Re: Expecting baby w/bilateral club feet - Help/Advice Please Cleveland, Ohio

[Guest guest]

Lori-

welcome to the group and congratulations on the upcoming birth of

baby number 3!! Our first son was born with bilateral clubfeet and

it was a complete surprise to us! I am currently pregnant with

number 2 and have received 2 extra u/s to rule out clubfeet and any

other anomalies as my son was also affected with/by amniotic bands.

With regards to doctors in the cleveland area-there is one doctor

listed on ponseti's list of " trained " physicians in the method. This

means that they went to Dr Ponseti, received hands on training from

him, as well as submitted case studies to verify their success.

Here is the contact information:

G. Armstrong, MD

Department of Orthopaedics

Rainbow Babies & Children's Hospital

11100 Euclid Avenue

Cleveland, OH 44106

Tel:

I got this information off of Dr Ponseti's own website which is very

helpful. Feel free to look in the links section of this group as it

has very helpful websites. I am sure more moms and dads will pipe in

and welcome you to this group. Don't worry-you are not alone!!!

Again, welcome to the group.

PS-my little man is 21 mo old and is a crazy and rambunctious

toddler who loves to run!!

Kathleen

mom to david bcf fab 12/7

and baby girl edd 9/1/06

>

> Hi,

>

> I just came across this website while researching club feet and

> thought what a great resource.

> I am a mom of 2 and expecting number 3 in October. After a

detailed

> ultrasound (because I am " high risk " - aka 35 years old) we were

> told that the baby has bilateral clubbed feet (talipes

> equinovarus).

> The ultrasound did not show anything else was wrong and we did

have

> the quad screen (blood work) done and those results all came back

> ok. I was just wondering if anyone else has been through this and

> there was actually other medical conditions discovered once the

baby

> was born (besides the clubbed feet). I know clubbed feet can be

> linked to other conditions.

>

> I am grateful that we have some time to prepare and find the best

> doctor and that leads me to my next question - Can anyone

recommend

> the BEST doctor in the Cleveland, Ohio area? I don't know if

> treatment is different based on the severity of the condition but

I

> would really prefer the non-surgery method (Ponseti) at least to

> start. My peditrician did give me a couple names of orthopedic

> ped's but I would also like to hear from parents who have been

> through this and their opinion/advice.

>

> I'm sure I will be visiting this site often - I'm going to need

some

> tips on the basics - caring for a baby with casts/braces

(dressing,

> bathing, etc.)

>

> Any help/advice would be soooooo much appreciated!

>

> Thank you all!

>

> Lori

>

[Guest guest]

Lori~ Welcome to the group and congratulations! My son was born with a few

other issues that were discovered after birth, but there were a few things they

saw on u/s that tipped them off to this being a possibility. There are a few

other moms on here who have kids born with other issues, but for the most part,

clubfeet is all!

As for doctors, we live in Indiana, and go to a doctor is Cinncinnati that has

been certified for awhile. I know that is a long drive, but you are in luck.

There is now a doctor in Cleveland, who was added to the list sometime in the

last year, so a little newer but certified all the same. The information and

website for other information is below.

G. Armstrong, MD

Department of Orthopaedics

Rainbow Babies & Children's Hospital

11100 Euclid Avenue

Cleveland, OH 44106

Tel:

Diane VonStein, MD

Cincinnati Children's Hospital Medical Center

MLC 2017

3333 Burnet Avenue

Cincinnati, OH 45229-3039

Tel:

Diane.VonStein@...

http://www.uihealthcare.com/topics/medicaldepartments/orthopaedics/clubfeet/inde\

x.html

HTH,

11/19/04 bcf

lori371cf wrote:

Hi,

I just came across this website while researching club feet and

thought what a great resource.

I am a mom of 2 and expecting number 3 in October. After a detailed

ultrasound (because I am " high risk " - aka 35 years old) we were

told that the baby has bilateral clubbed feet (talipes

equinovarus).

The ultrasound did not show anything else was wrong and we did have

the quad screen (blood work) done and those results all came back

ok. I was just wondering if anyone else has been through this and

there was actually other medical conditions discovered once the baby

was born (besides the clubbed feet). I know clubbed feet can be

linked to other conditions.

I am grateful that we have some time to prepare and find the best

doctor and that leads me to my next question - Can anyone recommend

the BEST doctor in the Cleveland, Ohio area? I don't know if

treatment is different based on the severity of the condition but I

would really prefer the non-surgery method (Ponseti) at least to

start. My peditrician did give me a couple names of orthopedic

ped's but I would also like to hear from parents who have been

through this and their opinion/advice.

I'm sure I will be visiting this site often - I'm going to need some

tips on the basics - caring for a baby with casts/braces (dressing,

bathing, etc.)

Any help/advice would be soooooo much appreciated!

Thank you all!

Lori

[Guest guest]

Hi Lori,

Welcome to the group!

> I am a mom of 2 and expecting number 3 in October.

> After a detailed ultrasound (because I am " high

> risk " - aka 35 years old) we were told that the

> baby has bilateral clubbed feet (talipes

> equinovarus).

Funny, I was 36 at the time and was told that these

days it's not considered high risk any more, not even

for a first baby...

> I was just wondering if anyone else has been

> through this and there was actually other medical

> conditions discovered once the baby was born

> (besides the clubbed feet). I know clubbed

> feet can be linked to other conditions.

