Re: New here! Baby to be born with clubfeet!

[Guest guest]

Hi ,

Congratulations on your pregnancy! I'm sure many people will respond

to your question. Since you've found this support group(you're in

great hands already1), I assume you're going to use the Ponseti

method. My advice for getting the best plan for treatment is to tell

the group where you live so someone can tell you if there are

successful/unsuccessful Ponseti certified doctors in your area, and

then go from there. Also, here is Dr. Ponseti's website – it has a

wealth of great information:

http://www.uihealthcare.com/topics/medicaldepartments/orthopaedics/clu

bfeet/index.html

Enjoy the rest of your pregnancy!

Jescie and Sierra bcf 6-13-05

-- In nosurgery4clubfoot , " kellysimmons122 "

wrote:

>

> I just wanted to write to say hello to everyone. I am 19 weeks

> pregnant and just found out our baby will be born with clubfeet. I

am

> not totally shocked because I was born with bilateral clubfeet. It

is

> still scarey that your child will have to go through so much. I am

> desperate for information on the best plan for treatment even this

> early, even though we don't know how severe. Thanks for your

support

> any information is greatly appreciated.

>

[Guest guest]

Congratulations on your upcoming baby! How exciting.

We all here highly recommend using the Ponseti Method to correct clubbed feet

regardless of their severity. The more severe the more I'd recommend Dr.

Ponseti (and his method), but even a mild case I wouldn't chance it with any

other method.

I haven't figured out yet if I am bragging or complaining when I say this but I

have three sons with bilateral club feet. The oldest did nto get Ponseti care

until he was nearly two years old and his feet are far from perfect. The

younger two were treated by Dr. Ponseti himself. The two year old is running on

perfect feet after five casts and a tenotomy; the new born just returned from

Iowa City where he was corrected with 4 casts and no tenotomy as his case was

less severe. His feet also look great though.

I made a small photo diary in the photo's section of the little one's recent

treatment process, look for my name ee on the photo album. Baby's name is

Garrison.

I'd be curious to know how your feet were treated and whether or not you're

satisfied with the long term results of your treatment.

If there is anythign we can do for you, please let us know. Travelign to a

Ponseti qualified doc may be a hassell but it is WELL worth it!!

s.

New here! Baby to be born with clubfeet!

I just wanted to write to say hello to everyone. I am 19 weeks

pregnant and just found out our baby will be born with clubfeet. I am

not totally shocked because I was born with bilateral clubfeet. It is

still scarey that your child will have to go through so much. I am

desperate for information on the best plan for treatment even this

early, even though we don't know how severe. Thanks for your support

any information is greatly appreciated.

[Guest guest]

--- kellysimmons122 wrote:

> I just wanted to write to say hello to everyone. I

> am 19 weeks pregnant and just found out our baby

> will be born with clubfeet. I am not totally

> shocked because I was born with bilateral

> clubfeet. It is still scarey that your child will

> have to go through so much. I am desperate for

> information on the best plan for treatment even

> this early, even though we don't know how severe.

> Thanks for your support

> any information is greatly appreciated.

Hello,

Congratulations on your pregnancy!

I think it's a good thing to think about treatment

early. I'm sure you've already realised that the type

of treatment you're getting depends on the hospital

you go to. The best treatment in my opinion is the

Ponseti method which probably wasn't widely available

when you were born I think.

My son is 3 1/2 years old now and was treated with the

Ponseti method which was very easy on him and us. He

had 7 weekly casts and usually fell asleep during the

casting, so obviously wasn't in any pain or so. Then

he had the tenotomy, which is a tiny incision in the

heel which only takes a second and doesn't require any

stiches. He cried while his foot was being held but

was fine afterwards. Since the last cast came off

he's been wearing the DBB which are two open-toed

shoes connected by a bar to prevent a relapse. As far

as I know he's got to wear that another 6 months or so

(just at night). We never had a problem with that

either and it doesn't bother him.

Anyway, his feet look perfect, and he runs and jumps

exactly like his twin brother. They reached all their

milestones together so it really hasn't slowed him

down one bit.

I would recommend you find a doctor that is using the

Ponseti method without variation, apparently there are

quite a few doctors out there that are modifying it

and having less success. The 'proper' Ponseti method

should have success rate of about 95%.

Enjoy your pregnancy, and all the best to you,

with (3.5y)

and Alister (3.5y, right CF, Ponseti method, UK)

___________________________________________________________

24 FIFA World Cup tickets to be won with Yahoo! Mail http://uk.mail.yahoo.com

[Guest guest]

Hi ,

I would second what Jescie has said...I remember when our daughter

was born with rcf and I didn't even know what it was lol. This group

welcomed me with open arms, can't even tell you how great the parents

here are!! It is such an amazing network of people from all over the

country/world. Chances are that someone here can recommend a good

(Ponseti certified) doctor in your area.

It is important to start out with the right doctor because many out

there claim to be practicing Dr. Ponseti's method (it has become a

medical buzzword of sorts) but many doctors are modifying it in ways

that do not give the best results (ie. the 96% plus sucess rates of

Dr. Ponseti).

So let us know where you live so that someone can recommend a good

doc for you.

Congrats on your baby!! And looking forward to getting to know you

better!

Smiles,

& Grace 21mos

urcf FAB 13hrs

Vancouver BC Canada

> >

> > I just wanted to write to say hello to everyone. I am 19 weeks

> > pregnant and just found out our baby will be born with clubfeet.

I

> am

> > not totally shocked because I was born with bilateral clubfeet.

It

> is

> > still scarey that your child will have to go through so much. I

am

> > desperate for information on the best plan for treatment even

this

> > early, even though we don't know how severe. Thanks for your

> support

> > any information is greatly appreciated.

> >

>

[Guest guest]

Hi,

So glad you made it here! Congratulations on your new baby, too!

My daughter was born with bilateral clubfoot and at almost four-

months-old her feet are perfect. After doing diligent research, we

decided to go with the Ponsti method which a non-surgical and non-

intrusive technique. The success rate is extremely high. Treatment

starts within the first 10 days or so usually and consists of a

series of casts (between 5-9 sets typically, depending on severity)

then onto wearing a foot abduction brace to hold the correction.

Please look into it. We first started out with an ortho who didn't

practice the technique and who prepared us to expect corrective

surgery by six months. We switched to Ponseti by the time she was 5

weeks old and don't regret it one bit. Also, if you have any

questions so many parents here have such good advice for any

questions you have.

Good luck with everything.

and -J'nee, bcf, born 01.07.06, FAB 23/7

>

> I just wanted to write to say hello to everyone. I am 19 weeks

> pregnant and just found out our baby will be born with clubfeet.

I am

> not totally shocked because I was born with bilateral clubfeet.

It is

> still scarey that your child will have to go through so much. I

am

> desperate for information on the best plan for treatment even this

> early, even though we don't know how severe. Thanks for your

support

> any information is greatly appreciated.

>