanks for all the good thoughts and prayers. I'm going to be a good girl and go upstairs and rest. I have LOTS of good books to start and will find something else to do that will keep me quiet. LOL Don't worry bout me, I have learned my lesson. Going to try to prop up my feet and get the swelling down... Know I love ya all bunches and I promise to be a good girl from now on. lOL hugsDISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 I HOPE EVERYONE HAD A GOOD TURKEY DAY Well went to my doc today ( not remy) in Jan last year when I went to ER with my nose as big as a basket ball they told me I had STAPH so I had IV for 6 days????? I have been feeling very bad lately. So i went to my doc today. HE told me never had staph the needle was contaminate in the lap. All this time I had hope that i didn't have RP. He said you have RP the basket ball nose was your big flare?? MY 18 year remy has never sent him i thing about me no files at all. He is sending for my records ASAP. He is going to find me new REMY. After he gets my records this week he is going to call me because he feel i need my pre raised and i would feel better. Its hard to even leave the house my bones are in pain does that make since?? Why have I been in such denial? thanks SHERRIE -- Re: Susiecue/ bladder problems Susiecue, thanks for the info. I had severe kidney infections for 2 years. Then they did a hysterectomy and got another one in the hospital. ( from the catheter I think) After that they all stopped. Weird huh? Haven't had any problems since until now. My urologist called last nite. He said he was "Very" disappointed in my bladder. LOL I told him no more then I was. LOL He is so kind and caring..He called from home after surgery at 8pm. He doubled my meds. Will see if that helps. I asked what he thought this was and he said if the new dose of meds doesn't help in a week that we would have to talk. He thought it was a different kind of interstial Cystitis. Well they didn't make me happy. I know there is no cure for IC and I would have to basically learn to live with the pain. Maybe there are new drugs out now. It just kind of sent me into a little bit of depression. I don't want to hear " You will just have to live with it" Any more. Had my good cry and felt better. LOL Slept with my c pap last night and slept well. Don't have the hot air humidifier yet because the insurance is fighting it. Sound familiar??? Well, venting is done and I am going to call medicare this morning and see if I can get through to them before my 2:30 appt with my GYN for my test results. LOL It will be a day of waiting and disagreeing i'm sure. LOL Hope you have a great day. Aren't you sorry you asked ??? LOLhugs DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2002 Report Share Posted December 10, 2002 Judy, I know how hard this surgery has been on you and I want you to know you are in my thoughts and prayers. Hopefully each day will get better. You take care and do what the drs. say.... Yeah right. LOL Know I'm always thinking of you. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Dear Jen, Sorry to hear about Kayla. She will be in my thoughts and prayers. Keep us posted. love, M Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 In a message dated 1/13/2004 5:46:05 PM Central Standard Time, mntecrlo@... writes: OH WOW Vondie I am so sorry to hear this! AND didn't you say she is pregnant again??? And she is still using drug??? Deb A Hi guys, I am sure I have missed alot. I am thoroughly behind on everything. It has officially happened, I now have two more kids. Out of my stepdaughters 3 kids, I was brought 2 last night. It seems that she was passed out in the garage floor (coming down from some stuff) and the kids were on their own. So, here we go again. Anyway, I will try to keep up on reading. If you dont hear from me in a while, know that I am thinking of all of you and I hope you all do well. Vondie now in charge of 5 kiddos - running me nuts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Vondie, I am so sorry for you and those kids, but you are a safe harbor for them. I will keep you all in my thoughts. Mom of 5 with CF update Hi guys, I am sure I have missed alot. I am thoroughly behind on everything. It has officially happened, I now have two more kids. Out of my stepdaughters 3 kids, I was brought 2 last night. It seems that she was passed out in the garage floor (coming down from some stuff) and the kids were on their own. So, here we go again. Anyway, I will try to keep up on reading. If you dont hear from me in a while, know that I am thinking of all of you and I hope you all do well. Vondie now in charge of 5 kiddos - running me nuts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Vondie; go for severance of her parental rights and become the foster mom of the kids; at least that way you get a little money and the kids may get medicaid! n Rojas update Hi guys, I am sure I have missed alot. I am thoroughly behind on everything. It has officially happened, I now have two more kids. Out