I also found out about the clubfoot at the scan and

was told that it is rarely associated with a hip

problem (they scanned for that after birth, and there

was no problem) and even rarer with anything else.

> I don't know if treatment is different based on the

> severity of the condition but I would really prefer

> the non-surgery method (Ponseti) at least to

> start.

I can't recommend a doctor since I'm in the UK but I

can definitely recommend the Ponseti method to you!

It can be used regardless of severity, my son was a

5.5 out of 6 in severity for instance and it worked a

treat. He had 7 weekly casts, the tenotomy (tiny

incision in the heel), and is still wearing the DBB

(two shoes connected by a bar). He runs and jumps

just like his twin, no problems at all.

All the best,

with (3.5y)

and Alister (3.5y, right CF, Ponseti method, UK)

Send instant messages to your online friends http://uk.messenger.yahoo.com

[Guest guest]

Welcome to our list and congratulations on your 3rd baby. I have been a member

of this list for almost two years and the majority of parents that I have

encountered have babies with clubfoot without any other problems. My

daughter's clubfoot was also diagnosed on ultrasound and there were no other

problems other than her clubfoot.

Accordiing to Dr. Ponseti's list of qualified doctors there is one in

Cleveland. His information is :

G. Armstrong, MD

Department of Orthopedics

Rainbow Babies and Childrens Hospital

11100 Euclid Avenue

Cleveland, OH 44106

I do not recall who it was but I believe someone on here previously had a

positive experience with this Doctor but I don't know much more about him than

that. I think the statistic is now that about 95-98% of all clubfoot babies

can be corrected with the Ponseti method when performed correctly. We live in

Dayton, Ohio and my daughter sees Dr. Diane Von Stein in Cincinnati. My

greatest advice is to do all of your homework and never, never be afraid to

question treatment if necessary and to be a bold advocate for your child. They

have no input in all of this treatment stuff but as parents, you know and love

your child better than anyone. I am glad that you found this list. You will

find a wealth of information and support from many parents that have been down

this path before. My daughter is now 2 1/2 and after one unsuccessful

non-Ponseti round of treatment and the ponseti method treatment, her foot is

beautiful. You would never know that it had

previously had any problems.

Jenni

lori371cf wrote:

Hi,

I just came across this website while researching club feet and

thought what a great resource.

I am a mom of 2 and expecting number 3 in October. After a detailed

ultrasound (because I am " high risk " - aka 35 years old) we were

told that the baby has bilateral clubbed feet (talipes

equinovarus).

The ultrasound did not show anything else was wrong and we did have

the quad screen (blood work) done and those results all came back

ok. I was just wondering if anyone else has been through this and

there was actually other medical conditions discovered once the baby

was born (besides the clubbed feet). I know clubbed feet can be

linked to other conditions.

I am grateful that we have some time to prepare and find the best

doctor and that leads me to my next question - Can anyone recommend

the BEST doctor in the Cleveland, Ohio area? I don't know if

treatment is different based on the severity of the condition but I

would really prefer the non-surgery method (Ponseti) at least to

start. My peditrician did give me a couple names of orthopedic

ped's but I would also like to hear from parents who have been

through this and their opinion/advice.

I'm sure I will be visiting this site often - I'm going to need some

tips on the basics - caring for a baby with casts/braces (dressing,

bathing, etc.)

Any help/advice would be soooooo much appreciated!

Thank you all!

Lori

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in FAB nights only for

left clubfoot.

__________________________________________________

[Guest guest]

Hi Jenni,

Thank you so much for writing me back. I so am glad to hear about the success

you have had with your daughter.

Can you tell me where you found that information regarding Dr. Armstrong?

Also, have you ever contacted Dr. Ponseti directly?

I was also wondering if there are different " degress " of club feet? Is your

daughter still wearing the brace? If so, how long does she wear it each day?

Thank you, thank you, thank you again for writing me - I really appreciate all

your help!

Lori

Jenni Cypher wrote:

Welcome to our list and congratulations on your 3rd baby. I have been

a member of this list for almost two years and the majority of parents that I

have encountered have babies with clubfoot without any other problems. My

daughter's clubfoot was also diagnosed on ultrasound and there were no other

problems other than her clubfoot.

Accordiing to Dr. Ponseti's list of qualified doctors there is one in Cleveland.

His information is :

G. Armstrong, MD

Department of Orthopedics

Rainbow Babies and Childrens Hospital

11100 Euclid Avenue

Cleveland, OH 44106

I do not recall who it was but I believe someone on here previously had a

positive experience with this Doctor but I don't know much more about him than

that. I think the statistic is now that about 95-98% of all clubfoot babies can

be corrected with the Ponseti method when performed correctly. We live in

Dayton, Ohio and my daughter sees Dr. Diane Von Stein in Cincinnati. My greatest

advice is to do all of your homework and never, never be afraid to question

treatment if necessary and to be a bold advocate for your child. They have no

input in all of this treatment stuff but as parents, you know and love your

child better than anyone. I am glad that you found this list. You will find a

wealth of information and support from many parents that have been down this

path before. My daughter is now 2 1/2 and after one unsuccessful non-Ponseti

round of treatment and the ponseti method treatment, her foot is beautiful. You

would never know that it had

previously had any problems.

Jenni

lori371cf wrote: Hi,

I just came across this website while researching club feet and

thought what a great resource.

I am a mom of 2 and expecting number 3 in October. After a detailed

ultrasound (because I am " high risk " - aka 35 years old) we were

told that the baby has bilateral clubbed feet (talipes

equinovarus).

