Re: Behavioral evaluation update-Coby

[Guest guest]

Oh le, I feel so bad for all your aggravation

and having to deal with the people in your life who

should be supporting you and instead adding to your

aggravation.

B

5 1/2 and Kelli 3

--- le wrote:

> My husband and I took Coby to Riley Children's

> Hospital on Tuesday.

> His appt was with the Pediatric Behavioral Center.

> We sat at a big

> table in a room with some toys and 4 docs

> (psychologist,

> pediatrician, and 2 ped interns) for about an hour

> talking about

> Coby. They watched him and asked questions. They

> left the room for

> about 20 mins to discuss their thoughts amongst

> themselves and then

> came back in to tell us their findings.

>

> They told us that they did not believe that he was

> autistic (wow,

> really!) These were their suggestions:

> 1) They gave me the number for a few local places

> that could

> help teach us to deal with his behavior. But they

> don't have any

> appts for 3 months.

> 2) they gave us a number for a place to get a

> language

> evaluation (they don't take insurance so all cost

> come out of our

> pocket)

> 3) They saw staring spells as well so they suggested

> we have a

> sleep EEG done, since his first EEG was normal

> 4) They did feel he was hyper so they told us to go

> back to our

> doctor about medication.

>

> Basically, I could of kept the appt with his doctor

> and been on our

> way to deciding which medication he suggested and

> started my

> research and agonizing over whether to begin

> treatment or not. Now

> we are back to square one and have to wait another

> month to get back

> in with his doctor. Meanwhile Coby is scheduled

> to have his 4th

> hypospadias surgery, so he has to have injections of

> testosterone.

> As long as the testosterone is in his system we will

> not be able to

> adjust any medication. There is no way to tell if

> his behavior is

> from the " man juice " surging through him or from

> just being Coby.

>

> I am soooooooooo frustrated!!!!!!!!!!! I have been

> fighting and

> begging to get help for Coby and for me for a year

> and a half now.

> We have not made any progress in that time. I want

> my sweet little

> baby back! Instead, I get crap from the in laws and

> criticism from

> everyone else. (He's spoiled, he just needs his

> butt whooped! It's

> normal 2 yr old stuff! He's a boy!) Ok, then why

> don't you take

> him for a day and see how normal it is. I love that

> attitude…give

> me a day with him, I'd have him walking the line.

> PLEASE!

> Because I don't, right! He has an extremely high

> tolerance for

> pain so you can NOT spank him hard enough for him to

> even notice

> it.

>

> Ok, I'm done gripping, well, for now anyways…hehehe

> Hopefully when

> we go back to the doc in Sept he will help in some

> way. I would

> just love an answer, but doesn't look like I'll be

> getting that

> anytime soon.

>

> le, mom to:

> Shye 10, Brock 8, and Coby (rss) & Carlee 2 yr old

> twin terrors!

>

>

>

>

____________________________________________________

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[Guest guest]

Ugh, I'm sorry for that long process! Hope things get better soon...

, mom to 5 and Emerence 2.5

> My husband and I took Coby to Riley Children's Hospital on

Tuesday.

> His appt was with the Pediatric Behavioral Center. We sat at a big

> table in a room with some toys and 4 docs (psychologist,

> pediatrician, and 2 ped interns) for about an hour talking about

> Coby. They watched him and asked questions. They left the room

for

> about 20 mins to discuss their thoughts amongst themselves and then

> came back in to tell us their findings.

>

> They told us that they did not believe that he was autistic (wow,

> really!) These were their suggestions:

> 1) They gave me the number for a few local places that could

> help teach us to deal with his behavior. But they don't have any

> appts for 3 months.

> 2) they gave us a number for a place to get a language

> evaluation (they don't take insurance so all cost come out of our

> pocket)

> 3) They saw staring spells as well so they suggested we have a

> sleep EEG done, since his first EEG was normal

> 4) They did feel he was hyper so they told us to go back to our

> doctor about medication.

>

> Basically, I could of kept the appt with his doctor and been on our

> way to deciding which medication he suggested and started my

> research and agonizing over whether to begin treatment or not. Now

> we are back to square one and have to wait another month to get

back

> in with his doctor. Meanwhile Coby is scheduled to have his 4th

> hypospadias surgery, so he has to have injections of testosterone.

> As long as the testosterone is in his system we will not be able to

> adjust any medication. There is no way to tell if his behavior is

> from the " man juice " surging through him or from just being Coby.

>

> I am soooooooooo frustrated!!!!!!!!!!! I have been fighting and

> begging to get help for Coby and for me for a year and a half now.

> We have not made any progress in that time. I want my sweet little

> baby back! Instead, I get crap from the in laws and criticism from

> everyone else. (He's spoiled, he just needs his butt whooped! It's

> normal 2 yr old stuff! He's a boy!) Ok, then why don't you take

> him for a day and see how normal it is. I love that attitude…give

> me a day with him, I'd have him walking the line. PLEASE!

> Because I don't, right! He has an extremely high tolerance for

> pain so you can NOT spank him hard enough for him to even notice

> it.

>

> Ok, I'm done gripping, well, for now anyways…hehehe Hopefully when

> we go back to the doc in Sept he will help in some way. I would

> just love an answer, but doesn't look like I'll be getting that

> anytime soon.

>

> le, mom to:

> Shye 10, Brock 8, and Coby (rss) & Carlee 2 yr old twin terrors!

[Guest guest]

I'm sorry you are going through such a tough time. No one knows your

child like you do. I know it's difficult when others don't see what

is so plain and obvious to you. (been there) Is there another place

you can get another opinion that would take your insurance?

mom to Autumn RSS 19 mos 17.5 lbs, Summer 7 weeks 7 lbs,

Ocean 3, Skye 7 Aspergers, anxiety and ocd

> My husband and I took Coby to Riley Children's Hospital on

Tuesday.

