Re: New adopted child over 1year with plagio-options?

January 13, 2010

Hi,

I remember another parent on this boad who also adopted a little boy from China with pretty severe brachy. He was also older but got, I think two DOC bands and saw some really really good results. I think that by going to Cranial Tech you are going to the right place. They band babies up to 2 years of age with still very good results. The boy's name was Samson and the parent was Duval. You can do a search and find out more about their successes.

Leila,Maysa, 23.5 mo. DOC band Grad 5.26.09www.mymaysa.wordpress.com

From: Dc <shoaps@...>Subject: New adopted child over 1year with plagio-options?Plagiocephaly Date: Tuesday, January 12, 2010, 9:43 PM

HI ALL......New to this GROUP...I have Questions!Anyhow we just adopted a cutie from China. We have been home about 1 month, anyway, she came to us at about 15 months of age and with a abnormal head shape. Pretty severe. we are told that since she is now 16 months of age, that surgery is the only SURE method and that will only corret to about 90%.Just wondering if anyone had surgery and if so, at what age and can you give me info on it and any info on helmets.Anyone out there have there child treated over a year of age? We are going tomorrow to a company that may be able to help, Cranial Technologies. Any info is GREATLY appreicated.ThanksD

January 13, 2010

Congratulations on your new daughter!!!!! You can still see correction with a band after 16 months of age. We have members who have banded their babies at that age and older. They will probably chime in. Please let us know what you find out.

Angie Jenna(STAR grad 2003)

New adopted child over 1year with plagio-options?

HI ALL......New to this GROUP...I have Questions!Anyhow we just adopted a cutie from China. We have been home about 1 month, anyway, she came to us at about 15 months of age and with a abnormal head shape. Pretty severe. we are told that since she is now 16 months of age, that surgery is the only SURE method and that will only corret to about 90%.Just wondering if anyone had surgery and if so, at what age and can you give me info on it and any info on helmets.Anyone out there have there child treated over a year of age? We are going tomorrow to a company that may be able to help, Cranial Technologies. Any info is GREATLY appreicated.ThanksD

January 13, 2010

My daughter started her helmet at almost 15 months and wore it for 6 months. We did a STARband. CT will band older babies so that is probably the best place to go. You are lucky that you are close enough to do this.

Please also check out this group: olderplag

This is a list for moms of older babies, toddlers, and preschoolers with plagio. There may be some on there that could answer your questions and pipe in on other alternatives besides helmets and surgery.

I would also recommend checking out some other options IN ADDITION to a helmet (not instead of). Two of the most popular are chiropractic and cranial sacral therapy. We have done both after my daughter graduated from her helmet at 20.5 months. We have seen additional improvements with these treatments. It is likely that at your daughter's age, a severe case will not get into the normal range with a helmet alone. You are going to need all of the help that you can get. If the head shape was caused by any stuck skull bones and C-spine misalignments, then the alternative treatments can correct those issues. Not everyone believes in these methods. I know that I didn't used to, but my own research and personal experience have changed my mind.

, mom to , 28 months

STARband grad May 2009

Chiro and CST

land New adopted child over 1year with plagio-options?

HI ALL......New to this GROUP...I have Questions!Anyhow we just adopted a cutie from China. We have been home about 1 month, anyway, she came to us at about 15 months of age and with a abnormal head shape. Pretty severe. we are told that since she is now 16 months of age, that surgery is the only SURE method and that will only corret to about 90%.Just wondering if anyone had surgery and if so, at what age and can you give me info on it and any info on helmets.Anyone out there have there child treated over a year of age? We are going tomorrow to a company that may be able to help, Cranial Technologies. Any info is GREATLY appreicated.ThanksD

January 13, 2010

Thanks for the replys... can you tell me more on the chiropractic and

cranial sacral therapy that you mentioned. Our daughter head is severe and i am

afraid of her future. Her face is so cute but when she turns to the side it is

so flat! Children's hospital is really saying that helmets is really not going

to help her at this point. They say surgery is the best for improvment.

Cranitaltech told us we would see some change, but not alot. We are running out

of time! She is 16 months today!

Also if anyone has the link to the group for older kids that would be

great. The one i see, i don't think is right. It didn't work for me!

