Re: Tori

[Guest guest]

,

The thirst was throwing me off, but now that you mentioned the other

signs that Tori has, is it possible that she has a urinary tract

infection? Max used to have the same signs and the urine tests always

came back normal in the peds office, but our wonderful pediatrician

had us start up with a urologist at one point. He never said that Max

had a UTI, but he did treat him with peridium, a medication that numbs

the urinary tract so that it does not hurt, and told us to give him

lots and lots of liquids. Then Max also started having accidents and

bedwetting. He had to start on another med to control that - it was a

nasal spray. The doctor said that Max had all the signs of a UTI, but

called it something else. He just treated the symptoms.

I HATE it when a doctor will not listen to the parent. Moms, and some

dads, know so much because they live with the child. They are usually

the first ones to know if something is not right.

Jodi Z

[Guest guest]

Yes, call a pediatric urologist. You're so lucky you don't need

referrals. Our old plan was that way. I hate having to get a

referral for everything. It wastes time, paper and, in the end, money.

Jodi Z

[Guest guest]

,

I am so sorry for your crazy day. How is Tori feeling

today? Did anything ever come about with the UTI? I

think I may have missed a posting or two about that.

I know the feeling that before knowing anything that

would be more calm about any problems with the kids

but as soon as you become educated about something and

aware of what to watch for all of sudden you feel like

you're not sure of what exactly to do.

Where is the house that you love? Is it further up in

NY or closer to NJ? I will keep my fingers crossed

for you.

I hope Toris is feeling better.

B

5 1/2 and Kelli 3

--- jamtorrss wrote:

> We had our first real experience with the keytones

> today. Tori came

> home from summer school not feeling well her teacher

> said she did

> not eat lunch and had an upset tummy so I did the

> keto sticks and

> she was moderate to high I got nervous was not sure

> what to do so I

> called stephanie (thank you) Tori ate but she was

> still spilling

> keytones DrH gave me a tube of glutose 15 I gave her

> a teaspoon of

> that and she ate dinner they went down but she also

> had a 101 temp

> so we will see how the night goes. I have been

> randomly checking

> since July 14 after we saw Dr H in NY all I had

> found was small and

> traces. After seeing her today the way she was how

> many times over

> the past 5 years it got looked over as a typical

> child element. I

> can kick myself in the butt for not paying more

> attention and

> finding more about RSS when she was diagnosed in

> 2001.Life seem's to

> be crazy with the not knowing but I paniced today

> and new what was

> going on.Don't know which one is easier.Tori is not

> gaining weight

> she goes to the gastro DR on monday hopefully we can

> put some weight

> on her so she can do GHT soon.Which should have been

> done years ago.

> And thats not the only thing thats bothering me I

> want to buy a

> house that I fell in love with and my hubby has to

> change jobs cause

> his is moving 2 hrs away and they won't up his pay

> so it is not

> worth the drive to go so know we have to start over

> again with Job

> history and the house will probley be gone by then

> but we are still

> going to try for it and see what happenes. It is a

> beautiful house

> an 1888 victorian. Well enough boohooing thanks for

> listing.

> mom to Tori RSS 5 and gina nonrss 2

>

>

>

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

Tori is feeling better today don't really know what happened yesterday. We

looked at the house very disappointing nothing like the pictures maybe the next

one I am going to wait and see what happens with 's job before look at

houses again. Thank you.

Re: Tori

,

I am so sorry for your crazy day. How is Tori feeling

today? Did anything ever come about with the UTI? I

think I may have missed a posting or two about that.

I know the feeling that before knowing anything that

would be more calm about any problems with the kids

but as soon as you become educated about something and

aware of what to watch for all of sudden you feel like

you're not sure of what exactly to do.

Where is the house that you love? Is it further up in

NY or closer to NJ? I will keep my fingers crossed

for you.

I hope Toris is feeling better.

