Shoes

[Guest guest]

Ouchy . Were you walking to fast in those heels or what?

Lori Owen - Denton, Texas

SRVG 7/16/01

Dr. Ritter/Dr. Bryce

479/356/hoping for close to 200

On Thu, 22 Jan 2004 20:15:07 -0500 Gigi1078@... writes:

> I understand the high heel thing really well now. Steve would prefer

> nothing but heels mosta of the time.. However, tonight, I broke a

> couple toes and everything hurts my foot.. even my socks..

> Peachy hugs,

>

[Guest guest]

,

I'm sorry you're having a problem with the Markell's. We've also had to do

countless repair jobs on our bar and shoes (welding the bar, adding on bits

to lengthen it, we use hoseclamps instead of the plastic grips which always

snap, longer laces, longer straps, the list goes on and on, ours look

nothing like the original!)

is also almost out of his size 4.5 (he's 3 and 2 months), and still no

sign of bigger shoes being available here either (in South Africa). The

local importer tells me that he always orders them and they never arrive -

they're on 'back order'.

Maybe you can have the bar repaired? I think you'll be able to get some

replacement parts for it in the UK (I can't remember the manufacturers name

but it isn't made by Markell). Maybe try to get Markells from one of the US

suppliers shipped out to you (they are definitely available somewhere, I

know a few kids are wearing the bigger shoes).

Those night splints sound like too much of a diversion from Ponseti and are

probably unnecessary. If you're already having a problem with Connor

wearing the Markells, then he probably won't take kindly to something new.

Have you contacted Dr Naomi about it? Maybe she has some advice for

you.

Good luck and let me know how you go, we will be in the same boat soon!

Moss

CEO Steps Charity

<http://www.steps.org.za> www.steps.org.za

Cell:

_____

From: nosurgery4clubfoot

[mailto:nosurgery4clubfoot ] On Behalf Of Rach

Sent: 06 April 2006 09:36 AM

To: nosurgery4clubfoot

Subject: Shoes

Our son is 3 next week and I just rang our Physio (we are in the UK) who has

been treating Connor with the Ponseti method (up to now!!!) to get a new

pair of shoes. He had a size 4 which I have just changed to a 4.5 but they

seem to be the older style that first came out in the new style shoes with

the short strap - anyway they aren't any bigger than the 4 so I rang her to

ask for a bigger size and also we have an adjustable red bar which is

breaking around where the bolt joins the shoe. The left shoe is no longer

completely fixed it moves about all over the place so I was hoping to get a

new bar as well - no chance of that - she has decided that he can come out

of the shoes and she is going to 'make' a night brace for him. I have to go

tomorrow to get below the knee casts so she can make the mould for the night

splints - I reckon she is talking about AFO's?????? Anyway the last 6 months

has been a nightmare keeping Connor in his shoes I have to say but we haven

t missed a night and I have been taping the shoes onto him, he doesn't undo

them he wriggles his foot out which is why one of them is so loose. If I

tape them onto his socks he pulls them off aswell, so I have to make sure I

do loads of tape over his pyjamas and around his shoes and then it is a

right mess in the morning but at least he keeps them on!!! I am really

worried now what he is going to wear and I wonder if I can Steve to try and

sort out the bar and see if anyone has a spare size 5 or 5.5 that I can have

or buy just to get us through another 6 months at least. I was planning on

him being in the shoes till he was about 4 not 3.

Rach, Steve & Connor

[Guest guest]

I think I found it, the red bar is made by Fillauer. www.fillauer.com

<http://www.fillauer.com/>

Their catalogue can be downloaded, see page 5, you can buy a bar or

individual parts..

http://www.fillauer.com/products/book1/pdfs/4pediactric.pdf

I don't know if it helps at all, but maybe it's worth a look.

Moss

CEO Steps Charity

<http://www.steps.org.za> www.steps.org.za

Cell:

_____

From: nosurgery4clubfoot

[mailto:nosurgery4clubfoot ] On Behalf Of Rach

Sent: 06 April 2006 09:36 AM

To: nosurgery4clubfoot

Subject: Shoes

Our son is 3 next week and I just rang our Physio (we are in the UK) who has

been treating Connor with the Ponseti method (up to now!!!) to get a new

pair of shoes. He had a size 4 which I have just changed to a 4.5 but they

seem to be the older style that first came out in the new style shoes with

the short strap - anyway they aren't any bigger than the 4 so I rang her to

ask for a bigger size and also we have an adjustable red bar which is

breaking around where the bolt joins the shoe. The left shoe is no longer

completely fixed it moves about all over the place so I was hoping to get a

new bar as well - no chance of that - she has decided that he can come out

of the shoes and she is going to 'make' a night brace for him. I have to go

tomorrow to get below the knee casts so she can make the mould for the night

splints - I reckon she is talking about AFO's?????? Anyway the last 6 months

has been a nightmare keeping Connor in his shoes I have to say but we haven

t missed a night and I have been taping the shoes onto him, he doesn't undo

them he wriggles his foot out which is why one of them is so loose. If I

tape them onto his socks he pulls them off aswell, so I have to make sure I

do loads of tape over his pyjamas and around his shoes and then it is a

right mess in the morning but at least he keeps them on!!! I am really

worried now what he is going to wear and I wonder if I can Steve to try and

sort out the bar and see if anyone has a spare size 5 or 5.5 that I can have

or buy just to get us through another 6 months at least. I was planning on

him being in the shoes till he was about 4 not 3.

Rach, Steve & Connor

[Guest guest]

Rach,

Sorry for the trouble you've been having! You shouldn't have to be

taping and jury-rigging and and making do.. and certainly not have

that be the reason to stop wearing the brace! I wish your physio was

helping you more.. it's just a matter of getting you a larger size

pair of shoes and a new bar.

My daughter wore the following sizes: 1, 3, 5 and 7. Most recently we

did get a size 9 (the largest they make), but didn't need to use it

very long. It was $65 for the pair, not long ago.

The larger sizes, 5, 7, did come in the new style, with the padded

tongue, padded ankle area, extra long strap, etc.

We always got the shoes through the hospital in Iowa, usually through

the mail, within a day or so. Maybe the orthotists there could help

you, to at least to point you in the right direction. It's APO,

American Prosthetics and Orthotics, within the UI hospital. I can get

you the phone number if you want it.

here's the flyer on the shoes and the bars, with sizes available,

addresses, phone numbers, etc.

http://www.markellshoe.com/ponsetiflyer.pdf

Do you think you could just order what you need directly yourself?

Hope you get it resolved soon!

p.s. Happy early birthday to your little guy!!

>

> Our son is 3 next week and I just rang our Physio (we are in the

UK) who has

> been treating Connor with the Ponseti method (up to now!!!) to get

a new

> pair of shoes. He had a size 4 which I have just changed to a 4.5

but they

> seem to be the older style that first came out in the new style

shoes with

> the short strap - anyway they aren't any bigger than the 4 so I

rang her to

> ask for a bigger size and also we have an adjustable red bar which

is

> breaking around where the bolt joins the shoe. The left shoe is no

longer

> completely fixed it moves about all over the place so I was hoping

to get a

> new bar as well - no chance of that - she has decided that he can

come out

> of the shoes and she is going to 'make' a night brace for him. I

have to go

> tomorrow to get below the knee casts so she can make the mould for

the night

> splints - I reckon she is talking about AFO's?????? Anyway the last

6 months

> has been a nightmare keeping Connor in his shoes I have to say but

we haven

> t missed a night and I have been taping the shoes onto him, he

doesn't undo

> them he wriggles his foot out which is why one of them is so loose.

If I

> tape them onto his socks he pulls them off aswell, so I have to

make sure I

> do loads of tape over his pyjamas and around his shoes and then it

is a

> right mess in the morning but at least he keeps them on!!! I am

really

> worried now what he is going to wear and I wonder if I can Steve to

try and

> sort out the bar and see if anyone has a spare size 5 or 5.5 that I

can have

> or buy just to get us through another 6 months at least. I was

planning on

> him being in the shoes till he was about 4 not 3.

>

> Rach, Steve & Connor

>

>

[Guest guest]

I have just spoken to a Physio who has just started using the Ponseti

method in a town near us (where I would have gone if they had practised it 3

years ago) and she is behind me 100%. She said if I get no joy tomorrow in

asking for new shoes and a bar and I am going with some info

then she will help me - Yeahhhh!!! I feel such relieve as I feel I only have

a year to go so need to persevere with the foot brace. If I can get the

s then i will but I just need some new shoes and Steve reckons he

may be able to weld this bar if needs to so fingers crossed !!!!

I will let you know what happens tomorrow!!!

Rach Steve and Connor

-- Re: Shoes

Rach,

I talked to Stella on the phone the other day, she's here in Iowa

(I'm in Oregon, way far!!) but she said that told her she does a

fairly significant portion of 's business as the UK distributor

and it seems to me, that your dr. could prescribe these for you

easily. Darbi is very happy with hers, and I would not go back to

the Markells ever.

I would not go to the casting session, just insist on the PM's and

say no to the AFO's. If she won't get them for you, you just call

Naomi and get a script. Or whatever is needed to get them paid

for over there. Stella can likely give you a doc's name to look to

right? I just think that there's a lot of docs using these over

there and you absolutely have choices to brace him long enough. This

also gives a chance to take care of the heel counter in that

size, and I'd love for you to try this new casting sock he's sent

me. He wants to see if this whole foot impression can help him make

the right shoe for every foot. I think they can work.

