Re: have not been on in awhile.

[Guest guest]

Barb, Good to hear from you, hope the Remicade works well for you, it made a huge difference in my life, So hang in there with it.  I'll keep you in my prayers. Marla

Just one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)  

 

hello all,    i hope you are doing well! an update on me i am getting ivig infusions every 2 weeks and loading doses of remicade . not at the same time of course. i rotate weeks so for now i am getting infusions every week! it seems lately i am living dr.appt to dr. appt! i am very excited about starting water therapy on monday! i was with this dr. for about an hour and he showed my daughter how to help me when my muscles contract , to touch a pressure point and the signal overrides the brain and the muscle relaxes!!! this manuever would have saved me alot of embarassment and pain long ago!!!! they have an underwater treadmill which i am looking foward to as well as gravity is not my friend right now! love and blessings to you all! god bless!

[Guest guest]

thank you marla! you as well! remicade worked for me once! with the combination of the ivig and remicade i am starting to feel stronger! i even managed a ride around my yard on the snowmobile! woo hoo yay me! lol water therapy starts today , will let you know how it goes. take care and god bless! From: Marla Bramer

To: Neurosarcoidosis Sent: Sun, January 9, 2011 9:17:11 PMSubject: Re: have not been on in awhile.

Barb, Good to hear from you, hope the Remicade works well for you, it made a huge difference in my life, So hang in there with it. I'll keep you in my prayers. Marla

Just one day at a time, That's all God ask of us. for there never really is a tomorrow, as that too is just today:)

hello all, i hope you are doing well! an update on me i am getting ivig infusions every 2 weeks and loading doses of remicade . not at the same time of course. i rotate weeks so for now i am getting infusions every week! it seems lately i am living dr.appt to dr. appt! i am very excited about starting water therapy on monday! i was with this dr. for about an hour and he showed my daughter how to help me when my muscles contract , to touch a pressure point and the signal overrides the brain and the muscle relaxes!!! this manuever would have saved me alot of embarassment and pain long ago!!!! they have an underwater treadmill which i am looking foward to as well as gravity is not my friend right now! love and blessings to you all! god bless!