Re: Shoes Instructions - thoughts about a related topic

[Guest guest]

Hello everyone,

Something that has been on my mind for a while and is kind of

related to this topic is the lack of any formal publication which

states the bracing protocol as we now all know it to be. Even the

global help booklet just says 23/7 for 3 months, then 14 - 16 hours

until age 3-4. Nothing about the gradual reduction in hours. And I

know a mum posted in the UK recently about coming out of the brace

recently at age 3 and within a short time thought the foot was

turning in. A few of us parents replied to say Dr Ponseti now

recommends until age 4, but really, it's not surprising that those

in the medical profession are not as up to speed as the parents who

spend so many hours talking to each other on the internet and

sharing information. As far as I am aware there does not seem to be

a process whereby the medical profession are informed when 'updates'

are available. eg. with the bracing protocol and the new section in

the global help book re atypical clubfeet. I know the medical

profession should be responsible for keeping themselves up to date

with latest developments, but I can understand the difficulty when

even the global help booklet doesn't always reflect current thinking

(and it wasn't that long ago that it was updated)....unless of

course anyone knows of any other publications which states the more

up to date protocol?

Also from personal experience, our first consultant had never heard

of, and therefore did not recognise atypical clubfoot when

had it. Dr Ponseti was able to diagnose atypical when we sent

photos, but again there was nothing 'formal' anywhere at the time

which might have helped my consultant know about it, and more

importantly, how to treat it.

I don't know the answers but thought it was a point worth making, as

I know I have certainly been guilty in the past of feeling that I

knew more than the health professionals, and that they were being

irresponsible by not knowing what we parents all know.

Perhaps that's the answer then - they all need to sign up here to

find the latest information!

Stella

Maybe this came up before

> >but I just noticed the package insert that came with our

recent

> >pair of PM shoes says to wear the shoes 23 hours a day for 3

months

> >then switch to nights and naps.

> >

> > Um - since when does prescribe brace wear and how

misleading

> > would that be to parents who wouldn't know better?

> >

> > s.

> >

> >