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WOW finally a post about Carnie...being pregnant...

> > Hello all,

> >

> > I am new to the list. In the process of considering the surgical

> option I was trying to find any medical research that follows the

> surgery results on the long run. (5 years or more. That seems to

> be the threshold for cancer survivals). I can not find any such

long

> term research. Why it is not done, I do not know, but it is just

> not done. Why some doctors/institutions not considering it

> essential and pushing for such research, I can not understand.

> >

> > In the alternative, I am trying to find people who had any of

the

> surgical procedures done quite a long time ago. I would like to

> find some people who had the operation prior to January 2000 who

are

> willing to share their experience - good or bad.

> >

> > If anyone is such a person or knows of such person, please let me

> know. Thank you so much.

> >

> >

> >

> >

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  • 7 months later...
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Where can you buy this rice filled cloth bag and can it be reused for a few

weeks?

Thanks,

Steve

cfarero <no_reply > wrote:

Devyn

I was told not to use ice after 48 hours. I have purchased a rice

filled cloth bag that I warm up in the microwave, and then I place

that on my jaw. The heat increases blood flow to the area, and helps

speed up the healing. That might work better for you than the ice.

As for the numbness, it could be a while. With each passing week, you

should feel that it gets a little better, but it could be a long time

before you get complete feeling back. You may always have a small

patch of numbness. If it is really bothering you, you should talk to

your OS about it.

> Hey My name is Devyn and I'm a 20 year old male from Tampa FL. I had

my

> operation on may 11th 2005 on my upper and lower jaw. I'm in my

first

> week of recovery and I feel great other than mild pain around my

chin

> and nose area. My right side is slightly larger than my left, I've

been

> trying to even them out with ice.

>

> I have a question about the knumbness under my right eye mostly, how

> will it take for the feeling to come back completely?

---------------------------------

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  • 4 weeks later...
Guest guest

Hi Ann,

There are a few UK members here, and I'm sure they'll introduce

themselves.

I was about 3 years older than you when I had my surgery 3 years ago,

also upper/lower and genio. I also couldn't open more than a finger's

width initially. It's not just the bands preventing you, I'll bet that

your muscles are not yet used to the move that the surgeon made, and

that you'll have a ways to go yet in opening fully. I found that when

I removed the bands, for eating, I was able to open a bit further, but

I would always seem to hit what felt like a brick wall - no further!

Gentle stretches when the bands were removed was all I did for the

first few months, my ortho didn't want me doing anything more

rigorous. After about three months, he did give me some resistance

exercises to do, and I was able to move quickly to a more normal

opening. According to my surgeon, I'm now able to open more than pre-

op, although it doesn't feel like that to me.

Happy healing!

> Hello my name is Ann I am 44 and 26 days post op after having both

my

> top and bottom jaw done.

> I live in the uk in Chessington Surrey.

> At the moment I am off fluids and on toddler food! Yesterday I tried

> to chew but as my bottlom jaw is still numb this is not easy.

> The feeling is starting to come back but more as intense irritating

> discomfort. I can open my mouth 1 finger maionly because of the

> elastics keeping it shut. Really irritating.

> Is there anyone slse living near me?

> Ann

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  • 4 weeks later...
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Hi everyone! Just wanted to say hello, my name is Nikki and I am post op 5

days right now, and I have been really informed through all of the emails. I

just saw my OS today and he told me he would have me unwired in 3 weeks, I'm

recovering faster than usual. so that is good news, because the first couple

days were torturous! It's not really the pain, but mostly the being wired

shut and the post nasal drip that occurred (I had both upper and lower) but

now it's mostly gone. I cannot wait until the 3 weeks are over! Anyhow,

thanks for all of the support and good luck to all of you who are still in

the process. it's a journey that is worth the wait.

Cheers!

Nikki

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Congratulations Nikki! Glad to hear you are over the worst post op.

You sound like such a trooper. Hope the next few weeks flies by in

the blink of an eye. Cathy

> Hi everyone! Just wanted to say hello, my name is Nikki and I am

post op 5

> days right now, and I have been really informed through all of the

emails. I

> just saw my OS today and he told me he would have me unwired in 3

weeks, I'm

> recovering faster than usual. so that is good news, because the

first couple

> days were torturous! It's not really the pain, but mostly the

being wired

> shut and the post nasal drip that occurred (I had both upper and

lower) but

> now it's mostly gone. I cannot wait until the 3 weeks are over!

Anyhow,

> thanks for all of the support and good luck to all of you who are

still in

> the process. it's a journey that is worth the wait.

>

>

>

> Cheers!

>

>

>

> Nikki

>

>

>

>

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Guest guest

Hi Nikki,

Glad things are going so well for you post op. It sounds like you

are through the worst of it. Congratulations!! Please keep us

posted as your progress.

Hugs,

Fran

> Hi everyone! Just wanted to say hello, my name is Nikki and I am

post op 5

> days right now, and I have been really informed through all of the

emails. I

> just saw my OS today and he told me he would have me unwired in 3

weeks, I'm

> recovering faster than usual. so that is good news, because the

first couple

> days were torturous! It's not really the pain, but mostly the

being wired

> shut and the post nasal drip that occurred (I had both upper and

lower) but

> now it's mostly gone. I cannot wait until the 3 weeks are over!

Anyhow,

> thanks for all of the support and good luck to all of you who are

still in

> the process. it's a journey that is worth the wait.

>

>

>

> Cheers!

>

>

>

> Nikki

>

>

>

>

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