Re: No more doctors care - I am done even though I am still having p

[Guest guest]

I, like you, had the same problems. I had to go through 20 IVs of solumedrol plus 60 mg of prednisone at the same time. The 20 IVs were over 1 1/2 years. I also had the facial palsy but eventually it went away being on prednisone.

I also had trouble when reducing prednisone that my vision would act up. I have gone down as far as 13 to 18 mg only to have the vision get worse. I do have a lot of optic nerve damage but he is surprised as how much I can see even with the damage. You can't see where the areas of damage are but found I have to turn my head to see certain things ie., like 5 is a 5 or a 6 is a 6 etc.

I have been on prednisone for almost 4 years and since my eye apparently seems to always be attacked by the sarcoid they want to wean me off and put me on Imuran. Which I know I have told the group I am leary about doing with the job I have. I know I will have to make a decision shortly but really don't want to.

Kat