Guest guest Posted August 4, 2010 Report Share Posted August 4, 2010 I also missed a lot of people's Birthdays. I am sorry. I wish everyone who I missed a special belated Birthday with many, many more. Especially G-d willing, many PAIN FREE ones!!!!!! have not been feeling well at all. Meds are not playing nicely in my body and besides from the normal arm, legs, knees, back and stabbing pains I also get severe chest pains when the Sarc becomes bad. I feel like I'm having a heart attack and have to drink a carbonated soda as fast as I can so I can burp and let some air out. Anyone else have this? I have so much lymph node involvement that when their inflamed they don't leave room for much of anything else. I had so many radiologists and pulmonologists want a copy of my first PET because they never saw anyone so bad. ( I should have charged and autographed them, sure now I think of it). I have to carry a soda with me where ever I go. because it feels exactly like a heart attack, I'm petrified of the day I burp and the pain doesn't go away. In fact that's how I measure how bad the day was. A 0 soda day was a very good one and an 8 soda day is a bad one. I'm already on my 6th today. This is so much fun!!! I love when my Pulmonologist (the one who calls himself a "Sarcodologist" says repeatedly, "Sarcoidosis is a painless disease!!!" Quote Link to comment Share on other sites More sharing options...
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