> His appt was with the Pediatric Behavioral Center. We sat at a big

> table in a room with some toys and 4 docs (psychologist,

> pediatrician, and 2 ped interns) for about an hour talking about

> Coby. They watched him and asked questions. They left the room

for

> about 20 mins to discuss their thoughts amongst themselves and then

> came back in to tell us their findings.

>

> They told us that they did not believe that he was autistic (wow,

> really!) These were their suggestions:

> 1) They gave me the number for a few local places that could

> help teach us to deal with his behavior. But they don't have any

> appts for 3 months.

> 2) they gave us a number for a place to get a language

> evaluation (they don't take insurance so all cost come out of our

> pocket)

> 3) They saw staring spells as well so they suggested we have a

> sleep EEG done, since his first EEG was normal

> 4) They did feel he was hyper so they told us to go back to our

> doctor about medication.

>

> Basically, I could of kept the appt with his doctor and been on our

> way to deciding which medication he suggested and started my

> research and agonizing over whether to begin treatment or not. Now

> we are back to square one and have to wait another month to get

back

> in with his doctor. Meanwhile Coby is scheduled to have his 4th

> hypospadias surgery, so he has to have injections of testosterone.

> As long as the testosterone is in his system we will not be able to

> adjust any medication. There is no way to tell if his behavior is

> from the " man juice " surging through him or from just being Coby.

>

> I am soooooooooo frustrated!!!!!!!!!!! I have been fighting and

> begging to get help for Coby and for me for a year and a half now.

> We have not made any progress in that time. I want my sweet little

> baby back! Instead, I get crap from the in laws and criticism from

> everyone else. (He's spoiled, he just needs his butt whooped! It's

> normal 2 yr old stuff! He's a boy!) Ok, then why don't you take

> him for a day and see how normal it is. I love that attitude…give

> me a day with him, I'd have him walking the line. PLEASE!

> Because I don't, right! He has an extremely high tolerance for

> pain so you can NOT spank him hard enough for him to even notice

> it.

>

> Ok, I'm done gripping, well, for now anyways…hehehe Hopefully when

> we go back to the doc in Sept he will help in some way. I would

> just love an answer, but doesn't look like I'll be getting that

> anytime soon.

>

> le, mom to:

> Shye 10, Brock 8, and Coby (rss) & Carlee 2 yr old twin terrors!

[Guest guest]

Sigh - I can relate to that behavior stuff - really!!! The thing we use to

get Tim's attention now that he's older is taking away toys and computer

privileges. It's still hard, especially when surgeries are involved which

can cause fear and anger issues...

Tim didn't speak much until we had a request for a speech referral in when

he was 2 and a half. His grandma kept reading him Mother Goose, and he

started copying her and then took off!

There are ways to negotiate discipline and talk about emotional issues when

they get speech going that it's hard to do now. Perhaps lots of reading

and pointing to objects and maybe some sign language lessons would help

ease the frustration in the meantime...

Inga

At 01:43 PM 8/26/2005 +0000, you wrote:

>My husband and I took Coby to Riley Children's Hospital on Tuesday.

>His appt was with the Pediatric Behavioral Center. We sat at a big

>table in a room with some toys and 4 docs (psychologist,

>pediatrician, and 2 ped interns) for about an hour talking about

>Coby. They watched him and asked questions. They left the room for

>about 20 mins to discuss their thoughts amongst themselves and then

>came back in to tell us their findings.

>

>They told us that they did not believe that he was autistic (wow,

>really!) These were their suggestions:

>1) They gave me the number for a few local places that could

>help teach us to deal with his behavior. But they don't have any

>appts for 3 months.

>2) they gave us a number for a place to get a language

>evaluation (they don't take insurance so all cost come out of our

>pocket)

>3) They saw staring spells as well so they suggested we have a

>sleep EEG done, since his first EEG was normal

>4) They did feel he was hyper so they told us to go back to our

>doctor about medication.

>

>Basically, I could of kept the appt with his doctor and been on our

>way to deciding which medication he suggested and started my

>research and agonizing over whether to begin treatment or not. Now

>we are back to square one and have to wait another month to get back

>in with his doctor. Meanwhile Coby is scheduled to have his 4th

>hypospadias surgery, so he has to have injections of testosterone.

>As long as the testosterone is in his system we will not be able to

>adjust any medication. There is no way to tell if his behavior is

>from the " man juice " surging through him or from just being Coby.

>

>I am soooooooooo frustrated!!!!!!!!!!! I have been fighting and

>begging to get help for Coby and for me for a year and a half now.

>We have not made any progress in that time. I want my sweet little

>baby back! Instead, I get crap from the in laws and criticism from

>everyone else. (He's spoiled, he just needs his butt whooped! It's

>normal 2 yr old stuff! He's a boy!) Ok, then why don't you take

>him for a day and see how normal it is. I love that attitude…give

>me a day with him, I'd have him walking the line. PLEASE!

>Because I don't, right! He has an extremely high tolerance for

>pain so you can NOT spank him hard enough for him to even notice

>it.

>

>Ok, I'm done gripping, well, for now anyways…hehehe Hopefully when

>we go back to the doc in Sept he will help in some way. I would

>just love an answer, but doesn't look like I'll be getting that

>anytime soon.

>

>le, mom to:

>Shye 10, Brock 8, and Coby (rss) & Carlee 2 yr old twin terrors!

>

>

>

>

>

>

>

>