Re: Upset about article flat head syndrome and developemental delay

February 16, 2010

My son is now 9 months old and also has brachy and tortcollis. He has had a DOC

band band for 6 months and has just been fitted for a third one. I to had

concerns with his developmental skills because he does not crawl and cannot sit

up from a laying down position. What I did was called info line 211 to get the

number for a program called Birth to three. They came in evaluated him and

found that he was slow on the developmental skills. Now he will be recieving

Occupational Therapy once or twice a week to help him develop the skills. If

you have this program available which I know most states do I suggest calling

them it is a great program and the best part is you do not need a dr to refer

you, you can refer yourself. If you have any further questions feel free to

email me.

>

> Has anyone else read this article:

>

http://www.scientificblogging.com/news_articles/infants_flat_head_syndrome_risk_\

developmental_delay_study

>

> My son has brachy and got his DOC band a week ago; he's 10 months old. He is

slightly behind on some physical stuff. He crawls backward and sideways and

rolls all around, but not forward. He doesn't pull himself up. He sits very

well, but doesn't get into sit from laying down. He does babble a lot and claps

and waves and mocks us. I'm just hoping it's just a delay and he'll catch up

with no lasting effects later. I just feel so bad. We tried to turn his head

when he was younger, but he always ended up sleeping straight back on his head.

I wish pediatrician's educated people more about this from early on. My ped

never seemed all that concern, just said it should start rounding out and then

finally sent us at 9 months. Just venting I guess! Thanks for listening.

>

February 16, 2010

this is great advice for anyone worried as early intervention is completely risk free and completely cost free and in most states they even come right to your house or childs daycare setting to evaluate them

On Tue, Feb 16, 2010 at 10:17 AM, shortie12152002 <shortie12152002@...> wrote:

My son is now 9 months old and also has brachy and tortcollis. He has had a DOC band band for 6 months and has just been fitted for a third one. I to had concerns with his developmental skills because he does not crawl and cannot sit up from a laying down position. What I did was called info line 211 to get the number for a program called Birth to three. They came in evaluated him and found that he was slow on the developmental skills. Now he will be recieving Occupational Therapy once or twice a week to help him develop the skills. If you have this program available which I know most states do I suggest calling them it is a great program and the best part is you do not need a dr to refer you, you can refer yourself. If you have any further questions feel free to email me. >> Has anyone else read this article:

> http://www.scientificblogging.com/news_articles/infants_flat_head_syndrome_risk_developmental_delay_study

> > My son has brachy and got his DOC band a week ago; he's 10 months old. He is slightly behind on some physical stuff. He crawls backward and sideways and rolls all around, but not forward. He doesn't pull himself up. He sits very well, but doesn't get into sit from laying down. He does babble a lot and claps and waves and mocks us. I'm just hoping it's just a delay and he'll catch up with no lasting effects later. I just feel so bad. We tried to turn his head when he was younger, but he always ended up sleeping straight back on his head. I wish pediatrician's educated people more about this from early on. My ped never seemed all that concern, just said it should start rounding out and then finally sent us at 9 months. Just venting I guess! Thanks for listening.

> > >

-- -mommy to Emma, Becca, , and Girl Scout cookies are coming!

February 16, 2010

Each state has its own Early Intervention program. They provide services to infants and toddlers, birth to three years of age, with disabilities or delays, and their families. Call them and tell them that you're concerned about your little one, and ask how to contact the early intervention system in your neighbhorhood so that you can have your child evaluated for a disability. To get information on your state go here:

http://www.nichcy.org/states.htm

Molly

Novato, CA

Nicolas, 4 years old, STARband graduate

On 16 February 2010 09:09, Durocher <funwith4@...> wrote:

this is great advice for anyone worried as early intervention is completely risk free and completely cost free and in most states they even come right to your house or childs daycare setting to evaluate them

On Tue, Feb 16, 2010 at 10:17 AM, shortie12152002 <shortie12152002@...> wrote:

My son is now 9 months old and also has brachy and tortcollis. He has had a DOC band band for 6 months and has just been fitted for a third one. I to had concerns with his developmental skills because he does not crawl and cannot sit up from a laying down position. What I did was called info line 211 to get the number for a program called Birth to three. They came in evaluated him and found that he was slow on the developmental skills. Now he will be recieving Occupational Therapy once or twice a week to help him develop the skills. If you have this program available which I know most states do I suggest calling them it is a great program and the best part is you do not need a dr to refer you, you can refer yourself. If you have any further questions feel free to email me. >> Has anyone else read this article:> http://www.scientificblogging.com/news_articles/infants_flat_head_syndrome_risk_developmental_delay_study

> > My son has brachy and got his DOC band a week ago; he's 10 months old. He is slightly behind on some physical stuff. He crawls backward and sideways and rolls all around, but not forward. He doesn't pull himself up. He sits very well, but doesn't get into sit from laying down. He does babble a lot and claps and waves and mocks us. I'm just hoping it's just a delay and he'll catch up with no lasting effects later. I just feel so bad. We tried to turn his head when he was younger, but he always ended up sleeping straight back on his head. I wish pediatrician's educated people more about this from early on. My ped never seemed all that concern, just said it should start rounding out and then finally sent us at 9 months. Just venting I guess! Thanks for listening.

> > >

-- -mommy to Emma, Becca, , and Girl Scout cookies are coming!

February 16, 2010

Hi , My son was on the same track as your son at 10 months. Then, at 12

months, something clicked. He started crawling, pulling up to stand, and

cruising like a champ. However, he just turned 15 months and still isn't

walking yet. I brought it up to his pediatrician and he said he is still in the

normal range. As long as you see your son going forward in development, try not

to worry. If he starts regressing, then you should talk to your pediatrician

right away.

I was worrying (still do) about the correlation between plagio/brachy &

development delays. Especially when I compared Luke to babies around his age.

My son preferred to flip through his books and play with his peg puzzles and

blocks. It's just his temperament. He's cautious, laid back and likes to

observe before he gets in on the action.

I would also look at the weight and height of your son. Sometimes the laid back

chubby babies take a little longer to develop their large motor skills because

there is more strength needed to navigate and maneuver all the rolls of fat:)

There will always be something to worry about.....

Mom to Luke, 15 months

STARband grad 4/7-6/10/09

DOCband grad 9/2-12/7/09

Plagio & Brachy

NYC