Re: Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's advice first!

[Guest guest]

Thank you to everyone for their words of encouragement. It is so nice to have

all of you to talk to because you understand what others are going through! I

know I've said it a million times, but I am so thankful for this group!

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

,

Just so you know- there are other doctors in Iowa too, colleagues of

Dr. Ponseti, with years of experience. Jakob, 's son, who

lives in Iowa City is actually a patient of Dr. Weinstein. My

daughter, , while she is a patient of Dr. Ponseti, she has also

had examinations by Dr. Dietz and Dr. Morcuende.

You should really consider going to Iowa for the initial

consultation and correction and then do your follow up appointments

with Von Stein.

I drove 10 hours one way to Iowa City when was 4 months old-

did it four weeks in a row (for Monday morning appointments- drove

back Monday and returned to work Tuesday) and would do it all over

again in a heartbeat- even with my current gang of 3 screaming

kids.

You won't regret it!

Keep us posted!

> > >

> > > I just wanted to update everyone that I did hear back from

Dr.

> > Ponseti this

> > > morning. He has requested that I send him photos of Dino's

feet

> > and then he

> > > can tell us what course of action to take next.

> > > Thank you so much again!

> >

> >

[Guest guest]

Why do you say that it would be easier to travel back and forth weekly to StL

rather than IA?

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

,

I don't think the free flights are based on income. There's a

comprehensive list of the organizations that do free flights and

discounted flights in the files section on the group's website.

If he said there was no one in Ohio, then I would have to go with that

assessment. Personally, knowing that, I think that leaves you with

either Dr. P directly or Dr. Dobbs. It is really easy to stay long

term in Iowa, they are readily equipped for that because so many

people do it. I think for St. Louis it might be easier to travel back

and forth weekly.

allison

> > >

> > > I just wanted to update everyone that I did hear back from Dr.

> > Ponseti this

> > > morning. He has requested that I send him photos of Dino's feet

> > and then he

> > > can tell us what course of action to take next.

> > > Thank you so much again!

> >

> >

[Guest guest]

Well, getting the time off work and loss of income is a concern for us, that is

why I was thinking it would be more practical for us to make weekly trips and I

would only have to miss one day of work, as compared to a month.

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

Please go see Dr. Ponseti. He is amazing. I have an appt. with him

Friday and would never hesitate to travel to him. He isn't

incredible CONSIDERING his age. He is just incredible.

This is the best possible treatment for your little one. There were

probably people who thought " Dr. Ponseti is 88--is it worth the trip "

and they have had four years of treatment. We can't predict the

future regarding Dr. Ponseti but can just cross that road when we

come to it. I hear he has other excellent doctors on staff. In the

meantime, see him as soon as you can. , his nurse, called me on

a Thursday for Lily's first appt. telling me we could get in to him

the next morning. I had been due to leave in a hour for a long

weekend celebrating my parents' 40th anniv. I went to see Dr.P. My

parents understood. It is worth any self-sacrifice to have this

kind, wise humble doctor lay his hands on Dino's feet. I am awed by

the difference in Lily's feet from getting her into the " right "

treatment. After 5 weeks of casting, Lily went from a size 0-3 sock

at age 11.5 months to an almost too small 6-12 month sock, not to

mention how beautiful they were! Go, you won't regret it!

Do I sound enthusiastic enough?!

I understand it can be difficult to travel but there are others here

who can offer you advice on travel and staying in IA City at the

RMH. I had a friend staying at the RMH who met a woman who came from

JAPAN just to see Dr. Ponseti.

Best of luck to you,

> >

> > I just wanted to update everyone that I did hear back from Dr.

> Ponseti this

> > morning. He has requested that I send him photos of Dino's feet

> and then he

> > can tell us what course of action to take next.

> > Thank you so much again!

>

>

[Guest guest]

You know we've done the Iowa thing and we also travel regularly to StL because

our extended family is there (and we've done the 'detour' from Iowa to StL on

our way home LOL) and I actually prefer Iowa. More peaceful, less traffic and I

love the town.

Just my .02

Chris

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

,

I don't think the free flights are based on income. There's a

comprehensive list of the organizations that do free flights and

discounted flights in the files section on the group's website.

If he said there was no one in Ohio, then I would have to go with that

assessment. Personally, knowing that, I think that leaves you with

either Dr. P directly or Dr. Dobbs. It is really easy to stay long

term in Iowa, they are readily equipped for that because so many

people do it. I think for St. Louis it might be easier to travel back

and forth weekly.

allison

> > >

> > > I just wanted to update everyone that I did hear back from Dr.

> > Ponseti this

> > > morning. He has requested that I send him photos of Dino's feet

> > and then he

> > > can tell us what course of action to take next.

> > > Thank you so much again!