of my stepdaughters 3 kids, I was brought 2 last night. It seems that she was passed out in the garage floor (coming down from some stuff) and the kids were on their own. So, here we go again. Anyway, I will try to keep up on reading. If you dont hear from me in a while, know that I am thinking of all of you and I hope you all do well. Vondie now in charge of 5 kiddos - running me nuts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Vondie, What are the ages of your five children? You have a lot of dishes and laundry to keep on top of, but they're worth it! If I were closer, I'd come help. Gale > Hi guys, > I am sure I have missed alot. I am thoroughly behind on everything. It has officially happened, I now have two more kids. Out of my stepdaughters 3 kids, I was brought 2 last night. It seems that she was passed out in the garage floor (coming down from some stuff) and the kids were on their own. So, here we go again. > Anyway, I will try to keep up on reading. If you dont hear from me in a while, know that I am thinking of all of you and I hope you all do well. > Vondie > now in charge of 5 kiddos - running me nuts > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Vondie; you would really have a house full if both Gale and I were closer; we would both come to help and I would bring a grandchild or two--count your blessings! Love, n, who wishes that Gale were your neighbor, too! Re: update Vondie, What are the ages of your five children? You have a lot of dishes and laundry to keep on top of, but they're worth it! If I were closer, I'd come help. Gale > Hi guys, > I am sure I have missed alot. I am thoroughly behind on everything. It has officially happened, I now have two more kids. Out of my stepdaughters 3 kids, I was brought 2 last night. It seems that she was passed out in the garage floor (coming down from some stuff) and the kids were on their own. So, here we go again. > Anyway, I will try to keep up on reading. If you dont hear from me in a while, know that I am thinking of all of you and I hope you all do well. > Vondie > now in charge of 5 kiddos - running me nuts > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 In a message dated 1/14/2004 9:28:07 AM Central Standard Time, mntecrlo@... writes: Vondie WOW VONDIE!! You have your hands full!! There is defiantly a place in heaven for you!!! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Best wishes to you , your wonderful to do this . You should have permanent custody so it wouldn't be so hard on you or them You could get a routine down & stick to it. Bless your heart-- Your in my prayers for all your needs to come LOVE & HUGS GRANDMOMBEV Re: update In a message dated 1/13/2004 5:46:05 PM Central Standard Time, mntecrlo@... writes: OH WOW Vondie I am so sorry to hear this! AND didn't you say she is pregnant again??? And she is still using drug??? Deb A Hi guys, I am sure I have missed alot. I am thoroughly behind on everything. It has officially happened, I now have two more kids. Out of my stepdaughters 3 kids, I was brought 2 last night. It seems that she was passed out in the garage floor (coming down from some stuff) and the kids were on their own. So, here we go again. Anyway, I will try to keep up on reading. If you dont hear from me in a while, know that I am thinking of all of you and I hope you all do well. Vondie now in charge of 5 kiddos - running me nuts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Hello guys. I have a few minutes before I have to start running again today. Here is the jist of what happened. I got a call from the other grandma wanting me to take one of the kids. I guess my stepdaughter was passed out in the garage floor from doing what ever it was she was doing. (I was told meth/ heroin) Anyway, I of course said yes. I ended up with the oldest and the youngest boys. The other grandma only wants the girl. ANyway, I am working with family services, spent the afternoon there yesterday. I filled them in on everything so they are shutting her money and foodstamps down (she sells foodstamps 4 drug money) They said they can help us with the kids. We will only get about 230 in foodstamps for the 2 kids and a little money (they didnt say how much). ANyway, I figure its better than nothing. The kicker is that I called the babys doc and he is supposed to be on a nebulaizer, which I didnt get, and he was supposed to be tested for cf. Apparently she didnt do either, so I have to have them at the doc tommorrow to see what needs to be done now. Then I have to take him for the sweat test. I am really hoping that he is negative, but I guess all the respitory problems he is having is making them think that maybe its cf. What can I say, if my life got any more fun I think I would be insane. I guess I better go, I now have to go start Kody (baby) on albuterol, till I can get him in. I hope everyone is doing well. Vondie not used to all these rugrats Re: update In a message dated 1/13/2004 5:46:05 PM Central Standard Time, mntecrlo@... writes: OH WOW Vondie I am