Thanks for the help

DC

>

> Â My daughter started her helmet at almost 15 months and wore it for 6 months.

We did a STARband. CT will band older babies so that is probably the best place

to go. You are lucky that you are close enough to do this.

>

> Please also check out this group: olderplag

>

> This is a list for moms of older babies, toddlers, and preschoolers with

plagio. There may be some on there that could answer your questions and pipe in

on other alternatives besides helmets and surgery.

>

> I would also recommend checking out some other options IN ADDITION to a helmet

(not instead of). Two of the most popular are chiropractic and cranial sacral

therapy. We have done both after my daughter graduated from her helmet at 20.5

months. We have seen additional improvements with these treatments. It

isÂ likely that at your daughter's age, a severe case will not get into the

normal range with a helmet alone. You are going to need all of the help that you

can get. If the head shape was caused by any stuck skull bones and C-spine

misalignments, then the alternative treatments can correct those issues. Not

everyone believes in these methods. I know that I didn't used to, but my own

research and personal experience have changed my mind.

>

> , mom to , 28 months

>

> STARband grad May 2009

>

> Chiro and CST

>

> land

>

> New adopted child over 1year with plagio-options?

>

> Â

>

> HI ALL......

>

> New to this GROUP...I have Questions!

>

> Anyhow we just adopted a cutie from China. We have been home about 1 month,

anyway, she came to us at about 15 months of age and with a abnormal head shape.

Pretty severe.

>

> we are told that since she is now 16 months of age, that surgery is the only

SURE method and that will only corret to about 90%.

>

> Just wondering if anyone had surgery and if so, at what age and can you give

me info on it and any info on helmets.

>

> Anyone out there have there child treated over a year of age?

>

> We are going tomorrow to a company that may be able to help, Cranial

Technologies.

>

> Any info is GREATLY appreicated.

>

> Thanks

> D

>

January 13, 2010

There is a short window of opportunity for using the helmets, but is that true

with surgery? If you have time and the surgery would work now or later, I would

say see what you can acheive with the helmet. That route seems so much less

painful and as someone mentioned, your child may have much more growing to do

because of her new, healthier environment. They say it is all really about how

much they grow while wearing the helmet.

> >

> > Â My daughter started her helmet at almost 15 months and wore it for 6

months. We did a STARband. CT will band older babies so that is probably the

best place to go. You are lucky that you are close enough to do this.

> >

> > Please also check out this group: olderplag

> >

> > This is a list for moms of older babies, toddlers, and preschoolers with

plagio. There may be some on there that could answer your questions and pipe in

on other alternatives besides helmets and surgery.

> >

> > I would also recommend checking out some other options IN ADDITION to a

helmet (not instead of). Two of the most popular are chiropractic and cranial

sacral therapy. We have done both after my daughter graduated from her helmet at

20.5 months. We have seen additional improvements with these treatments. It

isÂ likely that at your daughter's age, a severe case will not get into the

normal range with a helmet alone. You are going to need all of the help that you

can get. If the head shape was caused by any stuck skull bones and C-spine

misalignments, then the alternative treatments can correct those issues. Not

everyone believes in these methods. I know that I didn't used to, but my own

research and personal experience have changed my mind.

> >

> > , mom to , 28 months

> >

> > STARband grad May 2009

> >

> > Chiro and CST

> >

> > land

> >

> > New adopted child over 1year with plagio-options?

> >

> > Â

> >

> > HI ALL......

> >

> > New to this GROUP...I have Questions!

> >

> > Anyhow we just adopted a cutie from China. We have been home about 1 month,

anyway, she came to us at about 15 months of age and with a abnormal head shape.

Pretty severe.

> >

> > we are told that since she is now 16 months of age, that surgery is the only

SURE method and that will only corret to about 90%.

> >

> > Just wondering if anyone had surgery and if so, at what age and can you give

me info on it and any info on helmets.

> >

> > Anyone out there have there child treated over a year of age?

> >

> > We are going tomorrow to a company that may be able to help, Cranial

Technologies.

> >

> > Any info is GREATLY appreicated.

