Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 Can you please send us the article, or the link. We, in Israel, are having a hard time convincing our health funds to support growth hormones for kids who have RSS but are not GHD. Any ammunition would be most helpful to us.. thank-you, Grandma to Noam, RSS On Sunday, September 11, 2005, at 03:48 PM, advocate22003 wrote: > Although I read as many posts as I can - I wasn't sure if anyone knew > or would benefit from knowing that the FDA has approved a drug > manufacturered by Tercica Inc. to treat children who suffer from > conditions that prevent them from growing. An article to this effect > was posted in the Wall Street Journal on Thursday, Sept 1st. I'd be > happy to " copy " and reprint the article on a separate post if anyone > is interested. (Just don't let the editor know <grin>). > > I've noticed alot of posts about GH lately and since we are not at > that point yet, I'm not inclined to say much about it. I'm hoping > maybe this article will help some of you. > > - H > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 Wall Street does not allow access to articles on their website unless you are a subscriber.....isn't that ridiculous? I'll contact Wall Street tomorrow and ask that they give me rights to reprint the article this week. Maybe they will even do an article for me on RSS ?? Never hurts to ask! I'll write your name down and follow-up on this for you. - H > > > Although I read as many posts as I can - I wasn't sure if anyone knew > > or would benefit from knowing that the FDA has approved a drug > > manufacturered by Tercica Inc. to treat children who suffer from > > conditions that prevent them from growing. An article to this effect > > was posted in the Wall Street Journal on Thursday, Sept 1st. I'd be > > happy to " copy " and reprint the article on a separate post if anyone > > is interested. (Just don't let the editor know <grin>). > > > > I've noticed alot of posts about GH lately and since we are not at > > that point yet, I'm not inclined to say much about it. I'm hoping > > maybe this article will help some of you. > > > > - H > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 I would love this article, it may help in my fight with the insurance company.... Mom to Jed (1/22/93) and Liam (12/12/00) Orlando Fl " When you get to your wit's end, you'll find God lives there. " " Today I will not worry...unless I see animals lining up two by two. " Family and Breeding Website Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 Got your name down ! -H > I would love this article, it may help in my fight with the insurance > company.... > > > > Mom to Jed (1/22/93) > and Liam (12/12/00) > Orlando Fl > > " When you get to your wit's end, you'll find God lives there. " > " Today I will not worry...unless I see animals lining up two by two. " > > > Family and Breeding Website > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 heather I sure would appreciate a copy of that article as I am going into battle yet again! Thanks Debby ps if you send it as an attachment can you send it to debby.baillargeon@... My home email doesn't get attachments. Thanks! Growth Treatment for Short Children Gains FDA Approval > Although I read as many posts as I can - I wasn't sure if anyone knew > or would benefit from knowing that the FDA has approved a drug > manufacturered by Tercica Inc. to treat children who suffer from > conditions that prevent them from growing. An article to this effect > was posted in the Wall Street Journal on Thursday, Sept 1st. I'd be > happy to " copy " and reprint the article on a separate post if anyone > is interested. (Just don't let the editor know <grin>). > > I've noticed alot of posts about GH lately and since we are not at > that point yet, I'm not inclined to say much about it. I'm hoping > maybe this article will help some of you. > > - H > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 Debby - okay - so you've probably read the article. Do you think it was of benefit? Just curious. Since we are not in the process of GH yet - I wasn't sure how much of a help it would really be for any of us. - H > heather I sure would appreciate a copy of that article as I am going into > battle yet again! > Thanks > Debby > ps if you send it as an attachment can you send it to > debby.baillargeon@t... My home email doesn't get attachments. Thanks! > > > Growth Treatment for Short Children Gains FDA > Approval > > > > Although I read as many posts as I can - I wasn't sure if anyone knew > > or would benefit from knowing that the FDA has approved a drug > > manufacturered by Tercica Inc. to treat children who suffer from > > conditions that prevent them from growing. An article to this effect > > was posted in the Wall Street Journal on Thursday, Sept 1st. I'd be > > happy to " copy " and reprint the article on a separate post if anyone > > is interested. (Just don't let the editor know <grin>). > > > > I've noticed alot of posts about GH lately and since we are not at > > that point yet, I'm not inclined to say much about it. I'm hoping > > maybe this article will help some of you. > > > > - H > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 Hi Actually it's an article about kids who are growth hormone deficient, our kids with RSS " tend " to have enough GH, their body just doesn't realize it's there and use it for some unknown reason! But it was interesting to read! Thanks for your efforts! Deb Growth Treatment for Short Children Gains > FDA > > Approval > > > > > > > Although I read as many posts as I can - I wasn't sure if anyone > knew > > > or would benefit from knowing that the FDA has approved a drug > > > manufacturered by Tercica Inc. to treat children who suffer from > > > conditions that prevent them from growing. An article to this > effect > > > was posted in the Wall Street Journal on Thursday, Sept 1st. > I'd be > > > happy to " copy " and reprint the article on a separate post if > anyone > > > is interested. (Just don't let the editor know <grin>). > > > > > > I've noticed alot of posts about GH lately and since we are not > at > > > that point yet, I'm not inclined to say much about it. I'm > hoping > > > maybe this article will help some of you. > > > > > > - H > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 > Hi > Actually it's an article about kids who are growth hormone deficient, our I'd like a copy of that article if you don't mind..... munchnt@... Thanks, Neva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 Everyone, Please keep in mind that I believe this drug is not for the majority of our children. I believe it is a specific drug that is for children who have a specific error with their IGF-1. The vast majority of RSS/SGA children will grow well on growth hormone therapy. For those children who do NOT grow well on GHT, their endocrinologists would undoubtedly recommend a more intensive series of testing (which is expensive, I believe, and hence not normally done). This drug is used for those children who have this specific IGF-1 error. I hope I am right on this, but read something earlier in a different article about it. I am leaving on a 2 week vacation, but maybe someone could do some investigation to ensure that I am correct. > > > Although I read as many posts as I can - I wasn't sure if anyone knew > > or would benefit from knowing that the FDA has approved a drug > > manufacturered by Tercica Inc. to treat children who suffer from > > conditions that prevent them from growing. An article to this effect > > was posted in the Wall Street Journal on Thursday, Sept 1st. I'd be > > happy to " copy " and reprint the article on a separate post if anyone > > is interested. (Just don't let the editor know <grin>). > > > > I've noticed alot of posts about GH lately and since we are not at > > that point yet, I'm not inclined to say much about it. I'm hoping > > maybe this article will help some of you. > > > > - H > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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