Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 Hello, I was operating under the assumption I either had ms or neurosarc.All tests for ms came back negative. They did a chest x ray, then a ct.This led them to follow up with a pet. I have a 2 cm lesion in one lung.It is suspicious for cancer but they can't tell if it really is or it's just anold lesion of some kind. They suggested a follow up ct in the near futureto see whether it is growing. If it's growing it may be something to beconcerned about, otherwise it may just be old news already fixed by myimmune system. They said the pet was not a classical presentation of sarcoidosis apparently meaning it showed nothing consistent with lungsarc. My ms doc finished her ms part of the job and appropriately dumped meback on my family physician. I've been doing much better lately. My moreprofound neuro symptoms such as muscle twitches, severe difficulty walking,pain, confusion, very severe fatigue, etc. have mostly abated leaving mejust weaker and more tired than I used to be, especially when walking. My ACE and calcium levels are elevated and according to the last test stillrising. I'm confused because a spot on my lung, even if it were to turn out to becancerous, doesn't seem to address either the ACE levels (typically associatedwith lymphoma but not mentioned for other cancers) or the neurological issues (though paraneoplastic syndrome could account for those). Nor would itseem to account for the dry eye and mouth issues that've plagued me for yearsalong with a salivary gland that keeps swelling up and then going down again. I'm tired of fighting with the doctors and figure my chances of getting taken seriously while I'm in remission from whatever I have are minimal considering howmuch difficulty I had when I could barely walk. Following up on the ct and otherwiseignoring the rest of it until I have another flare seems like the path of least resistance at the moment. Sorry for the length of this post but I hate answering questions without background info. My question is whether anyone has been through a similar experience or has suggestions as to a course of action if any. Cheers, Darrin Quote Link to comment Share on other sites More sharing options...
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