> >

> >

[Guest guest]

We always traveled on a Sunday, stayed overnight and got in to see Dr. P first

thing Monday morning (Joyce can get you the 9 am slot which is usually reserved

for newbies) and then we drove home after the appt letting the casts dry on the

way. LOL

Chris

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

Please go see Dr. Ponseti. He is amazing. I have an appt. with him

Friday and would never hesitate to travel to him. He isn't

incredible CONSIDERING his age. He is just incredible.

This is the best possible treatment for your little one. There were

probably people who thought " Dr. Ponseti is 88--is it worth the trip "

and they have had four years of treatment. We can't predict the

future regarding Dr. Ponseti but can just cross that road when we

come to it. I hear he has other excellent doctors on staff. In the

meantime, see him as soon as you can. , his nurse, called me on

a Thursday for Lily's first appt. telling me we could get in to him

the next morning. I had been due to leave in a hour for a long

weekend celebrating my parents' 40th anniv. I went to see Dr.P. My

parents understood. It is worth any self-sacrifice to have this

kind, wise humble doctor lay his hands on Dino's feet. I am awed by

the difference in Lily's feet from getting her into the " right "

treatment. After 5 weeks of casting, Lily went from a size 0-3 sock

at age 11.5 months to an almost too small 6-12 month sock, not to

mention how beautiful they were! Go, you won't regret it!

Do I sound enthusiastic enough?!

I understand it can be difficult to travel but there are others here

who can offer you advice on travel and staying in IA City at the

RMH. I had a friend staying at the RMH who met a woman who came from

JAPAN just to see Dr. Ponseti.

Best of luck to you,

> >

> > I just wanted to update everyone that I did hear back from Dr.

> Ponseti this

> > morning. He has requested that I send him photos of Dino's feet

> and then he

> > can tell us what course of action to take next.

> > Thank you so much again!

>

>

[Guest guest]

Yes. I think that would be best for us also. I was thinking of flying out

Sunday and going to the appt Monday AM and then flying home that same afternoon.

I'm checking in to the discounted/free flights available.

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

Please go see Dr. Ponseti. He is amazing. I have an appt. with him

Friday and would never hesitate to travel to him. He isn't

incredible CONSIDERING his age. He is just incredible.

This is the best possible treatment for your little one. There were

probably people who thought " Dr. Ponseti is 88--is it worth the trip "

and they have had four years of treatment. We can't predict the

future regarding Dr. Ponseti but can just cross that road when we

come to it. I hear he has other excellent doctors on staff. In the

meantime, see him as soon as you can. , his nurse, called me on

a Thursday for Lily's first appt. telling me we could get in to him

the next morning. I had been due to leave in a hour for a long

weekend celebrating my parents' 40th anniv. I went to see Dr.P. My

parents understood. It is worth any self-sacrifice to have this

kind, wise humble doctor lay his hands on Dino's feet. I am awed by

the difference in Lily's feet from getting her into the " right "

treatment. After 5 weeks of casting, Lily went from a size 0-3 sock

at age 11.5 months to an almost too small 6-12 month sock, not to

mention how beautiful they were! Go, you won't regret it!

Do I sound enthusiastic enough?!

I understand it can be difficult to travel but there are others here

who can offer you advice on travel and staying in IA City at the

RMH. I had a friend staying at the RMH who met a woman who came from

JAPAN just to see Dr. Ponseti.

Best of luck to you,

> >

> > I just wanted to update everyone that I did hear back from Dr.

> Ponseti this

> > morning. He has requested that I send him photos of Dino's feet

> and then he

> > can tell us what course of action to take next.

> > Thank you so much again!

>

>

[Guest guest]

It is so nice to hear all of these things and to know that I am not crazy

because other people are thinking the same thoughts that we have! Also, it is

so reassuring to hear all of your success stories!!

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

,

Let me join the chorus in saying you will not regret going.

we traveled from the east coast, staying overnight each time, and

went back home after every appt., partly because we had other young

children at home and it was easier, for us, to do it that way. also,

since she was older (4 to 5 months old), she could wear the casts

longer than a newborn; I think we had 10 to 14 days between appts.

i understand how hard it is to 'make the leap' of deciding to go. it

seems crazy at first. you wonder, is this really necessary? The

question will be answered for you once you are there. it truly is 'as

good as advertised'. the experience and results we had in Iowa were

night and day from what we had before. As a mom, I felt the

difference in my child right away. I knew that this finally was the

place for my baby to be, and the dramatic, immediate change in her

foot (after months of stalled progress before) was the proof.

about his age.. the way I see it, this is a skill of the hands that

doesn't diminish with time, but benefits from it .. he doesn't

perform surgeries any more, but the manipulations are a matter of

finesse, touch and experience. No one knows this condition better.

He works closely with Dr. Morcuende, his right hand man, so to speak,

who is excellent, and all the other doctors there, and frequently

hosts visiting physicians.

When we decided to go, I told her doctor at the time (a man in his

40s). He said, " if you take her to him, you'll be taking her to the

best. " And he was right.

best wishes, and hope this helps,

and Claire

6/29/00 left cf

[Guest guest]

Appreciate it!

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

,

I don't think the free flights are based on income. There's a

comprehensive list of the organizations that do free flights and

discounted flights in the files section on the group's website.

If he said there was no one in Ohio, then I would have to go with that

assessment. Personally, knowing that, I think that leaves you with

either Dr. P directly or Dr. Dobbs. It is really easy to stay long

term in Iowa, they are readily equipped for that because so many

people do it. I think for St. Louis it might be easier to travel back

and forth weekly.

allison

> > >

> > > I just wanted to update everyone that I did hear back from Dr.

> > Ponseti this

> > > morning. He has requested that I send him photos of Dino's feet

> > and then he

> > > can tell us what course of action to take next.

> > > Thank you so much again!

> >

> >

[Guest guest]

If you go through the Shriners the Haven House is free. Also, if you don't

want to ride on the Shriner van they will give you money to help with gas

costs. That's what I'm doing since I breastfeed and need to be able to stop

when I need to. I should get a check this weekend. I'll let you guys know

how much it is.

Shelly

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: Re: 7 MONTHS AND ....--Please seek Dr.

>Ponseti's advice first!

>Date: Wed, 12 Jul 2006 20:18:28 -0000

>

>Hi ,

>

>The Shriner's in StL is right near a Haven House

>http://www.havenhousestl.org/

>which is similar to Mc houses, they provide a room and 2

>meals per day. They are small and don't always have room to

>accomodate long term stays, although it is possible. The

>Mc Houses are a little farther away from Shriner's but they do

>have transportation. It is certainly possible to stay long term in

>St.L but maybe just logistically not quite as easy as it is in Iowa.

> And maybe it's not even that it is not as " easy " , but just not as

>commonly done so it takes just a wee bit more work on all parties

>involved for making the necessary arrangments.

>

>Hope this makes sense, I'm not sure if I'm explaining myself quite

>right. Also, just FYI, RMD house in StL is just $5/night and the

>Haven House is $25/night, although the rate goes down if you do stay

>long term.

>

>HTH,

>

>

>

>

> > > > >

> > > > > I just wanted to update everyone that I did hear back from Dr.

> > > > Ponseti this

> > > > > morning. He has requested that I send him photos of Dino's feet

> > > > and then he

> > > > > can tell us what course of action to take next.

> > > > > Thank you so much again!

> > > >

> > > >

[Guest guest]

I think we have decided to just stay at the RMD House in Iowa City. But thanks

for the information!

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

Hi ,

The Shriner's in StL is right near a Haven House

http://www.havenhousestl.org/

which is similar to Mc houses, they provide a room and 2

meals per day. They are small and don't always have room to

accomodate long term stays, although it is possible. The

Mc Houses are a little farther away from Shriner's but they do

have transportation. It is certainly possible to stay long term in

St.L but maybe just logistically not quite as easy as it is in Iowa.

And maybe it's not even that it is not as " easy " , but just not as

commonly done so it takes just a wee bit more work on all parties

involved for making the necessary arrangments.

Hope this makes sense, I'm not sure if I'm explaining myself quite

right. Also, just FYI, RMD house in StL is just $5/night and the

Haven House is $25/night, although the rate goes down if you do stay

long term.

HTH,

> > > >

> > > > I just wanted to update everyone that I did hear back from Dr.

> > > Ponseti this

> > > > morning. He has requested that I send him photos of Dino's feet

> > > and then he

> > > > can tell us what course of action to take next.

> > > > Thank you so much again!

> > >

> > >

[Guest guest]

Thanks .

After some discussion, I think we are just going to go straight to the " master " ,

plus I'm very excited to meet him after talking to him on the phone the other

day.

Re: 7 MONTHS AND ....--Please seek Dr. Ponseti's

advice first!

,

Just to clarify, and Shelly I don't want to contradict you, but I just

want to make sure no one misunderstands what Shriner's will and won't

pay for - IF the St. Louis Shriner's is the closest Shrine and/or is

the closest Shrine with a Ponseti qualified physician, then they will

take care of, or at least be able to help with transportation (either

via the Shriner's van or reimbursement) and lodging.

, if you would decide to come to St. Louis, or even want to talk

to someone here to consider it a little more indepth, you can start by

contacting Dr. Dobbs' nurse, a, ext. 1273.

HTH,

> > > > > >

> > > > > > I just wanted to update everyone that I did hear back

from Dr.

> > > > > Ponseti this

> > > > > > morning. He has requested that I send him photos of

Dino's feet

> > > > > and then he

> > > > > > can tell us what course of action to take next.

> > > > > > Thank you so much again!

> > > > >

> > > > >