> >

> > Thanks

> > D

> >

>

January 13, 2010

We as parents sometimes have more faith in the technology than the

practitioners. My kid is 21 months old. I've been jerked around by

just about every professional I've come into contact with, yet I

still hold great hopes for Clara's treatment. Here's why:

You'll notice that a lot of us with helmets see surprising

improvements immediately, like, in the first week or two. Everyone

*says* improvement depends on growth, but I don't think that's

entirely true. Big growth spurts are ideal, because they produce new

skull plate molded in the shape of the helmet, making the skull more

rounded.

But it only takes a miniscule amount of growth to bend the sutures

between existing, flat plates to a new angle. A skillfully adjusted

helmet can almost *immediately* alter the angles between skull

plates, because sutures are typically pliable, if they've even formed

yet.

I believe there is a further, intermediate and variable amount of

growth that will make the new angles " stick, " even when there hasn't

been enough circumferential growth to make the cranium very well

rounded. Being an older baby with thicker skull plates may actually

help against regression.

Brachycephaly is known to be more resistant to treatment than common

plagio. I think it is because brachy does not much benefit from this

undescribed therapeutic process, which I call " angular conformance. "

The concept has better descriptive validity than the muddled " active "

vs. " passive, " because it defines precisely what the " action " of an

active helmet is. An active helmet holds the skull plates in a more

favorable angular configuration until new growth, in underlying soft

tissue as well as bone, reinforces the alterations.

In my view, all brachy helmets are " passive, " while so-called

" passive " helmets for plagio merely have an imprecisely directed

activity. So one implication of this theory is that passive helmets

are undervalued, and unskilled orthotists overvalued. I guess that

makes it dead in the water.

--

Thad Launderville

On Jan 13, 2010, at 9:49 PM, Dc wrote:

> Her face is so cute but when she turns to the side it is so flat!

> Children's hospital is really saying that helmets is really not

> going to help her at this point. They say surgery is the best for

> improvment.

>

> Cranitaltech told us we would see some change, but not alot. We

> are running out of time! She is 16 months today!

January 14, 2010

Neither CST or chiro are quick fixes, but at 16 months of age, it is definately not to late.

I don't often hear that anyone recommends surgery so I'm wondering how severe the head is. What measurements did CT give you?

I'll respond later with more information about CST and chiro since I need to leave for work now.

New adopted child over 1year with plagio-options? > > Ã‚ > > > > > HI ALL...... > > New to this GROUP...I have Questions! > > Anyhow we just adopted a cutie from China. We have been home about 1 month, anyway, she came to us at about 15 months of age and with a abnormal head shape. Pretty severe. > > we are told that since she is now 16 months of age, that surgery is the only SURE method and that will only corret to about 90%. > > Just wondering if anyone had surgery and if so, at what age and can you give me info on it and any info on helmets. > > Anyone out there have there child treated over a year of age? > > We are going tomorrow to a company that may be able to help, Cranial Technologies. > > Any info is GREATLY appreicated. > > Thanks > D>

January 14, 2010

As far as measurements, SHE IS A 19. they said she is severe and CHOP in Philly

told me that she is severe! i can tell she is! A normal head is usually about

3 and most babies that come to CT are between 7-13, so being a 19 is not good.

They even mention helmet and then surgery.

I will probably get 20-40% with a helmet and 90% change with surgery.....on the

fence! i don't like all that is involved with surgery, but at the same time i

don't want her to grow up and be depressed because she has a deformity!

She is very pretty straight foward, but turn her head and there is no depth on

the left.

Thanks all for your replys!

DC

> >

> > Ã‚Â My daughter started her helmet at almost 15 months and wore it for 6

months. We did a STARband. CT will band older babies so that is probably the

best place to go. You are lucky that you are close enough to do this.

> >

> > Please also check out this group: olderplag

> >

> > This is a list for moms of older babies, toddlers, and preschoolers with

plagio. There may be some on there that could answer your questions and pipe in

on other alternatives besides helmets and surgery.

> >

> > I would also recommend checking out some other options IN ADDITION to a

helmet (not instead of). Two of the most popular are chiropractic and cranial

sacral therapy. We have done both after my daughter graduated from her helmet at

20.5 months. We have seen additional improvements with these treatments. It

isÃ‚Â likely that at your daughter's age, a severe case will not get into the

normal range with a helmet alone. You are going to need all of the help that you

can get. If the head shape was caused by any stuck skull bones and C-spine

misalignments, then the alternative treatments can correct those issues. Not

everyone believes in these methods. I know that I didn't used to, but my own

research and personal experience have changed my mind.