so sorry to hear this! AND didn't you say she is pregnant again??? And she is still using drug??? Deb A Hi guys, I am sure I have missed alot. I am thoroughly behind on everything. It has officially happened, I now have two more kids. Out of my stepdaughters 3 kids, I was brought 2 last night. It seems that she was passed out in the garage floor (coming down from some stuff) and the kids were on their own. So, here we go again. Anyway, I will try to keep up on reading. If you dont hear from me in a while, know that I am thinking of all of you and I hope you all do well. Vondie now in charge of 5 kiddos - running me nuts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 You are the guardian angel they needed. Who better than you would know what to do for them & had such an abundance of love to share. The agency will pay the meds bill as well I am sure. Tell them you will need a separate nublizer for the child due to infection control. I am sure strength will come to you for this task from above. It does happen . LOVE & HUGS, GrandmomBEV Re: update Hello guys. I have a few minutes before I have to start running again today. Here is the jist of what happened. I got a call from the other grandma wanting me to take one of the kids. I guess my stepdaughter was passed out in the garage floor from doing what ever it was she was doing. (I was told meth/ heroin) Anyway, I of course said yes. I ended up with the oldest and the youngest boys. The other grandma only wants the girl. ANyway, I am working with family services, spent the afternoon there yesterday. I filled them in on everything so they are shutting her money and foodstamps down (she sells foodstamps 4 drug money) They said they can help us with the kids. We will only get about 230 in foodstamps for the 2 kids and a little money (they didnt say how much). ANyway, I figure its better than nothing. The kicker is that I called the babys doc and he is supposed to be on a nebulaizer, which I didnt get, and he was supposed to be tested for cf. Apparently she didnt do either, so I have to have them at the doc tommorrow to see what needs to be done now. Then I have to take him for the sweat test. I am really hoping that he is negative, but I guess all the respitory problems he is having is making them think that maybe its cf. What can I say, if my life got any more fun I think I would be insane. I guess I better go, I now have to go start Kody (baby) on albuterol, till I can get him in. I hope everyone is doing well. Vondie not used to all these rugrats Re: update In a message dated 1/13/2004 5:46:05 PM Central Standard Time, mntecrlo@... writes: OH WOW Vondie I am so sorry to hear this! AND didn't you say she is pregnant again??? And she is still using drug??? Deb A Hi guys, I am sure I have missed alot. I am thoroughly behind on everything. It has officially happened, I now have two more kids. Out of my stepdaughters 3 kids, I was brought 2 last night. It seems that she was passed out in the garage floor (coming down from some stuff) and the kids were on their own. So, here we go again. Anyway, I will try to keep up on reading. If you dont hear from me in a while, know that I am thinking of all of you and I hope you all do well. Vondie now in charge of 5 kiddos - running me nuts Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Dear Vondie, I am sorry about your stepdaughter. You are to be commended for taking the children. Many people wouldn't, they would let them go to the state or foster care. You'll be in my thoughts, keep us updated when you can. love, M mom of Nick age 21nocf and almost 20 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Deb, That's how I see it too! Gale > In a message dated 1/14/2004 9:28:07 AM Central Standard Time, > mntecrlo@p... writes: > Vondie > WOW VONDIE!! You have your hands full!! There is defiantly a place in heaven > for you!!! Deb A > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 Hi Natalia, I have never had to drink it myself, but I'm sure my daughter would agree with you about the go-lightly. She drank it once but then refused and would have to get a ng tube for it. Have they tried Miralax for you? If you drink it daily it can help prevent the problem. Its only an 8 oz or whatever size drink and you can mix it with juice or whatever you like to drink (it comes as a powder). I hope the pill thing works for your liver problem and you get outta there soon. love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 I'm going to ask about the Miralax. Thanks for the tip, i need a daily prevention that could help me. Thanks Natalia 24 w CF On Saturday, January 17, 2004, at 11:04 PM, Morey wrote: > Hi Natalia, > I have never had to drink it myself, but I'm sure my daughter would > agree with you about the go-lightly. She drank it once but then > refused and would have to get a ng tube for it. Have they tried > Miralax for you? If you drink it daily it can help prevent the > problem. Its only an 8 oz or whatever size drink and you can mix it > with juice or whatever you