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Fwd: Re: tube delima to chrissyl scroll down past my first message

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>

> ,

> My daughter Madison is 4 and 35 inches tall and only weighs 24 lbs

and they

> say she is severly under weight. She has a g-tube now and we are

waiting on

> word from the sergeon about placeing a J tube. She only gets

suplemental feeds

> over night but I'll be honest with you it's a big difference.

> Your child may need to come off the GHT thats what they had to do

with our

> Madison and as soon as they stopped that we begane to gain wait.

Have you ever

> met with Dr. Harbison? Thats who made the finale dicison for our

daughter and

> we were so upset and didn't want to put her through it but it was

the best

> thing we ever did.

> Hope this helps a little,

> Chrissy

> P.S

> Have you ever monitored Madison's sugar?/ That may be her problem

she may be

> having low sugars.

>

>

>

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