New Member in Columbus OH- Question about Hypoglycemia

[Guest guest]

Hi, my name is Steve and we live in Columbus OH. My 14mo old son

Zachary was recently diagnosed with RSS although we have suspected

it for several months. I joined this group a few months ago and

decided I should finally introduce myself. I guess the delay was

just accepting that Zachary is RSS. We've been through the round of

Dr's. including Genetics, Endo, GI and later this week Nutrionist.

Our Pediatrician says definitely RSS and so does the Geneticist. The

Endo said something is definitely wrong, doesn't know what but not

RSS.

We joined Magic a few months ago as well and just recently contacted

Dr. Harbisons office to see if we can get in.

After reading everything I can our main concern right now is

preventing hypoglycemia. Zachary eats table foods but never a lot

and we're convinced he's not getting enough. We just started giving

him a bottle of pedisure mixed with cornstarch in his crib when he

goes down at night. Not sure when he drinks it but when he got up

this morning the bottle was empty.

We bougth some keytone sticks but aren't really sure if we are

getting accurate results or at what point we should be concerned. He

wears cloth diapers and we are trying to rub and push the stick in

the diaper.

We have tested him the last several days and get results of negative

or trace. My questions are:

How accurate is the test?

Should a trace amount concern us?

How do we get a better sample to test?

How often should we test? Just in the morning, or through out the

day?

What are some of the symptoms of hypoglycemia that we should be

worried about?

I appreciate any suggestions you have. Thank you for your help

Steve