Re: Re: Please tell me when the eating improves? - Hey

[Guest guest]

Here's one for the " stupid " file (actually I heard " that Wayne dude "

{General Monera??} that's down in New Orleans say " we are not stuck on

stupid " I LOVE THAT PHRASE.....I love that man!! but that's my new mantra

for these people we deal with " They ARE stuck on stupid!!!! " )

Had a conversation with Adam's grade 8 teacher yesterday and he complained

that he doesn't like Adam to eat *in* the class, so he asks him to go and

sit in the hallway. NOW the man is complaining that Adam is choosing the

wrong times to go out to eat!! He said that I need to train Adam to eat WHEN

IT SUITS THE TEACHER!!

I'm thinking " buddy, if you can figure that out I know a TON of parents that

will pay you tons of money " .

I tried to explain to him, the lack of hunger feelings and if he feels the

need to eat (maybe out of boredom?? who knows) but he should NOT be denied.

The man thinks he's still right and I am being over protective!!

UGH (by the way, before you all respond with " get a letter " .....I already

did several years ago, it's in his file, this man knows about it........but

he still thinks HE KNOWS better). Stuck ON stupid!!!!

Deb

Please tell me when the eating improves?

> >

> >

> > > I'm so incredibly tired of this and need to vent to someone.

> Colin

> > > is turning 5 in 3 months and I really thought we'd be closer to

> > > getting rid of the g-tube than we are. It is so frustrating.

> Every

> > > meal is a struggle and he just hates to eat.

> > >

> > > After being pushed by 3 different doctors and several SLP's to

> > > eliminate the night time feed (he gets 590ccs at night) we

> decided

> > > to give it a trial run. It was not successful at all and we only

> > > lasted 6 days and went back to our old routine. He was hiding

> under

> > > the sofa at mealtime because he didn't want to eat. At least

> before

> > > he would come to the table somewhat willingly.

> > >

> > > After switching back to the old routine, we've been trying a

> > > different approach where he is in complete control of what he

> eats

> > > and as a result he pretty much doesn't eat anything. I don't know

> > > how he has the energy to get through the day. But at least we

> don't

> > > have to listen to the constant whining and complaining that was

> > > ruining mealtime for our entire family.

> > >

> > > Will he ever develop an appetite? He is just never hungry and

> > > Periactin seems to do absolutely nothing.

> > >

> > > Thanks for listening,

> > >

> > >

> > > Colin (RSS) and Hayden - 4-3/4

> > > Grant - 20 mo.

> > >

> > >

> > >

> > >

> > >

> > >

> > >