jumping through hoops

[Guest guest]

, depending on what kind of insurance he has, I'm wondering why the pulmonologist has the authority anyway. Usually any specialist can order tests & procedures; sometimes it has to be the PCP (primary care provider), but that's not usually a pulmonologist, even if they are following him for sarc. This is a little confusing to me. Where do y'all live?

Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22

To: Neurosarcoidosis From: arney@...Date: Mon, 13 Sep 2010 15:57:58 -0400Subject: Re: Roll Call, please.............

Hi ,

Thank you so much for being there for your fiance. It makes all the

difference in the world having someone close who believes in you and

wants to help. Some of those with Sarc do not have that. I am so

lucky that I have a wonderful husband and 5 grown children who are

my support.

As for your fiance (what is his name? Don't want to call him fiance all

the time) :-). I would advise him to get a different Doctor. If his Doctor is not

willing to check things out, then he needs to find one that is willing.

Please keep us informed and thank you for answering the roll call. Sending

best wishes to both.

Hugs,DarleneNS Co-Owner/Moderator

Re: Roll Call, please.............

I () am on here not because I hae sarc but because my fiance does and I update him and hearing from other helps me comfort him to let him know that he is not alone and I research about situations, etc. Recently he went to a Rheumatologist and she found some lumps on his head he contacted the pulmologist that he sees to get a CAT scan he he denied it. I was like what in the world. So now the Rhematologist thinks that he may have Neuroscarcoidosis he is pulmologist will not let her check. Not sure what to do. Any advice?

Hi everyone,

Hey, it is nearly Fall so let's start a new season (a little early) and

have a really good Roll Call. We have 600+ members and the list

is sooooo quiet! This worries all of your Owners and Moderators --

as we really do worry about each and every one of you. We need to

know if you are ok; or very ill; latest in your life; in remission and too

busy having fun to post; etc.

Please just take a moment and post how you are. You don't have

to write a book -- unless you want too! :-)

I will start ---- About 6 weeks ago, my Doctor decided he wanted to

take me off some of my meds........so he has cut my Imuran in half again

and plans to take me off it completely the middle of October. Since I

started this, my severe headaches have returned; I ache all over -- muscles,

joints, all over; I am nauseated all the time; want to sleep ALL the time;

have absolutely NO energy at all; have off and on diahreah, and etc. You

get the message. When I go off Imuran, I will have no immuneoppresents

(sp) at all! This worries me. I tried to argue with the Doctor, but he says

he is worried about this drug damaging my liver.....

Any comments will be appreciated. Thanks.

Hugs,DarleneNS Co-Owner/Moderator

-- Zimmermanandrea.d.zimmerman@...