like to drink (it comes as a powder). I > hope the pill thing works for your liver problem and you get outta > there soon. > > love, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 Hi Natalia....glad things are still looking up for you. I think its wonderful youre so in tune with your body and i agree sometimes we know our own body and its reactions better than what could have been learned in a text book. I have been working out recently...I am committed to be in tip top shape so that i am better able to take care of my children, and also to be a good influence on Tyler.He is a true bump on a log and i feel as if i cant convince him to be active when im a potato myself.So...instead of " do as i say not as i do " ...i am hoping to break the chain of physical laziness that has plagued my family for as many generations as i can remember and i think that with any luck i can set a trend for generations to come for all my children.Its amazing to me that people such as yourselves are so motivated....again you are a beautiful people; such an inspiration! Keep us update, you know so many of us think of you often, Patty, soon to be buff mom of tyler 8 wcf and 2 wocf...alll of whom shall be lazy NO MORE,lol! > Well, yes I am still here, but it looks like it might not be for long. > It seems like I have these two extra problems working against me. The > GI stuff has come back. I used to get backed up so much when I was a > teen, and I had to drink go-litely all the time. Now it's back and so > is the go-litely. I so drank that and it cleared me out a bit, not > all. The way I learned to combat the problem of obstructions was to > work out. A brisk 30 minute walk always helped me clear stuff out. > But since I've been in here and unable to move I got blocked up, it > seems obvious to me. The doctor is not convinced by that and keeps > giving me the go-litely. Drinking that stuff night after night is > horrible. I can't do it for ever. So yesterday I decided that I am > going to try to work out, here. I feel safe in the hospital, so if > anything went wrong I would be here. I did a 30 minute brisk walk > around the halls - and it was great. My legs are weak, but my lungs > really did well. My saturation stayed up, and I felt really good. > really strong. Then, an hour later (like magic) I went to the washroom > and everything is fine. So I have learned a lot about listening to my > own body, and that sometimes I need to do my own thing to get better. > No more go-litely. That stuff is horrid. > The other issue I have (new) is a build up of bile in my liver that > they have to drain. They are going to try to give me a pill to do > that, and if it does not work, they have this procedure that you are > out for where they stick something up your nose to drain it. I'm > hoping for the pill!!!! > So until this is all cleared up I am staying here, but since my lungs > are good, a FEV1 30% (but I am feeling really strong) once this other > stuff is clear I am free to go home. Fingers crossed nothing else > comes up. > > Natalia > 24 w CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 I am so impressed with your philosophy about making an example out of yourself for your son. I agree, that's the way to do it. Plus it will do you so much good, you'll feel and look better. That's awesome!! I'm proud of you. The power of exercise is amazing, andI think it will be contagious in your home when everyone sees the effects it has on you. For people with CF it's a life link. I feel alive and in control of my body when I work out. And I am not talking about anything crazy, since my lung function will not let me do anything in excess. I just take 30 minute really brisk (almost run) walks two times a day, and some leg exercises (since I lost so much muscle here while in the hospital) and my body responds. And in my head (sometimes out loud if I am alone, I don't want to sound too crazy) I say to myself 'this will not beat me'. It's so dumb, but it works. It gets me to walk faster and push myself and calm my breathing. So GO PATTY!!!! Do it for CF and do it for your kid!!! Let him see the power that you have over your body, and the power that he can have over his. that's awesome. Natalia > Hi Natalia....glad things are still looking up for you. > I think its wonderful youre so in tune with your body and i agree > sometimes we know our own body and its reactions better than what > could have been learned in a text book. > I have been working out recently...I am committed to be in tip top > shape so that i am better able to take care of my children, and also > to be a good influence on Tyler.He is a true bump on a log and i feel > as if i cant convince him to be active when im a potato > myself.So...instead of " do as i say not as i do " ...i am hoping to > break the chain of physical laziness that has plagued my family for > as many generations as i can remember and i think that with any luck > i can set a trend for generations to come for all my children.Its > amazing to me that people