Questions and more questions

[Guest guest]

hi, to everyone here

I don't post often but I do lurk frequently. I have a few questions and my docs

don't seem to know the answers. I've had NS since 2007 and seem to have reached

some stability in my symptoms. The only sarc med I'm on is CellCept. Here are

my questions:

1)When I overdo my activity level, my symptoms seem to return. Mostly I battle

fatigue, brain fog, balance problems is this typical? Once I spend a few days

resting the symptoms are not as obvious.

2)Have any of you experienced a true remission of your NS? How realistic is it

to expect such a response?

3)Any good ideas of how to lose the extra poundage that I owe to prednisone?

I've been off of it for about a year and not matter what I do I don't seem to be

able to get the scale to budge.

I hope all of you are doing well. Thanks for any thoughts you might have.

Sharon