Problems associated with Club Foot

[Guest guest]

Regarding concerns because your child has a hairy patch on her lower back. I

think it is smart to get it checked out. Everything is probably fine but I

always think it is good to rule it out just in case. I am on two email groups

for tethered cords. Several people posted that their child's tethered cord was

caught on an ultrasound while other parents are adamant that an MRI is the only

true way to diagnose a tethered cord (based on tethered cord websites that it is

the definitive way to diagnose). One mom posted that her baby had an

ultrasound at the hospital and everything was fine. As her child got older she

had concerns and had an MRI. The MRI showed a tethered cord.

I have talked to two local families whose children both had the sacral

dimpling without any other symptoms. Both of them had boys that were diagnosed

at 6 years of age and the other one was 8 years old. Both boys started having

loss of bladder control and after ruling everything else out, did an MRI and had

found a tethered cord was the cause. Once the tethered cord effects the signal

for bladder control, it is not corrected by surgery.

This is my last post on this subject because I think for the majority of this

group it is not an issue....most are just club feet and nothing else...99% I

just wanted to get the word out for the one or two of you who should look into

it just in case.

We are fortunate that our Ped. noticed the signs. She said if I had come to

her years ago she would not have noticed. She just started seeing more cases in

the last few years so she is more aware. As we await surgery in a few weeks the

Ped. Neurosurgeon said that it is starting to pull her spine down severely and

is causing scoliosis as she is growing and her spine is held down (she is 19

months). Her surgery will release the spine and hopefully get some feeling

back in her foot.

I don't want to cause any worry....just want to make you aware of something I

had never heard of and if our Pediatrician had not been so quick to order the

MRI, our daughter's body could have had more damage.

Best wishes to everyone,

Holly

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[Guest guest]

Can you describe the hairy patch or point me to a site that might have

pictures of it? My son has a bunch of hair at the base of his spine,

but I'm not so sure it is they same type of " hairy patch " that I

should worry about.

Thanks,

Mom to Declan 2/16/06 BCF (DBB 23/7)

>

> Regarding concerns because your child has a hairy patch on her lower

back. I think it is smart to get it checked out. Everything is

probably fine but I always think it is good to rule it out just in

case. I am on two email groups for tethered cords. Several people

posted that their child's tethered cord was caught on an ultrasound

while other parents are adamant that an MRI is the only true way to

diagnose a tethered cord (based on tethered cord websites that it is

the definitive way to diagnose). One mom posted that her baby had an

ultrasound at the hospital and everything was fine. As her child got

older she had concerns and had an MRI. The MRI showed a tethered cord.

>

> I have talked to two local families whose children both had the

sacral dimpling without any other symptoms. Both of them had boys

that were diagnosed at 6 years of age and the other one was 8 years

old. Both boys started having loss of bladder control and after

ruling everything else out, did an MRI and had found a tethered cord

was the cause. Once the tethered cord effects the signal for bladder

control, it is not corrected by surgery.

>

> This is my last post on this subject because I think for the

majority of this group it is not an issue....most are just club feet

and nothing else...99% I just wanted to get the word out for the one

or two of you who should look into it just in case.

>

> We are fortunate that our Ped. noticed the signs. She said if I

had come to her years ago she would not have noticed. She just

started seeing more cases in the last few years so she is more aware.

As we await surgery in a few weeks the Ped. Neurosurgeon said that it

is starting to pull her spine down severely and is causing scoliosis

as she is growing and her spine is held down (she is 19 months). Her

surgery will release the spine and hopefully get some feeling back in

her foot.

>

> I don't want to cause any worry....just want to make you aware of

something I had never heard of and if our Pediatrician had not been so

quick to order the MRI, our daughter's body could have had more damage.

>

> Best wishes to everyone,

>

> Holly

>

>

>

> __________________________________________________

>

[Guest guest]

I should add that the hair Declan has is not very dark. It's a very

light blonde/brown that is very fine, but noticeable, and runs across

the top of his butt crack (for lack of a better description!). He was

born with it & similar excess hair on his shoulders & back of ears,

but that has pretty much disappeared. On other websites, I have seen

the " hairy patch " described as a " dark tuft of hair " somewhere along

the spinal cord, but I can't find any pictures of this.

> >

> > Regarding concerns because your child has a hairy patch on her lower

> back. I think it is smart to get it checked out. Everything is

> probably fine but I always think it is good to rule it out just in

> case. I am on two email groups for tethered cords. Several people

> posted that their child's tethered cord was caught on an ultrasound

> while other parents are adamant that an MRI is the only true way to

> diagnose a tethered cord (based on tethered cord websites that it is

> the definitive way to diagnose). One mom posted that her baby had an

> ultrasound at the hospital and everything was fine. As her child got

> older she had concerns and had an MRI. The MRI showed a tethered cord.

> >

> > I have talked to two local families whose children both had the

> sacral dimpling without any other symptoms. Both of them had boys

> that were diagnosed at 6 years of age and the other one was 8 years

> old. Both boys started having loss of bladder control and after

> ruling everything else out, did an MRI and had found a tethered cord

> was the cause. Once the tethered cord effects the signal for bladder

> control, it is not corrected by surgery.

> >

> > This is my last post on this subject because I think for the

> majority of this group it is not an issue....most are just club feet

> and nothing else...99% I just wanted to get the word out for the one

> or two of you who should look into it just in case.

> >

> > We are fortunate that our Ped. noticed the signs. She said if I

> had come to her years ago she would not have noticed. She just

> started seeing more cases in the last few years so she is more aware.

> As we await surgery in a few weeks the Ped. Neurosurgeon said that it

> is starting to pull her spine down severely and is causing scoliosis

> as she is growing and her spine is held down (she is 19 months). Her

> surgery will release the spine and hopefully get some feeling back in

> her foot.

> >

> > I don't want to cause any worry....just want to make you aware of

> something I had never heard of and if our Pediatrician had not been so

> quick to order the MRI, our daughter's body could have had more damage.

> >

> > Best wishes to everyone,

> >

> > Holly

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Just thought I'd mention, my dd has the sacral dimple (which neither of my other

two had), she has cf and ddh and had an MRI done to check for tethered cord and

she was fine. It's very uncommon, though possible.

Marcia

Problems associated with Club Foot

Regarding concerns because your child has a hairy patch on her lower back. I

think it is smart to get it checked out. Everything is probably fine but I

always think it is good to rule it out just in case. I am on two email groups

for tethered cords. Several people posted that their child's tethered cord was

caught on an ultrasound while other parents are adamant that an MRI is the only

true way to diagnose a tethered cord (based on tethered cord websites that it is

the definitive way to diagnose). One mom posted that her baby had an ultrasound

at the hospital and everything was fine. As her child got older she had concerns

and had an MRI. The MRI showed a tethered cord.

I have talked to two local families whose children both had the sacral

dimpling without any other symptoms. Both of them had boys that were diagnosed

at 6 years of age and the other one was 8 years old. Both boys started having

loss of bladder control and after ruling everything else out, did an MRI and had

found a tethered cord was the cause. Once the tethered cord effects the signal

for bladder control, it is not corrected by surgery.

This is my last post on this subject because I think for the majority of this

group it is not an issue....most are just club feet and nothing else...99% I

just wanted to get the word out for the one or two of you who should look into

it just in case.

We are fortunate that our Ped. noticed the signs. She said if I had come to

her years ago she would not have noticed. She just started seeing more cases in

the last few years so she is more aware. As we await surgery in a few weeks the

Ped. Neurosurgeon said that it is starting to pull her spine down severely and

is causing scoliosis as she is growing and her spine is held down (she is 19

months). Her surgery will release the spine and hopefully get some feeling back

in her foot.

I don't want to cause any worry....just want to make you aware of something I

had never heard of and if our Pediatrician had not been so quick to order the

MRI, our daughter's body could have had more damage.

Best wishes to everyone,

Holly

__________________________________________________

[Guest guest]

What is a sacral dimple? I've looked online and haven't been able to understand

how a sacral dimple looks like and where it is in the body. My daughter has a

blue spot near her right butt cheek but I think that is a mongolian spot not

anything else but I did want to check for the sacral dimple.

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[Guest guest]

Kelsey's is right above her butt at the base of her spine. It almost looks

like an extension of her crack but the skin kind of dimples and puckers there.

Kelsey also have a very small skin tag in hers as well. Hope that helps.

Jenni

wrote:

What is a sacral dimple? I've looked online and haven't been able to

understand how a sacral dimple looks like and where it is in the body. My

daughter has a blue spot near her right butt cheek but I think that is a

mongolian spot not anything else but I did want to check for the sacral dimple.

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