Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 KP, I'm relieved to read that you have found another doctor & hopefully things will now move forward. I had taken the liberty of bothering one of the co-owners, Tracie, who is supposed to be on a much-needed break from the group, because I was so worried about you. Tracie worked with a group of opthomalogists for many years & was herself a certified optical technician (I may have the title wrong) and she is extremely knowledgeable about eye problems & sarc. I hope you & everyone else in the group takes her advice to heart. Date: Wed, 27 Oct 2010 23:33:43 -0700Subject: Re: please helpTo: mamadogrose@... She needs another doc. The man's an idiot. She needs a GOOD OPHTHALMOLOGIST. M.D. HE'LL FLIP WHEN HE SEE THE RAPID TAPER OF THE PRED. PRED FORTE DROPS may help with her eyes-- but even that is a SLOW taper. Since her doc doesn't have a clue about sarc-- and what it can do -- she has to get another doc. There has to be another one on her insurance that can take over-- otherwise she has the right to go "out of plan." She needs to contact her plan administrator-- what insurance is it anyway? I suspect she has lung involvement also? What else? Since her eyes are still screwed up, that alone is a sign that the pred has NOT even started to settle any of the systems down-- and she'll flare like a wildfire with this approach. She needs to be on Imuran, Arava, or one of the other alternatives while she tapers-- as she is "multi-system." SHE HAS TO GET ANOTHER DOC!!! FIRE THIS IDIOT'S ASS. NO BONES-- HE HAS TO GO-- HIS CHOICES WILL MAKE HER AS SICK AS TERESA WAS FOR SO MANY YEARS-- AND I KNOW TERESA CAN SPEAK LOUDLY HERE-- We can hope that some of the vision loss is from the high dose pred-- since it skyrockets blood sugar-- it wreaks havoc on the vision-- but a fast taper on that dose will throw her into adrenal crisis. Search the ARCHIVES for some of the articles I've done on adrenal crisis. I'm not online much-- but I'll check back and see what info you send. You can forward this, or copy/paste my reply-- whichever works best for you. Love ya, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2010 Report Share Posted October 28, 2010 Thanks Tracie,Yes she is like gold, with many words of wisdom, she helped me through a few crisis, help me get Remicade that I fought a whole year for, she is amazing, and knows her stuff. Thanks Rose, MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:) KP, I'm relieved to read that you have found another doctor & hopefully things will now move forward. I had taken the liberty of bothering one of the co-owners, Tracie, who is supposed to be on a much-needed break from the group, because I was so worried about you. Tracie worked with a group of opthomalogists for many years & was herself a certified optical technician (I may have the title wrong) and she is extremely knowledgeable about eye problems & sarc. I hope you & everyone else in the group takes her advice to heart. Date: Wed, 27 Oct 2010 23:33:43 -0700Subject: Re: please helpTo: mamadogrose@... She needs another doc. The man's an idiot. She needs a GOOD OPHTHALMOLOGIST. M.D. HE'LL FLIP WHEN HE SEE THE RAPID TAPER OF THE PRED. PRED FORTE DROPS may help with her eyes-- but even that is a SLOW taper. Since her doc doesn't have a clue about sarc-- and what it can do -- she has to get another doc. There has to be another one on her insurance that can take over-- otherwise she has the right to go " out of plan. " She needs to contact her plan administrator-- what insurance is it anyway? I suspect she has lung involvement also? What else? Since her eyes are still screwed up, that alone is a sign that the pred has NOT even started to settle any of the systems down-- and she'll flare like a wildfire with this approach. She needs to be on Imuran, Arava, or one of the other alternatives while she tapers-- as she is " multi-system. " SHE HAS TO GET ANOTHER DOC!!! FIRE THIS IDIOT'S ASS. NO BONES-- HE HAS TO GO-- HIS CHOICES WILL MAKE HER AS SICK AS TERESA WAS FOR SO MANY YEARS-- AND I KNOW TERESA CAN SPEAK LOUDLY HERE-- We can hope that some of the vision loss is from the high dose pred-- since it skyrockets blood sugar-- it wreaks havoc on the vision-- but a fast taper on that dose will throw her into adrenal crisis. Search the ARCHIVES for some of the articles I've done on adrenal crisis. I'm not online much-- but I'll check back and see what info you send. You can forward this, or copy/paste my reply-- whichever works best for you. Love ya, Tracie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.