Re: maddy update from NY B

[Guest guest]

Hello,

I'm actually sleeping in bed with Maddy, what an experience LOL.

I'm doin ok it's difficult to eat cause maddy gets upset so i wait till she

falls asleep. Thank god Both Jodi's brought me lots of junk food cause she

never falls asleep till the cafiteria closes. Besides that i'm doin fine can't

wait to get home since today is my son Shane's 2nd birthday.

Thanks again,

Chrissy

[Guest guest]

She's sooooo Funny, I was eating tuna on crackers ( again a gift from the

jodi's ) and she looked at me and said can i have some. I said no baby u know

what Dr. H said. So she looked at me again and said well what does it taste like

then?? All I could do was laugh she's too cute sometimes LOL.

Chrissy

[Guest guest]

A Tpn is Lipids ( cholesterol ) Potassium, electorlites and so on. It's all

the necessities that the body usually gets from daily eating. Her body was

short everything since she had stopped eating for a so long. It's like an IV

except it's run in the picc line. A picc line in case ur not sure is an IV

placed

in her upper arm which goes through a large vein and into her chest. This line

can stay in for weeks without having to be changed.

The TPN accually looks like gatorade it's yellow. Then she has a seperate bag

that goes through the picc line thats really thick and white it looks like

paint. Thats pure fat. I'm very nervouse about her commimg home with this.

Chrissy

[Guest guest]

Ahh, that's hard. I hope he's having a good birthday

otherwise. That's too funny that Maddy gets upset

about you eating. Can you hide the food so that you

can at least take a few bites in the bathroom? Again,

if you need anything give a yell.

B

--- chrissynlou@... wrote:

> Hello,

> I'm actually sleeping in bed with Maddy, what an

> experience LOL.

> I'm doin ok it's difficult to eat cause maddy gets

> upset so i wait till she

> falls asleep. Thank god Both Jodi's brought me lots

> of junk food cause she

> never falls asleep till the cafiteria closes.

> Besides that i'm doin fine can't

> wait to get home since today is my son Shane's 2nd

> birthday.

> Thanks again,

> Chrissy

>

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

Oh how cute. Hey at least she asks about how it

tastes. She is such a doll. By the way, what is a

TPN?

B

--- chrissynlou@... wrote:

> She's sooooo Funny, I was eating tuna on crackers (

> again a gift from the

> jodi's ) and she looked at me and said can i have

> some. I said no baby u know

> what Dr. H said. So she looked at me again and said

> well what does it taste like

> then?? All I could do was laugh she's too cute

> sometimes LOL.

> Chrissy

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Like Jodi Z said, make sure you let them know your concerns. I'm sure you will

get the help you need. Have they given you an indication when you will be going

home? Will she need to keep using theTPN until her surgery with Spigland? or is

that something she will continue to have to use even after the surgery?

B

chrissynlou@... wrote:

A Tpn is Lipids ( cholesterol ) Potassium, electorlites and so on. It's all

the necessities that the body usually gets from daily eating. Her body was

short everything since she had stopped eating for a so long. It's like an IV

except it's run in the picc line. A picc line in case ur not sure is an IV

placed

in her upper arm which goes through a large vein and into her chest. This line

can stay in for weeks without having to be changed.

The TPN accually looks like gatorade it's yellow. Then she has a seperate bag

that goes through the picc line thats really thick and white it looks like

paint. Thats pure fat. I'm very nervouse about her commimg home with this.

Chrissy

[Guest guest]

Oh Sweetie - my heart poors out for you. Please say Happy Birthday to

Shane for us. Please call or write if you need to talk - you are

dealing with so much and I wish there was more we could do.

Thanking of you.

- H

> Hello,

> I'm actually sleeping in bed with Maddy, what an experience LOL.

> I'm doin ok it's difficult to eat cause maddy gets upset so i wait

till she

> falls asleep. Thank god Both Jodi's brought me lots of junk food

cause she

> never falls asleep till the cafiteria closes. Besides that i'm doin

fine can't

> wait to get home since today is my son Shane's 2nd birthday.

> Thanks again,

> Chrissy

>

>

>

[Guest guest]

- sorry - I posted on this message that what meant for you -

oops. Just thinking about Chrissy lot's.

- H

> > Hello,

> > I'm actually sleeping in bed with Maddy, what an experience LOL.

> > I'm doin ok it's difficult to eat cause maddy gets upset so i

wait

> till she

> > falls asleep. Thank god Both Jodi's brought me lots of junk food

> cause she

> > never falls asleep till the cafiteria closes. Besides that i'm

doin

> fine can't

> > wait to get home since today is my son Shane's 2nd birthday.

> > Thanks again,

> > Chrissy

> >

> >

> >