madison update

[Guest guest]

Hello everyone,

Maddy had her gastric emptying delay test done today we haven't seen Dr. H

since the test but she always comes up after clinic hours. We are hoping to come

home by the end of the weekend. But we'll see we all know Dr. H and she's

unpredictable. Madison is growing to like her she brought Madison two necklaces

and it made her very happy. She askes everyday where Dr. H is and why does she

go home?? She wants her to sleep at the hospital LOL.

we are hoping that she will say Maddy can eat now butwho knows. The tech told

me she was refluxing but we already know that she does that so I wasn't

surprised.

I will posted as soon as I hear something from Dr. H.

Chrissy

[Guest guest]

Chrissy,

YES! Please let us know what Dr. H says. I am anxious to hear what

her emptying time is. Hopefully Dr. H will let you go home if she

feels that it is okay. Whatever is best for Madison, I know she will

do. Dr. H is wonderful and tell her we are all so thankful for her

and what she is doing for Maddy. Thank God that he blessed our kids

with such a giving and caring doctor. God knows she saved 's

life almost two years ago.

Hang in there. I am so glad you are getting the best care possible

for Madison.

Thinking of you both,

Jodi R.

> Hello everyone,

> Maddy had her gastric emptying delay test done today we haven't

seen Dr. H

> since the test but she always comes up after clinic hours. We are

hoping to come

> home by the end of the weekend. But we'll see we all know Dr. H and

she's

> unpredictable. Madison is growing to like her she brought Madison

two necklaces

> and it made her very happy. She askes everyday where Dr. H is and

why does she

> go home?? She wants her to sleep at the hospital LOL.

> we are hoping that she will say Maddy can eat now butwho knows. The

tech told

> me she was refluxing but we already know that she does that so I

wasn't

> surprised.

> I will posted as soon as I hear something from Dr. H.

> Chrissy

>

>

>

[Guest guest]

LOL - don't you wish you had a videocamera for

that!!! At least she is giving you some form of

entertainment rather than crying uncontrollably. I

hope the PICC line is okay.

B

--- chrissynlou@... wrote:

> hey there,

> Just wanted to post real quick. Tonight Maddy kept

> complaining of pain in her

> right arm pit. It just so happens that thats the arm

> her picc line is in. So

> it got to the point where she was screaming, the doc

> gave her morphine and 15

> mins later she grabbed her head and said " wew i'm

> hot " so i bumped up the air

> and at this time there were 2 doctor's and her nurse

> in the room. Next thing

> ya know not only is she using that arm again but now

> she's flying high.

> Singing dancing and being really funny. So the nurse

> said they should give her a

> constant morphine drip since she's so funny. LOL.

> But back to the seriuos part they aren't sure if the

> picc line placement is

> not right or what. So It's 10:09 pm and we are

> waiting on a portable xray unit

> to come so we can check placement.

> I will be sure to post as soon as they are done.

> Oh yeah should't she be sleepy with morphine??

> Not my baby she has a stethascope hanging from her

> ears and she's singing

> into it!! Oh lord it's gonna be a long night LOL.

> Chrissy

>

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

Chrissy,

How is Maddy doing now? Did you get the high sugar thing figured

out? I hope she is okay. Let us know. Man, I think everyone on

here is falling apart!!!! Ugh.

Talk soon,

Jodi R.

>

> Should I call the Doc??

> I was getting ready to put Maddy on the TPN at 9pm and before i did

I

> checked her sugar it was 386.

> She's getting 20.23% dextrose now cause i HAD to put her on the

TPN.

> WHat do I Do???

> Chrissy

>

>

>