Test results

[Guest guest]

have a better day

cara mom to jacob

Jeanie wrote:

All of Brocktons test results came back normal for GH and

Chromozomes. I'm not exactly sure what that means. I guess we're

right back where we started from. It was kind of pointless to put him

through the blood draw. Now it's just a matter of GI and figuring out

where he stands with that. UGH. It just seems like a never ending

sea of doctors and appts. and confussion!

So far Mike has been able to avoid a lay off. I, on the other hand,

am no longer watching the little girls I was caring for. Their mother

injured her back and was told that she needed to quit her job. The

money I got watching them seemed so piddly until now! Haha! At least

it helped with gas for our vehicles once a week! I am a very cheap

childcare provider. I only charged her $3.00 an hour and I fed them

breakfast and lunch! Believe me..........if I take in any more kids,

I won't be that cheap again!

Right now I could just STRANGLE Mike. He brought me home a speeding

ticket this morning. 45 in a 30. Nice. He's not one to stir the pot

and thought we'd just send it in and that would be that. I reminded

him of what he said when got her speeding ticket...... " She

needs to face the music. " So.....he'll be going to court and asking

to have the charge reduced so our insurance doesn't go up and

hopefully he'll get a smaller fine. And I wonder why my hair is

falling out!!! GEEZE!

I am so glad that some of you have GOOD NEWS to share! I don't know

if I missed something but how are Ian and doing?

Thanks again for letting me vent! I don't know what I'd do without

this listserve! LOL

[Guest guest]

I'm just back from having another visual field tests done, and the great news is

that my vision loss has gone from 45% a month ago, to closer to 5% now! The

remaining loss is in the central part of my vision, so it still interferes with

reading, but at least we know the corticosteroids are doing their thing, and it

should recover fully, with any luck. And I'm allowed to drive again!

My vision is very blurry, much worse than usual, because I've developed

steroid-diabetes (which should go away once I'm off the steroids), and my high

blood sugars are affecting my eyes. I've just started on a very low carb diet,

to try to control my blood sugars that way.

The ophthalmologist said my eyes showed no signs of sarcoidosis or vasculitis

inside the eyes themselves, too.

I'll start dropping my pred dose from tomorrow (I'm on 60 mg/day) - my

neurologist said reduce it by 10 mg every 5 days - so I should be off it

entirely by the end of November.

I still have numbness down my right arm and on the right lower jaw/side of my

mouth, and have developed some dizziness today (has anyone else got that as a NS

symptom?).

Cheers,

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http://sutherland-studios.com.au

Dummies author :

http://tinyurl.com/CodesandCryptograms

http://tinyurl.com/WordSearches

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[Guest guest]

, I have numbness and neuro pain on the whole left side of my body, even my teeth sometimes, the pain is a lot better since starting meds, but it's still there, some days I want to cut my toes off as they hurt so bad, so I'm not sure that ever goes away,  just gets better, but I still have my days, yesterday was the worse day I have had in a very long time, but it was right after our first freeze, and the highs yesterday were in the 40's.  I feel better today, but I think I'm getting something in my lungs need to keep a close eye on that. Anyway better today. Hope you all are having a good day.

MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

 

I'm just back from having another visual field tests done, and the great news is that my vision loss has gone from 45% a month ago, to closer to 5% now! The remaining loss is in the central part of my vision, so it still interferes with reading, but at least we know the corticosteroids are doing their thing, and it should recover fully, with any luck. And I'm allowed to drive again!

My vision is very blurry, much worse than usual, because I've developed steroid-diabetes (which should go away once I'm off the steroids), and my high blood sugars are affecting my eyes. I've just started on a very low carb diet, to try to control my blood sugars that way.

The ophthalmologist said my eyes showed no signs of sarcoidosis or vasculitis inside the eyes themselves, too.

I'll start dropping my pred dose from tomorrow (I'm on 60 mg/day) - my neurologist said reduce it by 10 mg every 5 days - so I should be off it entirely by the end of November.

I still have numbness down my right arm and on the right lower jaw/side of my mouth, and have developed some dizziness today (has anyone else got that as a NS symptom?).

Cheers,

........................................................................................................

http://sutherland-studios.com.au

Dummies author :

http://tinyurl.com/CodesandCryptograms

http://tinyurl.com/WordSearches

........................................................................................................

[Guest guest]

That's great news about your vision, ! I hope it returns to 100%. I hate to keep harping away on this, but as I told KP, I think your doc is tapering the Pred too fast. I guess as I said before, they've probably done it & gotten away with it, but one of these days a patient is going to go into adrenal crisis, so why take the chance? We all want to be off Prednisone, but there are worse things, including a major relapse or flare in a new organ or system. I hope & pray that you will be fortunate & escape these problems, but be very vigilant about even slight changes in your vision or new/unusual symptoms anywhere in your body.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

> To: Neurosarcoidosis > Date: Thu, 28 Oct 2010 18:31:06 +1100> Subject: Test results> > I'm just back from having another visual field tests done, and the great news is that my vision loss has gone from 45% a month ago, to closer to 5% now! The remaining loss is in the central part of my vision, so it still interferes with reading, but at least we know the corticosteroids are doing their thing, and it should recover fully, with any luck. And I'm allowed to drive again!> > My vision is very blurry, much worse than usual, because I've developed steroid-diabetes (which should go away once I'm off the steroids), and my high blood sugars are affecting my eyes. I've just started on a very low carb diet, to try to control my blood sugars that way.> The ophthalmologist said my eyes showed no signs of sarcoidosis or vasculitis inside the eyes themselves, too.> > I'll start dropping my pred dose from tomorrow (I'm on 60 mg/day) - my neurologist said reduce it by 10 mg every 5 days - so I should be off it entirely by the end of November.> > I still have numbness down my right arm and on the right lower jaw/side of my mouth, and have developed some dizziness today (has anyone else got that as a NS symptom?).> > Cheers,> > > > .......................................................................................................> http://sutherland-studios.com.au> > Dummies author :> http://tinyurl.com/CodesandCryptograms> http://tinyurl.com/WordSearches> > .......................................................................................................> > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > >