Re: Standing and DBB Questions

May 9, 2006

When the foot lifts up his toes are in the air and it does roll to

the outside edge of his foot. He just started standing a week ago

so I was not sure if this was normal since his other foot does it a

little too but not as much as the clubfoot. I am concerned and have

that nagging feeling that something is wrong. The doctor said that

the foot looked really good and was very flexible etc....but now I

am nervous. We are located in Rochester, NY. As far as I know the

closest Ponseti certified doctors are in NYC about 6 hours away.

Supposedly our Dr. here is the best but now I am wondering.

> >

> > Hello Everyone,

> >

> > I have not posted in awhile but come to the site all the time to

> > read the posts. Anyway, my son just turned 10 months old

> > yesterday. He had 5 five casts when he was born and then

started

> > wearing the DBB (straight gold bar) when he was about 6 weeks

old.

> > We kept him in it for 23/7 for about 4 months, then 21 hours for

a

> > month, 18 hours and now we are down to 15-16 hours. My doctor

> > originally told us back when was 5 months old that we can

> cut

> > back on wearing the bar to just nights but from this site and

all

> > the reading I have done I realized it needs to be a slow

> > transition.

> >

> > So, now my son is starting to stand. I noticed when he stands

that

> > his clubfoot lifts up and rolls to the outside. I asked the

doctor

> > about this and he said that I should not worry now but if it

does

> > not correct itself then will need some sort of surgery to

> > move a tendon from one place to another around age 2. (I forgot

the

> > name of the procedure) I was wondering what other people have

> > experienced when their kids started standing. How did their

feet

> > look? I know we focus on that foot too much but if there is

> > something we could do now to avoid surgery I would prefer that.

> > Also, is there such a thing of wearing the brace too often? My

> > husband thinks we should cut down now to just nights or a nap

and

> > nights but I want to keep going with the brace as long as

> possible.

> > Taking it on and off is really starting to become a battle with

the

> > little guy!

> >

> > Thank you,

> > Stacey

> >

> > Mom to LCF 7/8/05 DBB 16/7

> >

>

May 9, 2006

Stacey,

You could email pictures to Dr. Ponseti, and/or contact the docs in

NYC (Feldman et al). I'd pursue it, to give you peace of mind. The

docs in NYC are supposed to be very good. (Hopefully others in that

area will post to you too.) In the meantime you could also post the

pics to the CFPics group here (are you a member?) for feedback here.

Take pics of him standing/bearing weight, from the back, the front,

the side, maybe also holding the foot showing the dorsiflexion (the

amount the foot can lift up flat from the heel).

Take care, you're being a good mom!

>

> When the foot lifts up his toes are in the air and it does roll to

> the outside edge of his foot. He just started standing a week ago

> so I was not sure if this was normal since his other foot does it a

> little too but not as much as the clubfoot. I am concerned and

have

> that nagging feeling that something is wrong. The doctor said that

> the foot looked really good and was very flexible etc....but now I

> am nervous. We are located in Rochester, NY. As far as I know the

> closest Ponseti certified doctors are in NYC about 6 hours away.

> Supposedly our Dr. here is the best but now I am wondering.

>

May 9, 2006

So Stacey,

Are you saying that his foot only does this when he lifts it? Or is

he actually rolling out onto the outside edge of the foot when he is

standing with weight on it?

Everything that said is right on, relapses should not be messed

with, and re-casting to correct is definitely the first step. Many

relapses can be corrected by casting and fewer ATTT's (anterior tibial

tendon transfer, which I'm assuming is what he is talking about) are

needing to be done because of new casting success with older kids.

Essentially what the ATTT does is stabilize a foot that has been

continuing to try to relapse - but the first step, again, should

definitely be repeat casting.

Based on your description of the foot rolling to the outside edge, I'm

just not sure if it's a relapse or not. Especially if you are seeing

it with his other foot some as well. When my son sits (he's 19 months

and unilateral) and relaxes his feet, both feet have a tendency to

sort of curl up on their sides -- I've been told that this is

perfectly normal.

You said his foot is still very flexible, has he lost any of his

outward rotation? I think the key thing is whether or not he is

standing on the outer edge of the foot when he is putting weight on

it. But again, agreeing with you would do well to email photos

to Dr. Ponseti, and of course if you want to get our " un-expert "

opinions, feel free to send some pics on over to CFPics.

Hope this is helpful,

Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs' brace, 12-14hrs/day)

> > >

> > > Hello Everyone,

> > >

> > > I have not posted in awhile but come to the site all the time to

> > > read the posts. Anyway, my son just turned 10 months old

> > > yesterday. He had 5 five casts when he was born and then

> started

> > > wearing the DBB (straight gold bar) when he was about 6 weeks

> old.

> > > We kept him in it for 23/7 for about 4 months, then 21 hours for

> a

> > > month, 18 hours and now we are down to 15-16 hours. My doctor

> > > originally told us back when was 5 months old that we can

> > cut

> > > back on wearing the bar to just nights but from this site and

> all

> > > the reading I have done I realized it needs to be a slow

> > > transition.

> > >

> > > So, now my son is starting to stand. I noticed when he stands

> that

> > > his clubfoot lifts up and rolls to the outside. I asked the

> doctor

> > > about this and he said that I should not worry now but if it

> does

> > > not correct itself then will need some sort of surgery to

> > > move a tendon from one place to another around age 2. (I forgot

> the

> > > name of the procedure) I was wondering what other people have

> > > experienced when their kids started standing. How did their

> feet

> > > look? I know we focus on that foot too much but if there is

> > > something we could do now to avoid surgery I would prefer that.

> > > Also, is there such a thing of wearing the brace too often? My

> > > husband thinks we should cut down now to just nights or a nap

> and

> > > nights but I want to keep going with the brace as long as

> > possible.

> > > Taking it on and off is really starting to become a battle with

> the

> > > little guy!

> > >

> > > Thank you,

> > > Stacey

> > >

> > > Mom to LCF 7/8/05 DBB 16/7

> > >

> >

>

May 9, 2006

Sometimes his outward rotation looks the same to me and other times

it looks like he has lost some of it. I think I look at his feet

too much and I do not know what I am seeing anymore. How do I post

pictures onto the site? I could just email pictures to Dr. Ponseti

and he will respond? What address do I send those to?

When stands his legs are pretty far apart still. So, maybe

there is not as much weight on that foot as I think. When he does

sit both feet sometimes also look like they curl up a little to the

side. The doctor did say this was normal but the rolling out on his

foot he made it sound like it wasn't and there was nothing to do

about it now. But, he actually did not have stand up for him

to see now that I think about it. Shouldn't he have had him stand

in front of him when checking him out?

> > > >

> > > > Hello Everyone,

> > > >

> > > > I have not posted in awhile but come to the site all the

time to

> > > > read the posts. Anyway, my son just turned 10 months

old

> > > > yesterday. He had 5 five casts when he was born and then

> > started

> > > > wearing the DBB (straight gold bar) when he was about 6

weeks

> > old.

> > > > We kept him in it for 23/7 for about 4 months, then 21 hours

for

> > a

> > > > month, 18 hours and now we are down to 15-16 hours. My

doctor

> > > > originally told us back when was 5 months old that we

can

> > > cut

> > > > back on wearing the bar to just nights but from this site

and

> > all

> > > > the reading I have done I realized it needs to be a slow

> > > > transition.

> > > >

> > > > So, now my son is starting to stand. I noticed when he

stands

> > that

> > > > his clubfoot lifts up and rolls to the outside. I asked the

> > doctor

> > > > about this and he said that I should not worry now but if it

> > does

> > > > not correct itself then will need some sort of

surgery to

> > > > move a tendon from one place to another around age 2. (I

forgot

> > the

> > > > name of the procedure) I was wondering what other people

have

> > > > experienced when their kids started standing. How did their

> > feet

> > > > look? I know we focus on that foot too much but if there is

> > > > something we could do now to avoid surgery I would prefer

that.

> > > > Also, is there such a thing of wearing the brace too often?

My

> > > > husband thinks we should cut down now to just nights or a

nap

> > and

> > > > nights but I want to keep going with the brace as long as

> > > possible.

> > > > Taking it on and off is really starting to become a battle

with

> > the

> > > > little guy!

> > > >

> > > > Thank you,

> > > > Stacey

> > > >

> > > > Mom to LCF 7/8/05 DBB 16/7

> > > >

> > >

> >

>

May 9, 2006

Our daughter just started standing up a month or so ago &

initially I did catch her occassionally standing on the outside

of her cf. Scared me because I know it can be a sign of

relapse. But she had just had a great checkup so I decided

to wait a week or two & see what happened. Seems to

have just been because that leg/foot/ankle were a little weaker

than the other non-cf side & she was hesitant to bear weight,

I think. Now that it's a few weeks later, her cf turns out (over-

correction) when she bears weight/stands, just like it's supposed

to do.

I definitely would have had her back to the doc if she continued

to stand on the outside of that foot. Keep an eye on things &

follow your most conservative instinct.

Kim

Lily, 3/28/2005, lcf, 16 hours in P/M FAB daily

celldancer wrote: