Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 LouLou - you have definately come to the right place. Check out the MAGIC website - magicfoundation.org - that will supply you with a wealth of information. This site will guide you as well as many of our children have your issues. My RSS son definately has RSS but had negative test results as well - he also had poor feeding, etc as you mentioned. You will enjoy everyone at this site - they are very helpful, insightful and can offer you a wealth of information. Congratulations on your recent births! This is a very stressful but enjoyable time for you and we will be glad to help you through whatever you need. Hope you are getting some rest. Our best to you and your family. - (H) > Hi my name is LouLou and on 6/3/05 I had boy/girl twins (Cole & > Chloe). > Chloe was born 2lbs 10 oz & Cole was 4lbs 13 oz. They were 6 weeks > early because Chloe was much smaller than Cole. My husband has 5 > sisters 3 of his sisters have RSS the smallest is 4 feet 7 inches and > weighs 75 lbs. I was wondering does anyone else have a history with > RSS? Chloe had chromosone tests done and they came back negative. I > still think she has some signs of RSS. First her weight now at 3 > months is just 7lbs. (Cole is over 12 lbs.), fifth fingers are bent > and well her aunts. If anyone has any advice especially on growth > rates that would be great look forward to hearing from someone. LOULOU Quote Link to comment Share on other sites More sharing options...
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