The ultrasound did not show anything else was wrong and we did have

the quad screen (blood work) done and those results all came back

ok. I was just wondering if anyone else has been through this and

there was actually other medical conditions discovered once the baby

was born (besides the clubbed feet). I know clubbed feet can be

linked to other conditions.

I am grateful that we have some time to prepare and find the best

doctor and that leads me to my next question - Can anyone recommend

the BEST doctor in the Cleveland, Ohio area? I don't know if

treatment is different based on the severity of the condition but I

would really prefer the non-surgery method (Ponseti) at least to

start. My peditrician did give me a couple names of orthopedic

ped's but I would also like to hear from parents who have been

through this and their opinion/advice.

I'm sure I will be visiting this site often - I'm going to need some

tips on the basics - caring for a baby with casts/braces (dressing,

bathing, etc.)

Any help/advice would be soooooo much appreciated!

Thank you all!

Lori

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in FAB nights only for

left clubfoot.

__________________________________________________

[Guest guest]

Lori,

It is wonderful that you have time to research and such before your baby

comes. The Ponseti method is effective with all types of club feet,

mild to severe. When it is done right, the most beautiful feet emerge.

Club feet don't seem to slow these babies down at all.

A bit of advice as you get ready for this baby. Take lots of picture of

feet, before casting, during casting, after casting. You will want

them. I kick myself because I don't have a single picture of Tenny's

foot before we started casting. It was a surprise for us and we never

thought of taking a picture. I do have lots of picture of the later

part. Take picture and love your baby lots before the casts go on.

Good luck with three. You will be an even busier mama. Busy, but a

good kind of busy.

Mom to Tenny rt. cf. FAB 14/7

And the other small mammals I am curator of... I believe they are

monkeys today, or maybe hyenas.

Expecting baby w/bilateral club feet -

Help/Advice Please Cleveland, Ohio

Hi,

I just came across this website while researching club feet and

thought what a great resource.

I am a mom of 2 and expecting number 3 in October. After a detailed

ultrasound (because I am " high risk " - aka 35 years old) we were

told that the baby has bilateral clubbed feet (talipes

equinovarus).

The ultrasound did not show anything else was wrong and we did have

the quad screen (blood work) done and those results all came back

ok. I was just wondering if anyone else has been through this and

there was actually other medical conditions discovered once the baby

was born (besides the clubbed feet). I know clubbed feet can be

linked to other conditions.

I am grateful that we have some time to prepare and find the best

doctor and that leads me to my next question - Can anyone recommend

the BEST doctor in the Cleveland, Ohio area? I don't know if

treatment is different based on the severity of the condition but I

would really prefer the non-surgery method (Ponseti) at least to

start. My peditrician did give me a couple names of orthopedic

ped's but I would also like to hear from parents who have been

through this and their opinion/advice.

I'm sure I will be visiting this site often - I'm going to need some

tips on the basics - caring for a baby with casts/braces (dressing,

bathing, etc.)

Any help/advice would be soooooo much appreciated!

Thank you all!

Lori

[Guest guest]

On this group's main page, there is a off to the side, click on links. Scroll

down a little and there is a link to Dr. Ponseti's web site.

There are different severities of clubfoot. Some milder ones which do not

require the tenotomy procedure and some cases of complex/atypical clubfoot

which require more skillful hands. I have corresponded with Dr. Ponseti via

email before regarding questions I had since Kelsey was beginning treatment at

an older age. He is excellent about answering questions etc although some time

it may take a little while as he gets correspondence from people worldwide.

Kelsey has a unilateral left clubfoot. She did require the tenotomy procedure

and at 2 1/2, she now wears her brace 12 hours daily which is basically when

she sleeps at night. It has been a tremendous success for us. You can feel

free to email me directly any time you have a question. Also, I know we are

not on the same sides of the state, I would be happy to set up a get together

sometime at a halfway point if you want any in person support or to take a look

at Kelsey's foot for your self.

Jenni

Lori Pascarella wrote:

Hi Jenni,

Thank you so much for writing me back. I so am glad to hear about the

success you have had with your daughter.

Can you tell me where you found that information regarding Dr. Armstrong?

Also, have you ever contacted Dr. Ponseti directly?

I was also wondering if there are different " degress " of club feet? Is your

daughter still wearing the brace? If so, how long does she wear it each day?

Thank you, thank you, thank you again for writing me - I really appreciate

all your help!

Lori

Jenni Cypher wrote:

Welcome to our list and congratulations on your 3rd baby. I have been a

member of this list for almost two years and the majority of parents that I

have encountered have babies with clubfoot without any other problems. My

daughter's clubfoot was also diagnosed on ultrasound and there were no other

problems other than her clubfoot.

Accordiing to Dr. Ponseti's list of qualified doctors there is one in

Cleveland. His information is :

G. Armstrong, MD

Department of Orthopedics

Rainbow Babies and Childrens Hospital

11100 Euclid Avenue

Cleveland, OH 44106

I do not recall who it was but I believe someone on here previously had a

positive experience with this Doctor but I don't know much more about him than

that. I think the statistic is now that about 95-98% of all clubfoot babies can

be corrected with the Ponseti method when performed correctly. We live in

Dayton, Ohio and my daughter sees Dr. Diane Von Stein in Cincinnati. My

greatest advice is to do all of your homework and never, never be afraid to

question treatment if necessary and to be a bold advocate for your child. They

have no input in all of this treatment stuff but as parents, you know and love

your child better than anyone. I am glad that you found this list. You will

find a wealth of information and support from many parents that have been down

this path before. My daughter is now 2 1/2 and after one unsuccessful

non-Ponseti round of treatment and the ponseti method treatment, her foot is

beautiful. You would never know that it had

previously had any problems.

Jenni

lori371cf wrote: Hi,

I just came across this website while researching club feet and

thought what a great resource.

I am a mom of 2 and expecting number 3 in October. After a detailed

ultrasound (because I am " high risk " - aka 35 years old) we were

told that the baby has bilateral clubbed feet (talipes

equinovarus).

The ultrasound did not show anything else was wrong and we did have

the quad screen (blood work) done and those results all came back

ok. I was just wondering if anyone else has been through this and

there was actually other medical conditions discovered once the baby

was born (besides the clubbed feet). I know clubbed feet can be

linked to other conditions.

I am grateful that we have some time to prepare and find the best

doctor and that leads me to my next question - Can anyone recommend

the BEST doctor in the Cleveland, Ohio area? I don't know if

treatment is different based on the severity of the condition but I

would really prefer the non-surgery method (Ponseti) at least to

start. My peditrician did give me a couple names of orthopedic

ped's but I would also like to hear from parents who have been

through this and their opinion/advice.

I'm sure I will be visiting this site often - I'm going to need some

tips on the basics - caring for a baby with casts/braces (dressing,

bathing, etc.)

Any help/advice would be soooooo much appreciated!

Thank you all!

Lori

Jenni-

Mom to (10/31/01) and Kelsey (11/7/03)happy girl in FAB nights only for

left clubfoot.

__________________________________________________

[Guest guest]

Thank you for your response - I really appreciate it. I can't begin to

tell you how grateful I am for this board. I'm lucky to have some time to

prepare because I know I would be overwhelmed if I were to hear of the condition

at birth. I like to know as much as possible and get as much advice as I can!

Again thank you and good luck with . I read your other message and it

sounds like keeps you quite busy. You will be in my thoughts and thank

you again for taking the time to write me.

Lori

JGOODIN wrote:

Lori~ Welcome to the group and congratulations! My son was born with a

few other issues that were discovered after birth, but there were a few things

they saw on u/s that tipped them off to this being a possibility. There are a

few other moms on here who have kids born with other issues, but for the most

part, clubfeet is all!

As for doctors, we live in Indiana, and go to a doctor is Cinncinnati that has

been certified for awhile. I know that is a long drive, but you are in luck.

There is now a doctor in Cleveland, who was added to the list sometime in the

last year, so a little newer but certified all the same. The information and

website for other information is below.

G. Armstrong, MD

Department of Orthopaedics

Rainbow Babies & Children's Hospital

11100 Euclid Avenue

Cleveland, OH 44106

Tel:

Diane VonStein, MD

Cincinnati Children's Hospital Medical Center

MLC 2017

3333 Burnet Avenue

Cincinnati, OH 45229-3039

Tel:

Diane.VonStein@...

http://www.uihealthcare.com/topics/medicaldepartments/orthopaedics/clubfeet/inde\

x.html

HTH,

11/19/04 bcf

lori371cf wrote:

Hi,

I just came across this website while researching club feet and

thought what a great resource.

I am a mom of 2 and expecting number 3 in October. After a detailed

ultrasound (because I am " high risk " - aka 35 years old) we were

told that the baby has bilateral clubbed feet (talipes

equinovarus).

The ultrasound did not show anything else was wrong and we did have

the quad screen (blood work) done and those results all came back

ok. I was just wondering if anyone else has been through this and

there was actually other medical conditions discovered once the baby

was born (besides the clubbed feet). I know clubbed feet can be

linked to other conditions.

I am grateful that we have some time to prepare and find the best

doctor and that leads me to my next question - Can anyone recommend

the BEST doctor in the Cleveland, Ohio area? I don't know if

treatment is different based on the severity of the condition but I

would really prefer the non-surgery method (Ponseti) at least to

start. My peditrician did give me a couple names of orthopedic

ped's but I would also like to hear from parents who have been

through this and their opinion/advice.

I'm sure I will be visiting this site often - I'm going to need some

tips on the basics - caring for a baby with casts/braces (dressing,

bathing, etc.)

Any help/advice would be soooooo much appreciated!

Thank you all!

Lori

[Guest guest]

,

Thank you for the advice - I was just thinking about pictures today - funny

you mentioned that. My digital camera broke - I think it's time to invest in a

new one - otherwise everyone should invest in Kodak film because I'm sure I'll

go through hundreds of rolls

Thank you for taking the time to write, I appreciate everyone's thoughts and

comments. I don't know anyone who has a child with club feet so I am grateful

for finding this message board!

I'm sure I will be looking for alot more advice once the baby is born.

Thank you again,

Lori

jngrush wrote:

Lori,

It is wonderful that you have time to research and such before your baby

comes. The Ponseti method is effective with all types of club feet,

mild to severe. When it is done right, the most beautiful feet emerge.

Club feet don't seem to slow these babies down at all.

A bit of advice as you get ready for this baby. Take lots of picture of

feet, before casting, during casting, after casting. You will want

them. I kick myself because I don't have a single picture of Tenny's

foot before we started casting. It was a surprise for us and we never

thought of taking a picture. I do have lots of picture of the later

part. Take picture and love your baby lots before the casts go on.

Good luck with three. You will be an even busier mama. Busy, but a

good kind of busy.

Mom to Tenny rt. cf. FAB 14/7

And the other small mammals I am curator of... I believe they are

monkeys today, or maybe hyenas.

Expecting baby w/bilateral club feet -

Help/Advice Please Cleveland, Ohio

Hi,

I just came across this website while researching club feet and

thought what a great resource.

I am a mom of 2 and expecting number 3 in October. After a detailed

ultrasound (because I am " high risk " - aka 35 years old) we were

told that the baby has bilateral clubbed feet (talipes

equinovarus).

The ultrasound did not show anything else was wrong and we did have

the quad screen (blood work) done and those results all came back

ok. I was just wondering if anyone else has been through this and

there was actually other medical conditions discovered once the baby

was born (besides the clubbed feet). I know clubbed feet can be

linked to other conditions.

I am grateful that we have some time to prepare and find the best

doctor and that leads me to my next question - Can anyone recommend

the BEST doctor in the Cleveland, Ohio area? I don't know if

treatment is different based on the severity of the condition but I

would really prefer the non-surgery method (Ponseti) at least to

start. My peditrician did give me a couple names of orthopedic

ped's but I would also like to hear from parents who have been

through this and their opinion/advice.

I'm sure I will be visiting this site often - I'm going to need some

tips on the basics - caring for a baby with casts/braces (dressing,

bathing, etc.)

Any help/advice would be soooooo much appreciated!

Thank you all!

Lori

[Guest guest]

Hehehe Nat, you are so funny.............. just so you know Lori,

has 3 monkey's and 3 hyena's....yep that's 6!!!

Lori, welcome to our group and congrat's on the 3rd babe!

Ponseti treatment is the way to go and as long as you have a good

Ponseti trained doctor, that is all the treatment your child will

need! The more research you do the more you will come to realise just

how vastly different Ponseti treatment / surgical treatment outcomes

are. I cannot tell you how thrilled I am with my daughters foot, she

has unilateral right club foot. She was rated a 5 out of 6 (Dr.

Pirani's scale...he is also her treating ortho ) and had 4 casts to

bring her to full correction!! She didn't end up needing the

tenotomy, she fell into that small %age that didn't. I feel that

because we have such a great Ponseti doc....and casting went so well,

that's why she didn't end up needing it. If she had of, I would have

been totally fine with it. In fact I was worried about him not

performing it at the time. Gracies cf was undiagnosed so it was all a

kind of whirl wind at the time, thank goodness for this group!

Definately check out the files and links section here, such a wealth

of information!!!

Really glad that you found us You will find this group a great

source of information and support and much needed laughs!

Smiles,

& Grace 23mos

unilateral right club foot FAB 12-14hrs

Vancouver BC Canada

>

> Lori,

>

> It is wonderful that you have time to research and such before your

baby

> comes. The Ponseti method is effective with all types of club feet,

> mild to severe. When it is done right, the most beautiful feet

emerge.

> Club feet don't seem to slow these babies down at all.

>

> A bit of advice as you get ready for this baby. Take lots of

picture of

> feet, before casting, during casting, after casting. You will want

> them. I kick myself because I don't have a single picture of

Tenny's

> foot before we started casting. It was a surprise for us and we

never

> thought of taking a picture. I do have lots of picture of the later

> part. Take picture and love your baby lots before the casts go

on.

>

> Good luck with three. You will be an even busier mama. Busy, but a

> good kind of busy.

>

>

> Mom to Tenny rt. cf. FAB 14/7

> And the other small mammals I am curator of... I believe they are

> monkeys today, or maybe hyenas.

>

> Expecting baby w/bilateral club feet -

> Help/Advice Please Cleveland, Ohio

>

> Hi,

>

> I just came across this website while researching club feet and

> thought what a great resource.

> I am a mom of 2 and expecting number 3 in October. After a detailed

> ultrasound (because I am " high risk " - aka 35 years old) we were

> told that the baby has bilateral clubbed feet (talipes

> equinovarus).

> The ultrasound did not show anything else was wrong and we did have

> the quad screen (blood work) done and those results all came back

> ok. I was just wondering if anyone else has been through this and

> there was actually other medical conditions discovered once the

baby

> was born (besides the clubbed feet). I know clubbed feet can be

> linked to other conditions.

>

> I am grateful that we have some time to prepare and find the best

> doctor and that leads me to my next question - Can anyone recommend

> the BEST doctor in the Cleveland, Ohio area? I don't know if

> treatment is different based on the severity of the condition but I

> would really prefer the non-surgery method (Ponseti) at least to

> start. My peditrician did give me a couple names of orthopedic

> ped's but I would also like to hear from parents who have been

> through this and their opinion/advice.

>

> I'm sure I will be visiting this site often - I'm going to need

some

> tips on the basics - caring for a baby with casts/braces (dressing,

> bathing, etc.)

>

> Any help/advice would be soooooo much appreciated!

>

> Thank you all!

>

> Lori

>

>

>

>

[Guest guest]

Hi - thank you for responding. I find myself checking this board all

day long! I'm glad I have the time now because I'm sure number 3 will keep me

busy! Not to mention the other two - my oldest ( - girl) will be 4 in

September and my son (Luke) will be 2 in August.

3 Monkey & 3 Hyena's - really?

Thank you again for your thoughts/advice!

