Deadline Wed. for Faces of Sarcoidosis Photographs

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Don't forget to email your photos & info if you want to participate in this sarc awareness project. For those who didn't see the original post, please read the message below. At least 3 of our members have sent photos. The deadline is Wed. Jan. 19.

Ramblin' RoseModerator COLTS STILL ROCK!

From: robbiedarden57@...Subject: Fwd: Help Needed: Faces of Sarcoidosis PhotographsDate: Mon, 17 Jan 2011 09:48:02 -0500To: bgabrel@...; blammert@...; e.v.e.5121@...; mamadogrose@...

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Date: January 16, 2011 8:28:16 PM ESTTo: "RobbieD" Subject: Help Needed: Faces of Sarcoidosis Photographs

Dear RobbieD,Each February FSR plans an awareness campaign that launches at a gala benefit in Chicago. An exciting new addition this year is a professional education partnership with the American Thoracic Society. "Sarcoidosis Week at the ATS" officially launches Monday, February 7 and we will be posting details soon about activities for patients and their families during the week -- including a webinar with a sarcoidosis expert.Before the week launches, we need your help putting together an awareness tool for the campaign that can be used online and at our events.We often hear from patients who were hurt by comments along the lines of "you don't look sick." To address the serious consequences of sarcoidosis, we are asking all of you to send us photos of you (or a loved one who has passed away) and your permission to use the photo in a multi-media presentation that we are putting together.To participate, send an e-mail to info@... with:- Your name- Your photo (digital, preferably a close up of you)- The year you were diagnosed- The worst symptoms you have experienced since diagnosisWe need at least 50 photographs by Wednesday, January 19th to complete the project and hope we can count on your support. Thank you for all you do every day to raise awareness of this disease.Sincerely,Debbie DurrerExecutive DirectorFoundation for Sarcoidosis Research

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