exercise

[Guest guest]

>

> Yes, my life's structure has changed dramatically. I

> got divorced in Jan., bought a house, changed jobs

> twice this year and increased my family size...so yes

> it has changed. And with everything else, my whole

> lifestyle changed again. I keep wondering when the

> whirlwind will stop, but yet to find an answer. I

> pray about it, try to gear up in my mind, but nothing

> at all seems to be there. I use to think nothing will

> stop me and after all that has happened I have

> stopped. I don't want to be 100# heavier, but don't

> really know what to do...I feel like I did before

> surgery which is a killer. Don't know how to bring

> back the feelings of what I once had.

>

,

I have yet to START exercising. I have the heart to

do it, but like you my life has been such a

whirlewind since my surgery and haven't really

been well enough to start. Just when I think I am

getting well enough... something else happens.

Like last week getting bronchitis and strep...

kathy

*******************************************

The woods are lovely, dark, and deep,

But I have promises to keep,

And miles to go before I sleep,

And miles to go before I sleep.

[Guest guest]

Hi, Shauna! I'm glad that you are feeling better. Regarding your bone strength, have you had a bone density scan since being on the Pred? Are you taking any calcium/vit D?

If you have access to a pool, swimming, water exercise or just plain water walking are great ways to exercise & are easy on the joints.

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: sglaspie2000@...Date: Tue, 14 Sep 2010 18:14:14 -0700Subject: Re: Digest Number 5335 Re : Roll Call

Hi everyone,

Not on here that much these days. I do try to go back and read the emails from everyone. But I am happy to say I am feeling pretty good these day. I am currently suffering from some symptoms perhaps caused by long term use of the prednisone. Since I have been feeling a little better, I've been trying to workout more at least 4 to 5 times a week. I have noticed that my bones aren't as strong as they should be.

At the moment, I am experiencing some pain from walking daily in my hips, knees and in my foot since uping the exercise. Some days I try to just ride the bike or skip the walking and just do my silver sneakers classes if the pain is more that day.

I love to walk now because it helps with the stiffness and overall health. I'm going to keep going while I am able and just rest when it becomes a little overwhelming.

I went to my eye doctor last week and he said my iritis and uevitis is gone for now and I don't have to come back for a year unless I notice some changes.

I am very thankful to God that I am doing as well as I am at the moment and I wish you all have at least a few days that are pain-free.

Shauna in atlanta.

Anyway,

From: "Neurosarcoidosis " <Neurosarcoidosis >To: Neurosarcoidosis Sent: Tue, September 14, 2010 11:25:14 AMSubject: Digest Number 5335There are 7 messages in this issue.Topics in this digest:1a. Re: Roll Call, please............. From: Connie Griffis1b. Re: Roll Call, please............. From: Rose 1c. Re: Roll Call, please............. From: rachyanne1d. Re: Roll Call, please............. From: topdat1@...1e. Re: Roll Call, please............. From: Marla Bramer2a. Re: Bad Week From: Connie Griffis3. Re Roll Call, Attn ! From: DarleneMessages________________________________________________________________________1a. Re: Roll Call, please............. Posted by: "Connie Griffis" conaugusta@... conaugusta Date: Mon Sep 13, 2010 6:01 pm ((PDT))My pulm called a sarc spec up north that she knows when she ran out of options and he recommended chorloquine 250 mg plus 10 mg of pred so far it seems 2 b working----------Sent from AT & T's Wireless network using Mobile Email- Roll Call, please.............> To: neurosarcoidosis > Date: Monday, September 13, 2010, 5:53 AM> > > > > > > > Hi everyone,> Hey, it is nearly Fall so let's start a new season (a little early) and > have a really good Roll Call. We have 600+ members and the list > is sooooo quiet! This worries all of your Owners and Moderators --> as we really do worry about each and every one of you. We need to> know if you are ok; or very ill; latest in your life; in remission and too> busy having fun to post; etc. > > Please just take a moment and post how you are. You don't have> to write a book -- unless you want too! :-)> > I will start ---- About 6 weeks ago, my Doctor decided he wanted to> take me off some of my meds........so he has cut my Imuran in half again> and plans to take me off it completely the middle of October. Since I > started this, my severe headaches have returned; I ache all over -- muscles,> joints, all over; I am nauseated all the time; want to sleep ALL the time; > have absolutely NO energy at all; have off and on diahreah, and etc. You> get the message. When I go off Imuran, I will have no immuneoppresents> (sp) at all! This worries me. I tried to argue with the Doctor, but he says > he is worried about this drug damaging my liver..... > > Any comments will be appreciated. Thanks.> Hugs,> Darlene> NS Co-Owner/Moderator> > > > > > > > > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > >