Guest guest Posted December 15, 2002 Report Share Posted December 15, 2002 I am forwarding on some photos of Marie Pia, Coralie and Ben, our family members from France. They are wonderful. Thank you for sharing. hi claudia, I send you some pictures.BENJAMIN AND ON BOAT : "disposition " coralie Coralie's best friend ben me Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2005 Report Share Posted July 30, 2005 , you look great! You can really see the improvement in your profile. Personally I think you were beautiful already before but now you look simply fabulous! Hope you're enjoying the results of the surgery:-) Sara > hey all...i got before/after photos up...they're under the album > -July 22 upper and lower...not really great quality or anything > but yeah...have a look! --ashley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2005 Report Share Posted July 30, 2005 hey, Thanks so much! If i hadn't had migraines and problems biting food I would probably have not had the surgery but i got annoyed eating pizza and stuff and not being able to bite it properly into pieces and the migraines were horrible. Once again thank you very much! -- > > hey all...i got before/after photos up...they're under the album > > -July 22 upper and lower...not really great quality or anything > > but yeah...have a look! --ashley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2005 Report Share Posted July 30, 2005 Did you have both upper & lower jaw done? I have similiar issues, and my surgeon is going to do both upper and lower jaw surgery on me. > > > hey all...i got before/after photos up...they're under the album > > > -July 22 upper and lower...not really great quality or anything > > > but yeah...have a look! --ashley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2005 Report Share Posted July 31, 2005 yeah i had both upper and lower...if they had moved the lower back the entire distance then it would've been back too far...so they brought my upper out just a litle bit and kinda met 3/4 of the way i think... > > > > hey all...i got before/after photos up...they're under the album > > > > -July 22 upper and lower...not really great quality or > anything > > > > but yeah...have a look! --ashley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 Hello - Welcome to the group! Your pictures look wonderful!! Did you have a BSSO (mandibular set-back) for an underbite & a LeFort Osteotomy (Maxillary Advancement) for Maxillary Hypoplasia (maxilla didn't grow long enough)? I will be having both of those procedures next summer - I have an underbite and a maxilla that didn't grow long enough. What was it like waking up after surgery without your underbite? I've had mine for nearly forty years, and don't remember NOT having the underbite. Sounds like you are healing and recovering really fast - I hope it goes smoothly for me too. ~~ Diane > hey all...i got before/after photos up...they're under the album > -July 22 upper and lower...not really great quality or anything > but yeah...have a look! --ashley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2005 Report Share Posted August 1, 2005 hmmmm...i've already written a reply to this message once and don't remember putting it to send just back to diane...and teh post never came up...so if i answer this twice its the computers fault not mine...haha...anyway... thanks diane! I assume that what you called it is what I had...I really don't know the proper terms for it...upper forward and lower back....i went to my orthodonist today for some post op xrays and he was really pleased...except i have this hard place by my nose and he thinks i may be feeling one of the screws...so hopefully it isn't coming loose or something b/c that would be bad...i didn't really notice the underbite thing right when i woke up...i have a bite plate between my teeth and i'm completely wired so my teeth aren't actually touching yet...i guess i really noticed it a few days later when i took a shower and was washing my face for the first time and actually felt that my chin was in a different place...i still can't get over it...i reach up subconciously sometimes and just feel my jaw line and feel how my chin is in a different proximity to my face than it once was...it's really kinda weird...but i'm beginning to notice how it has softened my features alot...now that my chin isn't so prominent...i just can't wait to get the wires off and actually put my teeth together and bite into something...hopefully i can bite together in 2 more weeks...i'll let you know if it feels any different then! --ashley > > hey all...i got before/after photos up...they're under the album > > -July 22 upper and lower...not really great quality or anything > > but yeah...have a look! --ashley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Hi belgoboy, I downloaded mine as follows; from main menu, go to the photos link on the left hand side of your screen. click on create a new album enter your name ( or name you want to give your album) down the bottom of the screen, clik on the create album on the bottom of screen. Upload from your computer or disk. Good luck thats how I got mine in the computer. let me know if this works. :-) > > Hate to ask this but I've created my album and for some reason I'm not > able to put any photos in...the ones I did upload appeared all the way > at the end. Any quick solution? Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Thanks . I tried that but it doesn't let me upload after. I create it with my name and get the message " This album is empty " with no way of uploading...or deleting the album (though I was able to do that previously). > > > > Hate to ask this but I've created my album and for some reason I'm > not > > able to put any photos in...the ones I did upload appeared all the > way > > at the end. Any quick solution? Thanks. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Inside your album (when you click on your name in the Albums list), click on Add Photos (indicated in the following image) : http://www.pbase.com/carbone/image/51104900 Ray Moderator > > Thanks . I tried that but it doesn't let me upload after. I > create it with my name and get the message " This album is empty " > with no way of uploading...or deleting the album (though I was able > to do that previously). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Thank you.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: photosTo: breathe-support Date: Monday, January 11, 2010, 6:56 AM saw the photos of Beverley joy's grand daughters and Boone nice looking families Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 BJ, Enjoyed the pictures of your family.........great looking group! Patti Indianapolis IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 Thank you Patti.Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: Re: photosTo: Breathe-Support Date: Monday, January 11, 2010, 9:38 AM BJ, Enjoyed the pictures of your family...... ...great looking group! Patti Indianapolis IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 They are gorgeous- don't know if I replied before- been out of touch traveling to Iowa from California. Brr- cold is all I can say.Kathy ILD/Hypersensitivity pneumonitis 3/08 Type 2 diabetes forever agoFrom: Patti <napa73 (AT) comcast (DOT) net>Subject: Re: photosTo: Breathe-Support@ yahoogroups. comDate: Monday, January 11, 2010, 9:38 AM BJ, Enjoyed the pictures of your family...... ...great looking group! Patti Indianapolis IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 Thank you Kathy. Beverley Joy,71,PF, Chronic HP, birds and mold 1-09,Sjogren's,Fibromyalgia IdahoFrom: Patti <napa73 (AT) comcast (DOT) net>Subject: Re: photosTo: Breathe-Support@ yahoogroups. comDate: Monday, January 11, 2010, 9:38 AM BJ, Enjoyed the pictures of your family...... ...great looking group! Patti Indianapolis IPF 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2010 Report Share Posted January 15, 2010 http://groups.yahoo.com/group/Breathe-Support/photos/album/0/list > > Hi Group, > I have not been able to see to link for the photo page. I see the link for the recent photos, but there used to be a link that we could see all the photo albums that folks made. Am I missing something? > Help! > AB > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2010 Report Share Posted December 5, 2010 La, I put your photos in an album named Latanya & family. Those are some handsome boys! How old are they? I don't know why group members are unable to add photos lately. I haven't been able to figure out a change in settings or anything like that. Darlene will probably be able to figure it out when she overcomes her computer problems. If anyone else wants photos posted, you can send them like La did, or send them directly to my email, mamadogrose@.... And we'll get this bug worked out as soon as possible. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: ladyt19119@...Date: Sun, 5 Dec 2010 10:16:06 -0800Subject: Re: Stages of grief [2 Attachments] [Attachment(s) from La Myers-Boswell included below] I too found this letter very reassuring and comforting. I was experiencing grief and severe depression and I just thought that I was over reacting to the entire situation. I sometimes cannot grasp the fact that I had brain surgery and I have a shunt in my head. I had never never been sick like this before. Always a healthy spry energetic person. Now I feel like crap, vision is compromised, in pain, and fat from the prednisone. Your letter was very important to me. I find myself reading it several times. You all understand me and know how I feel. Thanks Attached is a pic of me. Both pics are after the surgery. I had hair down my back but had to cut it all off and where a scarf for a while. To: neurosarcoidosis Sent: Sat, December 4, 2010 10:57:10 PMSubject: Stages of grief , that is a beautiful letter. I especially like the part about people being patient & understanding that there will be cycles of grief. Thank you for sharing such a personal story. I know that I have the sign-off phrase somewhere; I'll have to find it. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: rkelty99@...Date: Sat, 4 Dec 2010 04:32:46 -0800Subject: Re: comic strip I used to have the screen name "patience" because I was so patient and optimistic about everything. I managed to keep that up for six year until I had that megascary bad time of sepsis while on cytoxnan which I was taking to keep me from dying in a particularly horrible attack of neurosarcoidosis. I had to learn how to try to hold onto my dignity while I was an enormous blob sitting on the portable pot waiting for some passing nurse or orderly (usually men) to take me to my bed since I couldn't manage by myself. I couldn't communicate because the sepsis had turned my brain to mush from the infection. I had one arm in a cast because they had to reconstruct my left elbow(with a splint) where the staph originated in a tiny scratch on my elbow. I couldn't even drag myself into bed or push my own wheelchair.I've been pretty bitter about the whole disease after that. I lost most of my friends because they'd take a quick look at my bloated moon faced feeble self and run for the winds. After that, I developed my bad habit of trying to sleep the pain away.Now, I am trying hard to regain my old sense of hope and optimism. I am looking so much better -- still fat (170) but a far cry from the mid 200s. I am more articulate, even though I have trouble with word retrieval. I am still not driving very fat, but on my good days I am trying to get out to do something. If it's not a lunch with friends, then it is a labored walk though the park. I may not always walk so well, but I am very, very happy to be out of bed and out of the wheel chair.What you need is people to be patient with you. You need to go through the stages of grief just as if someone had died, because someone has: the old you. And what makes it more difficult is you will get her back from time to time, only to have her die and die all over again. But, believe me, those stages get easier and easier to cope with, especially if you hang onto the memories of what it was like to better and hold onto the idea that you will be better again, with patience and prayer (sorry if that religious reference was offensive -- just telling you my experiences.)Yes, there will people who won't understand or who will get sick of hearing about your illness and how you feel. You will even lose them for awhile. Be patient with them, too. They also need a period of adjustment, and those who don't adjust and come back to being close to you aren't worth your patience anyway.Hope some of this was useful to you. What didn't help you, please discard. I, too, need to vent from time to time, and since I have stopped sharing how I feel with all but a very select few, it really helps to have a place where you know you won't be judges for letting off a little steam.We used to have a saying from a small group of us who called themselves the "Bootstraps Fairies." We were just a group a folks who tried, always to be positive and help others be cheered up.I can't remember our sign off, which I had some hand in making up. If someone else remembers it (Rose!) would you share it here? I'd like to add it too my sign off again.Take care, To: Neurosarcoidosis Sent: Sat, December 4, 2010 12:05:53 AMSubject: Re: comic strip I agree. I am usually positive as well. But I have gotten so sick of hearing the same things as well. They are not going through what we go through. I get tired of everyone trying to down play my disease and my situation. To: neurosarcoidosis Sent: Fri, December 3, 2010 10:20:58 PMSubject: RE: comic strip , I LOVED this comic! I'm a positive person by nature, but there are times that you want to cram somebody's head in the toilet when they start encouraging you to see the bright side, the silver lining, the rainbow after the storm, blah, blah, blah! And I'm often the one doing it myself! Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 > To: Neurosarcoidosis > Date: Fri, 3 Dec 2010 17:19:08 +1100> Subject: XKCD> > This is a brilliant comic : http://xkcd.com/828/ I just thought you all would relate to it too ... > > The research shows that, while 'positive thinking' can help you be pro-active with managing your disease and seeking treatment, and can help you cope emotionally a bit better, it doesn't actually affect your HEALTH at all (ie positive thinking doesn't help cure anything, or improve symptoms).> > Cheers,> > > > (Apologies if this gets posted twice, but it didn't show up the first time I tried ...) > > > .......................................................................................................> http://sutherland-studios.com.au/> > Dummies author :> http://tinyurl.com/CodesandCryptograms> http://tinyurl.com/WordSearches> > .......................................................................................................> > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
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