Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Madison is 4 and we used to have the same problems with the tube at night. You can try and tape the tube around the connections that haelped us with Maddy. We had a bigger problem because she started disconnecting herself or turning the pump off after everyone fell asleep so be alert for that. Hope that helps Chrissy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Has you GI ever done an ultrasound or anything to see if there is a blockage around the tube sight - perhaps some scar tissue developed or something? Perhaps she'll need a surgeon to remove it if so - I wouldn't think it would be a very complex procedure... Inga At 10:28 PM 10/5/2005 +0000, you wrote: >Hi everybody! I need some advice on what we can do with Abby and >her feedings. > >We did great with giving Abby her bolis feeds for the first few >months. Then, she began to eat more orally and her tube feeds >became more difficult to give her. What I mean is when we began a >feeding, it would not go through. It was like her stomach was full >and would not allow anything else in. The doctor wanted to try a >feeding pump at night only, so we have. Failed with that. Abby is >5 years old and moves around so much in bed that the feeding pump >came apart. He does not want to use the pump during the day for >various reasons. > >Does anyone have any suggestions as to what I can try next. I am >grateful that Abby wants to eat all the time, but the doctor says it >is food that is not giving her the calories she needs. > >Please help as it is breaking my heart that her growth has slowed >again. > >Thanks, Amy (mom to Abby-5 yrs, rss, gtube, growth hormones; Tyler-3 >1/2 yrs, wild child, non-rss; -3 months, clone of his father) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Amy, I'm sorry to hear of your difficulties with Abby and her eating. I wish I had something helpful to say, it sounds like you've been through quite a bit and tried many avenues and I'm not sure I would have any better suggestions than what you have already tried - but, I want you to know that I understand and will send my prayers to you. - H > Hi everybody! I need some advice on what we can do with Abby and > her feedings. > > We did great with giving Abby her bolis feeds for the first few > months. Then, she began to eat more orally and her tube feeds > became more difficult to give her. What I mean is when we began a > feeding, it would not go through. It was like her stomach was full > and would not allow anything else in. The doctor wanted to try a > feeding pump at night only, so we have. Failed with that. Abby is > 5 years old and moves around so much in bed that the feeding pump > came apart. He does not want to use the pump during the day for > various reasons. > > Does anyone have any suggestions as to what I can try next. I am > grateful that Abby wants to eat all the time, but the doctor says it > is food that is not giving her the calories she needs. > > Please help as it is breaking my heart that her growth has slowed > again. > > Thanks, Amy (mom to Abby-5 yrs, rss, gtube, growth hormones; Tyler- 3 > 1/2 yrs, wild child, non-rss; -3 months, clone of his father) Quote Link to comment Share on other sites More sharing options...
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