> >

> > , mom to , 28 months

> >

> > STARband grad May 2009

> >

> > Chiro and CST

> >

> > land

> >

> > New adopted child over 1year with plagio-options?

> >

> > Ã‚Â

> >

> > HI ALL......

> >

> > New to this GROUP...I have Questions!

> >

> > Anyhow we just adopted a cutie from China. We have been home about 1 month,

anyway, she came to us at about 15 months of age and with a abnormal head shape.

Pretty severe.

> >

> > we are told that since she is now 16 months of age, that surgery is the only

SURE method and that will only corret to about 90%.

> >

> > Just wondering if anyone had surgery and if so, at what age and can you give

me info on it and any info on helmets.

> >

> > Anyone out there have there child treated over a year of age?

> >

> > We are going tomorrow to a company that may be able to help, Cranial

Technologies.

> >

> > Any info is GREATLY appreicated.

> >

> > Thanks

> > D

> >

>

January 14, 2010

Another thing to try is an osteopath in addition to the other

treatments.Â We've seen a fair amount of visual improvement since 16

months.Â I think it is highly likely that if you start aggressive

treatment now that you will see improvement.Â Another thing to consider

is many Chinese don't mind plagio/brachy.Â My son's new daycare class

is about half Chinese and I see a lot of brachy.Â It is a cultural

thing.Â I definitely would not consider surgery yet.

We are doing 3 different types of therapies.

1)Â Starband helmet

2)Â Chiropractor who does chiro adjustments and CST - almost weekly

3)Â Top notch osteopath every few weeks

- Kathy, mom to 19.5 months, now very mild plagio

wrote:

Â

Neither CST or chiro are quick fixes, but at 16 months of age, it

is definately not to late.

Â

I don't often hear that anyone recommends surgery so I'm wondering

how severe the head is. What measurements did CT give you?

Â

I'll respond later with more information about CST and chiro since

I need to leave for work now.

Â

Â Â Â Â

Â

New adopted child over 1year with

plagio-options?

>

> Ã‚Â

>

> HI ALL......

>

> New to this GROUP...I have Questions!

>

> Anyhow we just adopted a cutie from China. We have been home about

1 month, anyway, she came to us at about 15 months of age and with a

abnormal head shape. Pretty severe.

>

> we are told that since she is now 16 months of age, that surgery

is the only SURE method and that will only corret to about 90%.

>

> Just wondering if anyone had surgery and if so, at what age and

can you give me info on it and any info on helmets.

>

> Anyone out there have there child treated over a year of age?

>

> We are going tomorrow to a company that may be able to help,

Cranial Technologies.

>

> Any info is GREATLY appreicated.

>

> Thanks

> D

>

January 14, 2010

I don't understand the terms active and passive regarding helmets. My ortho kind

of said there really isn't a 'passive' helmet. Not using the typical definition

of the word, at least.

Can you explain the terms better? My daughter just got a Starband which is

suppose to be classified as active.

>

> > Her face is so cute but when she turns to the side it is so flat!

> > Children's hospital is really saying that helmets is really not

> > going to help her at this point. They say surgery is the best for

> > improvment.

> >

> > Cranitaltech told us we would see some change, but not alot. We

> > are running out of time! She is 16 months today!

>

January 14, 2010

Active bands (STARband, Doc Band, Hanger Band) have pressure points which

" hold " the prominent areas while " redirecting " growth in the flat areas.

They are fit very close to the head in the prominent areas and thus need to

be closely monitored. The flat areas have room to grow but not a lot and

these areas are shaved out usually at each appt. They apply a gentle

pressure. Passive bands do not hold in any area. They fit looser and

totally rely on growth to round the head. The active uses growth and the

redirection from the pressure points.

See this article as well for more information:

http://f1.grp.fs.com/v1/cBJQS2vjzc3YPsaoctlX-A9iV4tmVggYNqJxmEbgW7kawVs

Pqb_a--To2bb97dVaCp2R5k4D1XcuYx0z-7o/DOCBand%20Info/DOCBandDynamicDefinition

..pdf

Molly

Novato, California