Guest guest Posted January 8, 2011 Report Share Posted January 8, 2011 Marla, I hope the higher Remicade dose will kick in soon & start helping your symptoms. Connie, I don't know if this will help, but I use a camp chair at the computer, with my feet on a folding camp stool. The keyboard sits on my lap & I keep the mouse on the computer desk. So I'm sitting parallel to the desk. When I have a lot of computer work to do, I use a kidney-shaped board on my lap. There is velcro on the board & the bottom of the keyboard to hold the keyboard in place & I have a strip along the bottom to keep the mouse from sliding off. It's very comfortable & my family members have all gotten used to it. You might need a thin pillow on your lap to get the right angle for typing. Ramblin' RoseModerator A merry heart is good medicine. Proverbs 17:22 To: Neurosarcoidosis From: mebramer@...Date: Fri, 7 Jan 2011 09:21:06 -0700Subject: Re: Notice: Christian message Connie, As usual I'm behind, my son is here a lot as on Winter break from college, and my daughter just went back on Wed. so my free time was greatly and happily taken up. Hang in there, I know it's hard sometimes, I was doing really good on my Remicade then one dose just didn't seem to work, like it use to, so my doctor increased the dosage, have only had one at the higher dose, no change, He said it may take a couple dosages at this rate to see a difference, well at every 5 weeks, that seems like forever before I will feel better, but one day at a time. I'm with you Connie, hang in there. MarlaJust one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:) The lungs are holding, but "something" is destroying my nerves, including the autonomic one that is responding to the pacer. My legs are getting to be a nightmare, the IVIG is helping though not as good as it initially was. Oh well, I'm still hanging in so that's good, I have a really good family, and I can still laugh. I don't know they are going to do with my crazy body, but I must admit it is getting very hard to deal with. Bur hey I know you all deal with a ton. Sorry I haven't written much, but I don't really have a regular desk chair at my home computer and I have trouble sitting very long. Love you guys, connie Quote Link to comment Share on other sites More sharing options...
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