RE: FW: Help Needed: Faces of Sarcoidosis Photographs

[Guest guest]

Rose I just emailed it. Thanks. Hope all is well

To: neurosarcoidosis Sent: Mon, January 17, 2011 8:40:33 PMSubject: FW: Help Needed: Faces of Sarcoidosis Photographs

Sorry about the rush on this; anyone interested in participating needs to email the photo & info by this Wednesday (two days from now). Please read the following message from FSR (Foundation for Sarcoidosis Research).

Ramblin' RoseModerator COLTS STILL ROCK!

From: robbiedarden57@...Subject: Fwd: Help Needed: Faces of Sarcoidosis PhotographsDate: Mon, 17 Jan 2011 09:48:02 -0500To: bgabrel@...; blammert@...; e.v.e.5121@...; mamadogrose@...

Sent from my iPhone

Begin forwarded message:

Date: January 16, 2011 8:28:16 PM ESTTo: "RobbieD" Subject: Help Needed: Faces of Sarcoidosis Photographs

Dear RobbieD,Each February FSR plans an awareness campaign that launches at a gala benefit in Chicago. An exciting new addition this year is a professional education partnership with the American Thoracic Society. "Sarcoidosis Week at the ATS" officially launches Monday, February 7 and we will be posting details soon about activities for patients and their families during the week -- including a webinar with a sarcoidosis expert.Before the week launches, we need your help putting together an awareness tool for the campaign that can be used online and at our events.We often hear from patients who were hurt by comments along the lines of "you don't look sick." To address the serious consequences of sarcoidosis, we are asking all of you to send us photos of you (or a loved one who has passed away)

and your permission to use the photo in a multi-media presentation that we are putting together.To participate, send an e-mail to info@... with:- Your name- Your photo (digital, preferably a close up of you)- The year you were diagnosed- The worst symptoms you have experienced since diagnosisWe need at least 50 photographs by Wednesday, January 19th to complete the project and hope we can count on your support. Thank you for all you do every day to raise awareness of this disease.Sincerely,Debbie DurrerExecutive DirectorFoundation for

Sarcoidosis Research

Your Inspire message preferences · Send these to my Inspire inbox · Unsubscribe · Help

[Guest guest]

I got one from them the other day & am considering sending one of Hope all are well.MattSubject: RE: FW: Help Needed: Faces of Sarcoidosis PhotographsTo: neurosarcoidosis Date: Monday, January 17, 2011, 9:09 PM

That makes two of us, La!

Ramblin' RoseModerator COLTS STILL ROCK!

To: Neurosarcoidosis From: ladyt19119@...Date: Mon, 17 Jan 2011 17:55:48 -0800Subject: Re: FW: Help Needed: Faces of Sarcoidosis Photographs

Rose I just emailed it. Thanks. Hope all is well

To: neurosarcoidosis Sent: Mon, January 17, 2011 8:40:33 PMSubject: FW: Help Needed: Faces of Sarcoidosis Photographs

Sorry about the rush on this; anyone interested in participating needs to email the photo & info by this Wednesday (two days from now). Please read the following message from FSR (Foundation for Sarcoidosis Research).

Ramblin' RoseModerator COLTS STILL ROCK!

From: robbiedarden57@...Subject: Fwd: Help Needed: Faces of Sarcoidosis PhotographsDate: Mon, 17 Jan 2011 09:48:02 -0500To: bgabrel@...; blammert@...; e.v.e.5121@...; mamadogrose@...

Sent from my iPhone

Begin forwarded message:

Date: January 16, 2011 8:28:16 PM ESTTo: "RobbieD" Subject: Help Needed: Faces of Sarcoidosis Photographs

Dear RobbieD,Each February FSR plans an awareness campaign that launches at a gala benefit in Chicago. An exciting new addition this year is a professional education partnership with the American Thoracic Society. "Sarcoidosis Week at the ATS" officially launches Monday, February 7 and we will be posting details soon about activities for patients and their families during the week -- including a webinar with a sarcoidosis expert.Before the week launches, we need your help putting together an awareness tool for the campaign that can be used online and at our events.We often hear from patients who were hurt by comments along the lines of "you don't look sick." To address the serious consequences of sarcoidosis, we are asking all of you to send us photos of you (or a loved one who has

passed away) and your permission to use the photo in a multi-media presentation that we are putting together.To participate, send an e-mail to info@... with:- Your name- Your photo (digital, preferably a close up of you)- The year you were diagnosed- The worst symptoms you have experienced since diagnosisWe need at least 50 photographs by Wednesday, January 19th to complete the project and hope we can count on your support. Thank you for all you do every day to raise awareness of this disease.Sincerely,Debbie

DurrerExecutive DirectorFoundation for Sarcoidosis Research

Your Inspire message preferences · Send these to my Inspire inbox · Unsubscribe · Help

[Guest guest]

Ok I sent 's picture to them. I can only hope that someday they find better ways of stopping this awful disease. MattSubject: RE: FW: Help Needed: Faces of Sarcoidosis PhotographsTo: neurosarcoidosis Date: Monday, January 17, 2011, 9:09 PM

That makes two of us, La!

Ramblin' RoseModerator COLTS STILL ROCK!

To: Neurosarcoidosis From: ladyt19119@...Date: Mon, 17 Jan 2011 17:55:48 -0800Subject: Re: FW: Help Needed: Faces of Sarcoidosis Photographs

Rose I just emailed it. Thanks. Hope all is well

To: neurosarcoidosis Sent: Mon, January 17, 2011 8:40:33 PMSubject: FW: Help Needed: Faces of Sarcoidosis Photographs

Sorry about the rush on this; anyone interested in participating needs to email the photo & info by this Wednesday (two days from now). Please read the following message from FSR (Foundation for Sarcoidosis Research).

Ramblin' RoseModerator COLTS STILL ROCK!

From: robbiedarden57@...Subject: Fwd: Help Needed: Faces of Sarcoidosis PhotographsDate: Mon, 17 Jan 2011 09:48:02 -0500To: bgabrel@...; blammert@...; e.v.e.5121@...; mamadogrose@...

Sent from my iPhone

Begin forwarded message:

Date: January 16, 2011 8:28:16 PM ESTTo: "RobbieD" Subject: Help Needed: Faces of Sarcoidosis Photographs

Dear RobbieD,Each February FSR plans an awareness campaign that launches at a gala benefit in Chicago. An exciting new addition this year is a professional education partnership with the American Thoracic Society. "Sarcoidosis Week at the ATS" officially launches Monday, February 7 and we will be posting details soon about activities for patients and their families during the week -- including a webinar with a sarcoidosis expert.Before the week launches, we need your help putting together an awareness tool for the campaign that can be used online and at our events.We often hear from patients who were hurt by comments along the lines of "you don't look sick." To address the serious consequences of sarcoidosis, we are asking all of you to send us photos of you (or a loved one who has

passed away) and your permission to use the photo in a multi-media presentation that we are putting together.To participate, send an e-mail to info@... with:- Your name- Your photo (digital, preferably a close up of you)- The year you were diagnosed- The worst symptoms you have experienced since diagnosisWe need at least 50 photographs by Wednesday, January 19th to complete the project and hope we can count on your support. Thank you for all you do every day to raise awareness of this disease.Sincerely,Debbie

DurrerExecutive DirectorFoundation for Sarcoidosis Research

Your Inspire message preferences · Send these to my Inspire inbox · Unsubscribe · Help