B

5 1/2 and Kelli 3

--- jamtorrss wrote:

> We had our first real experience with the keytones

> today. Tori came

> home from summer school not feeling well her teacher

> said she did

> not eat lunch and had an upset tummy so I did the

> keto sticks and

> she was moderate to high I got nervous was not sure

> what to do so I

> called stephanie (thank you) Tori ate but she was

> still spilling

> keytones DrH gave me a tube of glutose 15 I gave her

> a teaspoon of

> that and she ate dinner they went down but she also

> had a 101 temp

> so we will see how the night goes. I have been

> randomly checking

> since July 14 after we saw Dr H in NY all I had

> found was small and

> traces. After seeing her today the way she was how

> many times over

> the past 5 years it got looked over as a typical

> child element. I

> can kick myself in the butt for not paying more

> attention and

> finding more about RSS when she was diagnosed in

> 2001.Life seem's to

> be crazy with the not knowing but I paniced today

> and new what was

> going on.Don't know which one is easier.Tori is not

> gaining weight

> she goes to the gastro DR on monday hopefully we can

> put some weight

> on her so she can do GHT soon.Which should have been

> done years ago.

> And thats not the only thing thats bothering me I

> want to buy a

> house that I fell in love with and my hubby has to

> change jobs cause

> his is moving 2 hrs away and they won't up his pay

> so it is not

> worth the drive to go so know we have to start over

> again with Job

> history and the house will probley be gone by then

> but we are still

> going to try for it and see what happenes. It is a

> beautiful house

> an 1888 victorian. Well enough boohooing thanks for

> listing.

> mom to Tori RSS 5 and gina nonrss 2

>

>

>

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

,

When you see Dr. H. again, you should tell her what that doctor oncall

said. She was totally WRONG!!! If our kids are spilling ketones,

won't eat and can't keep food down, they need to be admitted. Just a

couple of hours of IV fluids won't do it.

Jodi Z

I'm glad that Tori is better today. She probably did not have that

virus for only 5 or 6 hours. She was probably not feeling well

earlier in the day and did not know that she was sick. At least she

is eating now and the ketones are gone. Just remember what to do next

time. And get MEAN with the ER docs if you have to. Well, you don't

have to be mean, you just have to be ASSERTIVE. It's taken years for

us to learn how to do it. I hate it.

[Guest guest]

I hope Tori is still starting to feel better this afternoon.

B

5 1/2 and Kelli 3

jamtorrss wrote:

I had to take Tori to the ER today. She went to summer school this

morning and was fine her teacher called around 11 am and said Tori had

been crying and fussy all morning and said that she did not feel good

so I had go get her and bring her to me I was in town alreay. She

had vomited 5x with 2 hrs and when I got her she did 2 more times, she

was real tired and weak I called her ped and she said to take her to

the ER so I did she called and said to out her on IV fluids we sat

there for 2 hrs before they did and they drew blood pricked her finger

cked her temp. I called to DR H office they had already left for the

day so I paged the on call DR Macrdo she called me back then spoke to

the ER Dr. they said because her bllod work and elecrolites were good

that she could go home she had not eat anything all day and while in

the hospital she was not responding. I got scared I thought DR H said

if there sick they need to be admitted until eating again. Well we are

home she is still passing keytones and running a fever she did eat

some soup But they told me that it was just a virus. I do not agree

with them because it hit her so fast and she seems to be fine now.

[Guest guest]

Well her ped said that it may not be realated but we will see. So I got some bad

news over the weekend my 13 year old cousin died saturday morning with a brain

tumor that begin to hemorage she went to have a catscan done on thursday and

found the tumor then friday it busted she passed away very quickly she did not

know anything was wrong. from what Ive heard she had started to get headaches

and loosing weight. That is all I know now. she lives in Alabama. Her 13th

birthday was also on saturday, very heard loos in our family.

Re: Tori

Sounds like you find the problem of when Tori was having all her " accidents. "

I hope Tori is feeling better.

B

5 1/2 and Kelli 3

jamtorrss wrote:

Tori seen the nutristionst on thursday she said we were doing with her

and to just add dry milk and heavy cream to her foods, and yesterday

she had blood work done and did great and also had an ultersound done,

they found a cyst on her left kidney that is about2 inches we have to

follow up with a urologist next week.But nothing on why shes not

gaining weight I can not wait to go back to see Dr H our apt is not

untill Nov 1. Hope everyone is doing well. Chrissy have you heard when

you can go home?

mom to tori 5 rss and gina 3 nonrss

[Guest guest]

yes that does work, you have to get at their eye level. sometimes i

will pick christopher up in fromt of me and talk to him!!

jodie c

[Guest guest]

I agree - I've noticed that even a gentle touch to their shoulder or

cheek does help to get them to focus their attention on you - if only

I could remember that when I'm not happy with my son <grin>.

- H

> yes that does work, you have to get at their eye level. sometimes i

> will pick christopher up in fromt of me and talk to him!!

>

> jodie c