Guest guest Posted September 26, 2005 Report Share Posted September 26, 2005 , I think Dr. H. is still away. She is not supposed to be back until next week, as I understand it. I've been trying to reach her because of our dealings with Max and she has not even replied to my emails. That is not usual for her. Your doctor is correct about the PDD and ADHD. Many of our RSS kids do have some of the characteristics, but not enough of either to make the diagnosis stick. Some, unfortunately, do have one or the other or both. Max, as a matter of fact, has many of the PDD characteristics but is not diagnosed with that. His psychologist, though, is going to see if he has enough of them to make it fit for insurance purposes. I don't care what the diagnosis says so long as insurance will pay. If he does have PDD, he is high functioning in many ways. Now if he could just get rid of these hiccups and the now more frequent vomiting.... Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 , just a reminder Dr. H is in Hawaii untill Oct. 9th. Sorry your having my kind of crappy luck!! I will keep u and ur family in my prayers Chrissy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2005 Report Share Posted September 27, 2005 hey jamie!! first off what kind of tumors are rss kids supposly prone too?!? never heared of this!! i know there was confuse about wilms tumors but that is because of assmentry that is caused by hemihypertrafy(sp) which rss kids dont have (we went through that for a year before they relized this and these tumors are in the abdomin any way but like i said our kids dont have this kind of assmentry) dr h is still on vacation in hawaii until oct 9th i think. call magic and ask them. jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 We keep you all in our prayers too. Yea I called and talked to her assistant yesterday she said that she has never seen a RSS patient with brain tumors. We have an apt on Nov 1 too see Dr.H but I am going to try and get in earlier, I have too call yadria today. Hope nmaddy is doing good. Re: Tori's PDD report , just a reminder Dr. H is in Hawaii untill Oct. 9th. Sorry your having my kind of crappy luck!! I will keep u and ur family in my prayers Chrissy Quote Link to comment Share on other sites More sharing options...
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