Re: Saw a 16 month boy with severe plagio/brachy today at the park

[Guest guest]

Yeah, I agree. You did a great thing in educating and calling attention but

past this, I don't really think there's a place for any more discussion.

Honestly, when we were thinking of a helmet for our daughter, SO many people

kept saying it 'wasn't so bad' or 'it's normal and will round out' and the like.

It's subjective and people (esp us parents) see what we want to see.

Maybe your honest and appropriate discussion prompts research and questions on

her end, but I think you've done your job.

>

> I'm just over the hill from you in Woodland Hills! :-) I used to live

> in SM!

>

> I have had resistance and even balking from moms when mentioning it...

> there is really not much else you can do. You spoke up and hopefully

> it will give her pause to think about it.

> My 7 year old has a kid in his class that has REALLY BAD plagio. It's

> one of those things where I knew there was something " wrong " with him

> as is facial features were " off " ... then he got his hair buzzed and

> that is when I saw why his features were off. His head was completely

> flat on one side from the midline back of his skull to his ear...

> almost concave. I felt awful for the boy! But at 6 years old, not

> much to do about it.

>

> You spoke up - be proud!

>

>

> Jen

> Mom to Luli - 4 yrs old

> Torticollis, Plagio, Syringomyelia

>

> Saw a 16 month boy with severe plagio/brachy today at

> the park

>

>

>

>

>

> Hi,

>

> I saw a 16 month old boy with severe plagio/brachy at the park today in

> Santa , CA. It was the worst case I have ever seen in person.

> It was sad because he was such a good-looking little boy.

>

> I spoke to the mother about my twins and how successful their helmets

> had been, and said that her child reminded me of them before treatment.

> The atmosphere turned so cold I almost needed a sweater! She was very

> very cold and resistant. She said, " The pediatrician never said

> anything " . I said, " They usually don't! " She wasn't rude but

> obviously did NOT want to hear what I was saying and probably won't do

> anything about it.

>

> If my kid was 10 mm plagio, hers had to be 30mm or more. If my kid was

> 96 percent brachy, hers has to be 102 or more. His ears were about 1-2

> inches off! I just couldn't believe she hadn't noticed and I wished

> there were something else I could have said or done to help her baby.

>

> Anyone else ever have that experience? I might see her again at this

> park and I hope there is some way I can help. At 16 months she doesn't

> have much time.

>

> How much time does she have to pursue treatment?

>

>

>