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I just read about people being concerned about the possibility of required

vaccinations due to terrorism and am wondering about another worry. My

concern is that what if something happens to the primary caregiver (I call it

the keeper of the kitchen) of a child on this diet. It doesn't have to be as

a result of terrorism, it could be an everyday thing, that may even require

an extended hospital stay. Would our substitutes, even if they support the

diet, know where to shop (some of us mail order and have 3 different stores

we visit for different products), what even in the house is ok, when to give

the supplements and how, how to access this site for questions, where the

recipes are, how to make the playdough and fake pizza, where is the binder

with the list of acceptable foods is, how to mix the darifree (ok-those

directions are on the box, I'm going a little overboard) Anyway, my point is,

I've realized how much I keep in my head, and this whole diet for most hinges

on strict compliance so after obsessing about it I think I'm going to type up

directions and leave them with loved ones. Maybe I'm being morbid, but I

think it's important. Food for thought-Helene, who is obsessing way past her

bedtime.

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-Hi Helene...I've also had similar thoughts lately and it inspired me

to keep a notebook. I have everything outlined in the notebook in

regards to diet and supplements and also have a recipe box with GFCF

recipes and a shopping list complete with brand names and store info

(since a lot of my ordering is on the internet). I know that if

something happened to me, my husband would be clueless without all of

this.

-- In GFCFKids@y..., welsingcaufield@a... wrote:

> I just read about people being concerned about the possibility of

required

> vaccinations due to terrorism and am wondering about another

worry. My

> concern is that what if something happens to the primary caregiver

(I call it

> the keeper of the kitchen) of a child on this diet. It doesn't

have to be as

> a result of terrorism, it could be an everyday thing, that may even

require

> an extended hospital stay. Would our substitutes, even if they

support the

> diet, know where to shop (some of us mail order and have 3

different stores

> we visit for different products), what even in the house is ok,

when to give

> the supplements and how, how to access this site for questions,

where the

> recipes are, how to make the playdough and fake pizza, where is the

binder

> with the list of acceptable foods is, how to mix the darifree (ok-

those

> directions are on the box, I'm going a little overboard) Anyway, my

point is,

> I've realized how much I keep in my head, and this whole diet for

most hinges

> on strict compliance so after obsessing about it I think I'm going

to type up

> directions and leave them with loved ones. Maybe I'm being morbid,

but I

> think it's important. Food for thought-Helene, who is obsessing

way past her

> bedtime.

>

>

>

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This am so glad this conversation has come up. It is so important to

let others know what to do in case. I used to work at a bank. It

would kill me when a woman would come in with a look of confusion and

greif on her face. She would explain to me that her husband just

died and she did not even know if they had any money or what banks

they had accounts at. I can't tell you how many times I have had to

teach someone how to write a check for the first time. I know all of

you and your spouses know how to write a check but to go through

grief while either trying to figure out the diet or dealing with a

child that got forbidden food is just too much. Six months ago I had

a baby. My previous 3 pregnancies were quick and uneventful (2-6

hours labor). I was alway back on my feet the next day. This last

time I had a C-section. I was not prepared for an extended stay in

the hospital. My son was not on the diet at the time but I shudder

to think what would have happened if I was. Now I try to label food

at home as GFCF or not. Soon, I plan to get some new cupboards so I

can have dedicated shelves for it. I put lists on the refrigerator

on a regular basis of what there is that Jadon can eat. My husband

doesn't want to listen but I at least tell him where the information

is so he has no excuse if the unthinkable happens.

P.S. Two weeks before I had my baby, my father-in-law died. I was

responsible to handle all his affairs. He kept everything. What a

nightmare!

> > I just read about people being concerned about the possibility of

> required

> > vaccinations due to terrorism and am wondering about another

> worry. My

> > concern is that what if something happens to the primary

caregiver

> (I call it

> > the keeper of the kitchen) of a child on this diet. It doesn't

> have to be as

> > a result of terrorism, it could be an everyday thing, that may

even

> require

> > an extended hospital stay. Would our substitutes, even if they

> support the

> > diet, know where to shop (some of us mail order and have 3

> different stores

> > we visit for different products), what even in the house is ok,

> when to give

> > the supplements and how, how to access this site for questions,

> where the

> > recipes are, how to make the playdough and fake pizza, where is

the

> binder

> > with the list of acceptable foods is, how to mix the darifree (ok-

> those

> > directions are on the box, I'm going a little overboard) Anyway,

my

> point is,

> > I've realized how much I keep in my head, and this whole diet for

> most hinges

> > on strict compliance so after obsessing about it I think I'm

going

> to type up

> > directions and leave them with loved ones. Maybe I'm being

morbid,

> but I

> > think it's important. Food for thought-Helene, who is obsessing

> way past her

> > bedtime.

> >

> >

> >

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This discussion has got me thinking- thanks.

I have three on this diet, but only my, recently turned, six yo has worked

to learn about what he can and can't eat. He is completely knowledgeable

about his foods. I also have educated, or at least partially educated my dh

on these foods. I think, for me, the real fear is not what foods mine can

have, but the extent of keeping these food pure.

I do have a cabinet set aside for gfcf foods, so this might help with that?

I'm wondering how to write out a simple plan that will convey the need to

keep everything pure.

Lolita

>Soon, I plan to get some new cupboards so I

>can have dedicated shelves for it. I put lists on the refrigerator

>on a regular basis of what there is that Jadon can eat.

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