Re: 2 Small girls, one RSS, one ???? too early to be concerned??? -

[Guest guest]

,

I found the Magic Newsletter that had the mom who wrote a personal story about

her two daughters. When I'm at work tomorrow, I can scan the story and e-mail

it to you privately. I know at one time about a year ago (but I don't think

longer), she posted an updated of the girls. Maybe Magic can help you locate

her if you have questions.

B

5 3/4 and Kelli 3

anderkat3 wrote:

Thanks . I really just am so curious as to why my 2 girls had

IUGR and Autumn has RSS and Summer is growing just like her with

probs but not the 'look' Autumn had and has. My first 2 pregnancies

were normal without any complications. That's interesting about

genetics/environmental. There is only one thing the girls have in

common with uterine conditions and timing at conception that my first

2 did not, I was told it was no problem adn shouldn't cause any IUGR

or anything at all because it is not uncommon, but maybe it triggered

something. I don't want to write it, might be too much information

for those reading! I will always wonder though, but it wouldn't

explain why growth was good until the end neared so who knows,and it

would only maybe explain IUGR. thanks for all the support too.

mom to sick little Autumn RSS 20 mos 16 lbs 6 oz and

dropping, Summer 2.5 mos 8 lbs, Ocean 3, Skye7

> > Hi. I am posting regarding my 2.5 mos old daughter Summer. I

> have

> > a 20 mos old RSS daughter Autumn. Summer's pregnancy went

> exactly

> > like Autumn's yet this time her IUGR was caught because I was on

> the

> > doctors case. She was born 4 lbs 13 oz and 17.5 inches full term

> 37

> > weeks after induction. She has had absolutly no catch up growth

> or

> > anything so far. She was in the hospital at 4 days old for a

week

> > for reflux and tracheal laryngo malacia which caused her to desat

> > during feeds adn had a hard time coordinating breathing and

> feeding

> > along with all of those issues, she still has trouble but is

> > managable. In the hospital a geneticist (not Autumn's) looked at

> her

> > and said would like to follow her to see how she does. She has

> the

> > bilateral incurved pinkies, small lower jaw noted by speech

> > therapists and doctors (which makes it harder to nurse), her

> > pediatrician remarked that her upper palate is pretty high,

reflux

> > but I don't think she 'looks' RSS like Autumn did (mildly) She is

> > tracking the same growth on the charts as Autumn and her ped

> compared

> > the 2 and they are practically identical. Autumns geneticist

said

> he

> > will see her whenever I am ready, but I have not done anything

yet

> > because I have been thinking maybe she will show any signs for

> catch

> > up anything, yet just like Autumn, the only thing that is

catching

> up

> > is her head size, was proportionate IUGR with little head and now

> it

> > is on the charts but nothing else is. Yet again, I don't think

> she

> > has any triangularity yet, but Autumn's head and forehead became

> much

> > more pronounced as time went on (was noticalble almost immediatly

> and

> > kept on growing) but I don't know. Anyone else have 2 kids like

> > this? Could I have an RSS and SGA daughter? Why? Is it too soon

> to

> > tell? I know catch up growth can occur anytime but ususally with

> > IUGR they begin to thrive once out unless there is something else

> > up. She is not so drastically off the charts but is off of them

> just

> > like Autumn. Autumn's weight and height continued downward some,

> > especially weight as time went on and it looks like Summer is

> doing

> > the same, but again, maybe something will happen tomorrow and

> change,

> > I don't know. Any insight?

> >

> > mom to Autumn 20 mos RSS 16 lbs 10 oz (this morn,

ahhhh,

> > worse than before) 29.25 or 29.5 inches, Summer 2.5 mos, 8 lbs ab

> out

> > 20.5 inches, Ocean 3yrs, Skye 7 yrs

> >

> >

> >

> >

> >

[Guest guest]

Thanks you, I look forward to reading it.

> > > Hi. I am posting regarding my 2.5 mos old daughter Summer. I

> > have

> > > a 20 mos old RSS daughter Autumn. Summer's pregnancy went

> > exactly

> > > like Autumn's yet this time her IUGR was caught because I was

on

> > the

> > > doctors case. She was born 4 lbs 13 oz and 17.5 inches full

term

> > 37

> > > weeks after induction. She has had absolutly no catch up

growth

> > or

> > > anything so far. She was in the hospital at 4 days old for a

> week

> > > for reflux and tracheal laryngo malacia which caused her to

desat

> > > during feeds adn had a hard time coordinating breathing and

> > feeding

> > > along with all of those issues, she still has trouble but is

> > > managable. In the hospital a geneticist (not Autumn's) looked

at

> > her

> > > and said would like to follow her to see how she does. She has

> > the

> > > bilateral incurved pinkies, small lower jaw noted by speech

> > > therapists and doctors (which makes it harder to nurse), her

> > > pediatrician remarked that her upper palate is pretty high,

> reflux

> > > but I don't think she 'looks' RSS like Autumn did (mildly) She

is

> > > tracking the same growth on the charts as Autumn and her ped

> > compared

> > > the 2 and they are practically identical. Autumns geneticist

> said

> > he

> > > will see her whenever I am ready, but I have not done anything

> yet

> > > because I have been thinking maybe she will show any signs for

> > catch

> > > up anything, yet just like Autumn, the only thing that is

> catching

> > up

> > > is her head size, was proportionate IUGR with little head and

now

> > it

> > > is on the charts but nothing else is. Yet again, I don't think

> > she

> > > has any triangularity yet, but Autumn's head and forehead

became

> > much

> > > more pronounced as time went on (was noticalble almost

immediatly

> > and

> > > kept on growing) but I don't know. Anyone else have 2 kids

like

> > > this? Could I have an RSS and SGA daughter? Why? Is it too

soon

> > to

> > > tell? I know catch up growth can occur anytime but ususally

with

> > > IUGR they begin to thrive once out unless there is something

else

> > > up. She is not so drastically off the charts but is off of

them

> > just

> > > like Autumn. Autumn's weight and height continued downward

some,

> > > especially weight as time went on and it looks like Summer is

> > doing

> > > the same, but again, maybe something will happen tomorrow and

> > change,

> > > I don't know. Any insight?

> > >

> > > mom to Autumn 20 mos RSS 16 lbs 10 oz (this morn,

> ahhhh,

> > > worse than before) 29.25 or 29.5 inches, Summer 2.5 mos, 8 lbs

ab

> > out

> > > 20.5 inches, Ocean 3yrs, Skye 7 yrs

> > >

> > >

> > >

> > >

> > >