Lori

wrote:

Hehehe Nat, you are so funny.............. just so you know Lori,

has 3 monkey's and 3 hyena's....yep that's 6!!!

Lori, welcome to our group and congrat's on the 3rd babe!

Ponseti treatment is the way to go and as long as you have a good

Ponseti trained doctor, that is all the treatment your child will

need! The more research you do the more you will come to realise just

how vastly different Ponseti treatment / surgical treatment outcomes

are. I cannot tell you how thrilled I am with my daughters foot, she

has unilateral right club foot. She was rated a 5 out of 6 (Dr.

Pirani's scale...he is also her treating ortho ) and had 4 casts to

bring her to full correction!! She didn't end up needing the

tenotomy, she fell into that small %age that didn't. I feel that

because we have such a great Ponseti doc....and casting went so well,

that's why she didn't end up needing it. If she had of, I would have

been totally fine with it. In fact I was worried about him not

performing it at the time. Gracies cf was undiagnosed so it was all a

kind of whirl wind at the time, thank goodness for this group!

Definately check out the files and links section here, such a wealth

of information!!!

Really glad that you found us You will find this group a great

source of information and support and much needed laughs!

Smiles,

& Grace 23mos

unilateral right club foot FAB 12-14hrs

Vancouver BC Canada

>

> Lori,

>

> It is wonderful that you have time to research and such before your

baby

> comes. The Ponseti method is effective with all types of club feet,

> mild to severe. When it is done right, the most beautiful feet

emerge.

> Club feet don't seem to slow these babies down at all.

>

> A bit of advice as you get ready for this baby. Take lots of

picture of

> feet, before casting, during casting, after casting. You will want

> them. I kick myself because I don't have a single picture of

Tenny's

> foot before we started casting. It was a surprise for us and we

never

> thought of taking a picture. I do have lots of picture of the later

> part. Take picture and love your baby lots before the casts go

on.

>

> Good luck with three. You will be an even busier mama. Busy, but a

> good kind of busy.

>

>

> Mom to Tenny rt. cf. FAB 14/7

> And the other small mammals I am curator of... I believe they are

> monkeys today, or maybe hyenas.

>

> Expecting baby w/bilateral club feet -

> Help/Advice Please Cleveland, Ohio

>

> Hi,

>

> I just came across this website while researching club feet and

> thought what a great resource.

> I am a mom of 2 and expecting number 3 in October. After a detailed

> ultrasound (because I am " high risk " - aka 35 years old) we were

> told that the baby has bilateral clubbed feet (talipes

> equinovarus).

> The ultrasound did not show anything else was wrong and we did have

> the quad screen (blood work) done and those results all came back

> ok. I was just wondering if anyone else has been through this and

> there was actually other medical conditions discovered once the

baby

> was born (besides the clubbed feet). I know clubbed feet can be

> linked to other conditions.

>

> I am grateful that we have some time to prepare and find the best

> doctor and that leads me to my next question - Can anyone recommend

> the BEST doctor in the Cleveland, Ohio area? I don't know if

> treatment is different based on the severity of the condition but I

> would really prefer the non-surgery method (Ponseti) at least to

> start. My peditrician did give me a couple names of orthopedic

> ped's but I would also like to hear from parents who have been

> through this and their opinion/advice.

>

> I'm sure I will be visiting this site often - I'm going to need

some

> tips on the basics - caring for a baby with casts/braces (dressing,

> bathing, etc.)

>

> Any help/advice would be soooooo much appreciated!

>

> Thank you all!

>

> Lori

>

>

>

>

[Guest guest]

Hi !

Thanks for the warm welcome. How many hours a day does your son wear the

brace? Did he begin treatment right away after his birth? I love the name

Alister too - we are have been pondering a name - I'll bring that up to my

husband. We have a girl () and my son is Luke. My Nana is Welsh and said

MORGAN is a boys name - she got over it though!

Thanks again for your time!

Lori

wrote:

Hi Lori,

Welcome to the group!

> I am a mom of 2 and expecting number 3 in October.

> After a detailed ultrasound (because I am " high

> risk " - aka 35 years old) we were told that the

> baby has bilateral clubbed feet (talipes

> equinovarus).

Funny, I was 36 at the time and was told that these

days it's not considered high risk any more, not even

for a first baby...

> I was just wondering if anyone else has been

> through this and there was actually other medical

> conditions discovered once the baby was born

> (besides the clubbed feet). I know clubbed

> feet can be linked to other conditions.

I also found out about the clubfoot at the scan and

was told that it is rarely associated with a hip

problem (they scanned for that after birth, and there

was no problem) and even rarer with anything else.

> I don't know if treatment is different based on the

> severity of the condition but I would really prefer

> the non-surgery method (Ponseti) at least to

> start.

I can't recommend a doctor since I'm in the UK but I

can definitely recommend the Ponseti method to you!

It can be used regardless of severity, my son was a

5.5 out of 6 in severity for instance and it worked a

treat. He had 7 weekly casts, the tenotomy (tiny

incision in the heel), and is still wearing the DBB

(two shoes connected by a bar). He runs and jumps

just like his twin, no problems at all.

All the best,

with (3.5y)

and Alister (3.5y, right CF, Ponseti method, UK)

Send instant messages to your online friends http://uk.messenger.yahoo.com

__________________________________________________

[Guest guest]

Hi Kathleen,

Congrats to you too on baby #2! I'm glad to hear your pregnancy is going

well!

I will definately check out the links.

