Guest guest Posted November 16, 2010 Report Share Posted November 16, 2010 Hi, . It's good to hear from you. Hopefully we'll get some input from some other Remicade users. It may vary as to how quickly you feel an improvement. That's odd about the cold sensitivity just starting. I've had that for many, many years. I use a straw for any drink with ice in it, & have to cover my mouth when it's really cold outside. Mine started way before the sarc, so I don't think there's a connection, for me at least. Using the Sensedyne toothpast has helped, and I've trained my dentist & his staff to squirt water on my tongue rather than directly on my teeth; then I can swish it around & warm it up. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 > To: Neurosarcoidosis > Date: Tue, 16 Nov 2010 21:20:32 +0000> Subject: Re: Hello? Hello? Anybody there?> > Hi Rose,> > A couple of weeks ago, I had my first Infliximab (Remicade) infusion. > I feel a little calmer inside, but am not convinced yet that there has> been any real change to the pains in back, fingers, etc. Curiously,> over the recent past, my teeth and jaws have become really sensitive to> cold, even if breathing the winter air in through an open mouth.> Anything from the fridge is painfully cold. Next infusion is on 01 Dec,> so we'll see if that makes the difference. Still on 20mgs Pred for the> while, together with omeprazol for the tum.> > Best regards,> > > > > Guys, this list has been way too quiet. Please check in to let us> > know how you are doing--just a quick note is fine.> > > > _)_ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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