such as yourselves are so > motivated....again you are a beautiful people; such an inspiration! > > Keep us update, you know so many of us think of you often, > > Patty, soon to be buff mom of tyler 8 wcf and 2 wocf...alll of whom > shall be lazy NO MORE,lol! > > > > > > > > > > Well, yes I am still here, but it looks like it might not be for > long. > > It seems like I have these two extra problems working against me. > The > > GI stuff has come back. I used to get backed up so much when I was > a > > teen, and I had to drink go-litely all the time. Now it's back and > so > > is the go-litely. I so drank that and it cleared me out a bit, not > > all. The way I learned to combat the problem of obstructions was > to > > work out. A brisk 30 minute walk always helped me clear stuff > out. > > But since I've been in here and unable to move I got blocked up, > it > > seems obvious to me. The doctor is not convinced by that and keeps > > giving me the go-litely. Drinking that stuff night after night is > > horrible. I can't do it for ever. So yesterday I decided that I > am > > going to try to work out, here. I feel safe in the hospital, so if > > anything went wrong I would be here. I did a 30 minute brisk walk > > around the halls - and it was great. My legs are weak, but my > lungs > > really did well. My saturation stayed up, and I felt really good. > > really strong. Then, an hour later (like magic) I went to the > washroom > > and everything is fine. So I have learned a lot about listening to > my > > own body, and that sometimes I need to do my own thing to get > better. > > No more go-litely. That stuff is horrid. > > The other issue I have (new) is a build up of bile in my liver that > > they have to drain. They are going to try to give me a pill to do > > that, and if it does not work, they have this procedure that you > are > > out for where they stick something up your nose to drain it. I'm > > hoping for the pill!!!! > > So until this is all cleared up I am staying here, but since my > lungs > > are good, a FEV1 30% (but I am feeling really strong) once this > other > > stuff is clear I am free to go home. Fingers crossed nothing else > > comes up. > > > > Natalia > > 24 w CF > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > <image.tiff> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 WELL. Now That beats all!!! I am hoping they get the pill for you too. I think to have to drink so much stuff is really bad. Bless your heart~~~~~~~ Now, take care & " have fun " -hehe the exercise did sound like it might have been at least enjoyable. -At least your taking a part in getting it all out hehehaha Did your mail get to you yet. I sent on Jan 7th. Sure does take long for Canada:) Hope this finds you doing better now too LOVE & HUGS, GrandmomBEV update Well, yes I am still here, but it looks like it might not be for long. It seems like I have these two extra problems working against me. The GI stuff has come back. I used to get backed up so much when I was a teen, and I had to drink go-litely all the time. Now it's back and so is the go-litely. I so drank that and it cleared me out a bit, not all. The way I learned to combat the problem of obstructions was to work out. A brisk 30 minute walk always helped me clear stuff out. But since I've been in here and unable to move I got blocked up, it seems obvious to me. The doctor is not convinced by that and keeps giving me the go-litely. Drinking that stuff night after night is horrible. I can't do it for ever. So yesterday I decided that I am going to try to work out, here. I feel safe in the hospital, so if anything went wrong I would be here. I did a 30 minute brisk walk around the halls - and it was great. My legs are weak, but my lungs really did well. My saturation stayed up, and I felt really good. really strong. Then, an hour later (like magic) I went to the washroom and everything is fine. So I have learned a lot about listening to my own body, and that sometimes I need to do my own thing to get better. No more go-litely. That stuff is horrid. The other issue I have (new) is a build up of bile in my liver that they have to drain. They are going to try to give me a pill to do that, and if it does not work, they have this procedure that you are out for where they stick something up your nose to drain it. I'm hoping for the pill!!!! So until this is all cleared up I am staying here, but since my lungs are good, a FEV1 30% (but I am feeling really strong) once this other stuff is clear I am free to go home. Fingers crossed nothing else comes up. Natalia 24 w CF ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2004 Report Share Posted February 14, 2004 > I am not feeling to great...I started running a good fever last night but it > broke this mornign but it started again at 8pm...my lungs are so darn > tight I hope this email finds you better today! Always good to hear from you. jan Quote Link to comment Share on other sites More sharing options...
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