I left a message for that Dr. Armstrong in cleveland. I talked to the

secretary (I guess) and told her I would like to set up a meeting before the

baby is born. She acted like that was some weird request. I just want to get

some questions answered and get a feel for this doctor. Am I crazy - if you do

know before hand wouldn't you want to meet with the doctor first? Well I'll

just keep on pestering them till he gets back to me

Thanks again for your thoughts and good luck with the rest of your pregnancy!

Lori

leenernd wrote:

Lori-

welcome to the group and congratulations on the upcoming birth of

baby number 3!! Our first son was born with bilateral clubfeet and

it was a complete surprise to us! I am currently pregnant with

number 2 and have received 2 extra u/s to rule out clubfeet and any

other anomalies as my son was also affected with/by amniotic bands.

With regards to doctors in the cleveland area-there is one doctor

listed on ponseti's list of " trained " physicians in the method. This

means that they went to Dr Ponseti, received hands on training from

him, as well as submitted case studies to verify their success.

Here is the contact information:

G. Armstrong, MD

Department of Orthopaedics

Rainbow Babies & Children's Hospital

11100 Euclid Avenue

Cleveland, OH 44106

Tel:

I got this information off of Dr Ponseti's own website which is very

helpful. Feel free to look in the links section of this group as it

has very helpful websites. I am sure more moms and dads will pipe in

and welcome you to this group. Don't worry-you are not alone!!!

Again, welcome to the group.

PS-my little man is 21 mo old and is a crazy and rambunctious

toddler who loves to run!!

Kathleen

mom to david bcf fab 12/7

and baby girl edd 9/1/06

>

> Hi,

>

> I just came across this website while researching club feet and

> thought what a great resource.

> I am a mom of 2 and expecting number 3 in October. After a

detailed

> ultrasound (because I am " high risk " - aka 35 years old) we were

> told that the baby has bilateral clubbed feet (talipes

> equinovarus).

> The ultrasound did not show anything else was wrong and we did

have

> the quad screen (blood work) done and those results all came back

> ok. I was just wondering if anyone else has been through this and

> there was actually other medical conditions discovered once the

baby

> was born (besides the clubbed feet). I know clubbed feet can be

> linked to other conditions.

>

> I am grateful that we have some time to prepare and find the best

> doctor and that leads me to my next question - Can anyone

recommend

> the BEST doctor in the Cleveland, Ohio area? I don't know if

> treatment is different based on the severity of the condition but

I

> would really prefer the non-surgery method (Ponseti) at least to

> start. My peditrician did give me a couple names of orthopedic

> ped's but I would also like to hear from parents who have been

> through this and their opinion/advice.

>

> I'm sure I will be visiting this site often - I'm going to need

some

> tips on the basics - caring for a baby with casts/braces

(dressing,

> bathing, etc.)

>

> Any help/advice would be soooooo much appreciated!

>

> Thank you all!

>

> Lori

>

__________________________________________________

[Guest guest]

Lori,

That is not weird at all. I think a lot of people who knew about the

clubfeet prior to birth had pre-natal consults with the Ortho, whether

they were interviewing a few to find the best doc, or just to get a

feel for the doctor and his office.

If they don't get back to you I would try to get ahold of his nurse

directly -- she should understand and be able to schedule you an

appointment without a problem.

Good Luck!

> >

> > Hi,

> >

> > I just came across this website while researching club feet and

> > thought what a great resource.

> > I am a mom of 2 and expecting number 3 in October. After a

> detailed

> > ultrasound (because I am " high risk " - aka 35 years old) we were

> > told that the baby has bilateral clubbed feet (talipes

> > equinovarus).

> > The ultrasound did not show anything else was wrong and we did

> have

> > the quad screen (blood work) done and those results all came back

> > ok. I was just wondering if anyone else has been through this and

> > there was actually other medical conditions discovered once the

> baby

> > was born (besides the clubbed feet). I know clubbed feet can be

> > linked to other conditions.

> >

> > I am grateful that we have some time to prepare and find the best

> > doctor and that leads me to my next question - Can anyone

> recommend

> > the BEST doctor in the Cleveland, Ohio area? I don't know if

> > treatment is different based on the severity of the condition but

> I

> > would really prefer the non-surgery method (Ponseti) at least to

> > start. My peditrician did give me a couple names of orthopedic

> > ped's but I would also like to hear from parents who have been

> > through this and their opinion/advice.

> >

> > I'm sure I will be visiting this site often - I'm going to need

> some

> > tips on the basics - caring for a baby with casts/braces

> (dressing,

> > bathing, etc.)

> >

> > Any help/advice would be soooooo much appreciated!

> >

> > Thank you all!

> >

> > Lori

> >

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Thanks - that's a great idea!

Lori

wrote:

Lori,

That is not weird at all. I think a lot of people who knew about the

clubfeet prior to birth had pre-natal consults with the Ortho, whether

they were interviewing a few to find the best doc, or just to get a

feel for the doctor and his office.

If they don't get back to you I would try to get ahold of his nurse

directly -- she should understand and be able to schedule you an

appointment without a problem.

Good Luck!

> >

> > Hi,

> >

> > I just came across this website while researching club feet and

> > thought what a great resource.

> > I am a mom of 2 and expecting number 3 in October. After a

> detailed

> > ultrasound (because I am " high risk " - aka 35 years old) we were

> > told that the baby has bilateral clubbed feet (talipes

> > equinovarus).

> > The ultrasound did not show anything else was wrong and we did

> have

> > the quad screen (blood work) done and those results all came back

> > ok. I was just wondering if anyone else has been through this and

> > there was actually other medical conditions discovered once the

> baby

> > was born (besides the clubbed feet). I know clubbed feet can be

> > linked to other conditions.

> >

> > I am grateful that we have some time to prepare and find the best

> > doctor and that leads me to my next question - Can anyone

> recommend

> > the BEST doctor in the Cleveland, Ohio area? I don't know if

> > treatment is different based on the severity of the condition but

> I

> > would really prefer the non-surgery method (Ponseti) at least to

> > start. My peditrician did give me a couple names of orthopedic

> > ped's but I would also like to hear from parents who have been

> > through this and their opinion/advice.

> >

> > I'm sure I will be visiting this site often - I'm going to need

> some

> > tips on the basics - caring for a baby with casts/braces

> (dressing,

> > bathing, etc.)

> >

> > Any help/advice would be soooooo much appreciated!

> >

> > Thank you all!

> >

> > Lori

> >

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Lots of people interview pediatricians before the baby is born so why not an

ortho doc? I think that most people just go with the luck of the draw and if

you are proactive, then you are considered " different " . More power to the

" different " parents out there who take charge of their child's medical treatment

and don't rely on the docs for everything! All the best to you,

Carol

Re: Re: Expecting baby w/bilateral club feet -

Help/Advice Please Cleveland, Ohio

Hi Kathleen,

Congrats to you too on baby #2! I'm glad to hear your pregnancy is going well!

I will definately check out the links.

I left a message for that Dr. Armstrong in cleveland. I talked to the

secretary (I guess) and told her I would like to set up a meeting before the

baby is born. She acted like that was some weird request. I just want to get

some questions answered and get a feel for this doctor. Am I crazy - if you do

know before hand wouldn't you want to meet with the doctor first? Well I'll just

keep on pestering them till he gets back to me

Thanks again for your thoughts and good luck with the rest of your pregnancy!

Lori

leenernd > wrote:

Lori-

welcome to the group and congratulations on the upcoming birth of

baby number 3!! Our first son was born with bilateral clubfeet and

it was a complete surprise to us! I am currently pregnant with

number 2 and have received 2 extra u/s to rule out clubfeet and any

other anomalies as my son was also affected with/by amniotic bands.

With regards to doctors in the cleveland area-there is one doctor

listed on ponseti's list of " trained " physicians in the method. This

means that they went to Dr Ponseti, received hands on training from

him, as well as submitted case studies to verify their success.

Here is the contact information:

G. Armstrong, MD

Department of Orthopaedics

Rainbow Babies & Children's Hospital

11100 Euclid Avenue

Cleveland, OH 44106

Tel:

I got this information off of Dr Ponseti's own website which is very

helpful. Feel free to look in the links section of this group as it

has very helpful websites. I am sure more moms and dads will pipe in

and welcome you to this group. Don't worry-you are not alone!!!

Again, welcome to the group.

PS-my little man is 21 mo old and is a crazy and rambunctious

toddler who loves to run!!

Kathleen

mom to david bcf fab 12/7

and baby girl edd 9/1/06

>

> Hi,

>

> I just came across this website while researching club feet and

> thought what a great resource.

> I am a mom of 2 and expecting number 3 in October. After a

detailed

> ultrasound (because I am " high risk " - aka 35 years old) we were

> told that the baby has bilateral clubbed feet (talipes

> equinovarus).

> The ultrasound did not show anything else was wrong and we did

have

> the quad screen (blood work) done and those results all came back

> ok. I was just wondering if anyone else has been through this and

> there was actually other medical conditions discovered once the

baby

> was born (besides the clubbed feet). I know clubbed feet can be

> linked to other conditions.

>

> I am grateful that we have some time to prepare and find the best

> doctor and that leads me to my next question - Can anyone

recommend

> the BEST doctor in the Cleveland, Ohio area? I don't know if

> treatment is different based on the severity of the condition but

I

> would really prefer the non-surgery method (Ponseti) at least to

> start. My peditrician did give me a couple names of orthopedic

> ped's but I would also like to hear from parents who have been

> through this and their opinion/advice.

>

> I'm sure I will be visiting this site often - I'm going to need

some

> tips on the basics - caring for a baby with casts/braces

(dressing,

> bathing, etc.)

>

> Any help/advice would be soooooo much appreciated!

>

> Thank you all!

>

> Lori

>

__________________________________________________

[Guest guest]

Hi Lori,

Sorry for the late reply, I simply can't keep up with

all the messages at the moment...

> How many hours a day does your son wear the brace?

My son is wearing the brace only at night which is

usually about 11 hours. He calls them his 'good night

shoes' and tells me he can't sleep without them.

> Did he begin treatment right away after his birth?

Almost, he was in the 'wrong' hospital straight after

birth, spent 3 weeks in NICU, and was treated with

strapping before getting proper Ponseti casts in our

local hospital.

> I love the name Alister too - we are have been

> pondering a name - I'll bring that up to my

> husband. We have a girl () and my son is

> Luke. My Nana is Welsh and said MORGAN is a boys

> name - she got over it though!

I know as both a boy's and girl's name, I like

it better for a girl though.

All the best,

with (3.5y)

and Alister (3.5y, right CF, Ponseti method, UK)

Send instant messages to your online friends http://uk.messenger.yahoo.com