Anyway, i think Connor will like them and your problems will be

over. How is it that you can't get a new bar or shoes now?? I

wouldn't go with the AFO, yuck. it's unnecessary, why take the time

and resources to bother with it? Did you see what Dr. Morcuende

wrote to me about his results from the long term study? I think the

rate of relapse during the 3rd year is at like 30-40%. They're

really talking, if you're to expect the 95-98% no relapse rate that

we go to 5yo if possible so absolutely I'd make sure he was in there

till 4. Can't you get another year out of the doc? I am not quite

understanding why you've had to deal with this broken brace for so

long, I'm sorry. it sounds like a PITA. I'd really push for the PM

brace if he is getting out of his shoes now. Darbi can't get hers

off. It totally solved that one problem (and many more little tiny

issues - welcome changes!) for us.

Let me know what I can do to help k?

Kori

(sorry, Darbi's old shoes are all broken or I'd send them to you tomorrow!)

At 12:36 AM 4/6/2006, you wrote:

>Our son is 3 next week and I just rang our Physio (we are in the UK) who

has

>been treating Connor with the Ponseti method (up to now!!!) to get a new

>pair of shoes. He had a size 4 which I have just changed to a 4.5 but they

>seem to be the older style that first came out in the new style shoes with

>the short strap - anyway they aren't any bigger than the 4 so I rang her to

>ask for a bigger size and also we have an adjustable red bar which is

>breaking around where the bolt joins the shoe. The left shoe is no longer

>completely fixed it moves about all over the place so I was hoping to get a

>new bar as well - no chance of that - she has decided that he can come out

>of the shoes and she is going to 'make' a night brace for him. I have to go

>tomorrow to get below the knee casts so she can make the mould for the

night

>splints - I reckon she is talking about AFO's?????? Anyway the last 6

months

>has been a nightmare keeping Connor in his shoes I have to say but we haven

>t missed a night and I have been taping the shoes onto him, he doesn't undo

>them he wriggles his foot out which is why one of them is so loose. If I

>tape them onto his socks he pulls them off aswell, so I have to make sure I

>do loads of tape over his pyjamas and around his shoes and then it is a

>right mess in the morning but at least he keeps them on!!! I am reallyhi t

>worried now what he is going to wear and I wonder if I can Steve to try and

>sort out the bar and see if anyone has a spare size 5 or 5.5 that I can

have

>or buy just to get us through another 6 months at least. I was planning on

>him being in the shoes till he was about 4 not 3.

>

>Rach, Steve & Connor

>

>

[Guest guest]

Rach,

already tried to weld it. unless you've got aluminum welding

experience/equipment it's a no go. Hard to find aluminum welders

actually. we tried peining (peening??) it too, but that didn't work

for very long at all. Our red bar is shot.

Why not just switch to this new Physio? Closer yes?

You should probably have send you an impression kit now. The

sooner you get it to him, the sooner he can make your shoes. If you

want, I can call him and ask him to send you a sock to try as

well. To save $ send me your address and I'll fwd it to him and ask

him to send it on or you can email him at mdortho@... . I

don't think it takes long to get there, I remember your shoes arrived

in about 6 days when I sent them. So it'd be silly to do air.

Darbi's Markells are 4's or I'd send those to you! Sorry!

Kori

At 11:54 AM 4/6/2006, you wrote:

> I have just spoken to a Physio who has just started using the Ponseti

>method in a town near us (where I would have gone if they had practised it 3

>years ago) and she is behind me 100%. She said if I get no joy tomorrow in

>asking for new shoes and a bar and I am going with some info

>then she will help me - Yeahhhh!!! I feel such relieve as I feel I only have

>a year to go so need to persevere with the foot brace. If I can get the

>s then i will but I just need some new shoes and Steve reckons he

>may be able to weld this bar if needs to so fingers crossed !!!!

>

>I will let you know what happens tomorrow!!!

>

>Rach Steve and Connor

>

>-- Re: Shoes

>

>Rach,

>

>I talked to Stella on the phone the other day, she's here in Iowa

>(I'm in Oregon, way far!!) but she said that told her she does a

>fairly significant portion of 's business as the UK distributor

>and it seems to me, that your dr. could prescribe these for you

>easily. Darbi is very happy with hers, and I would not go back to

>the Markells ever.

>

>I would not go to the casting session, just insist on the PM's and

>say no to the AFO's. If she won't get them for you, you just call

>Naomi and get a script. Or whatever is needed to get them paid

>for over there. Stella can likely give you a doc's name to look to

>right? I just think that there's a lot of docs using these over

>there and you absolutely have choices to brace him long enough. This

>also gives a chance to take care of the heel counter in that

>size, and I'd love for you to try this new casting sock he's sent

>me. He wants to see if this whole foot impression can help him make

>the right shoe for every foot. I think they can work.

>

>Anyway, i think Connor will like them and your problems will be

>over. How is it that you can't get a new bar or shoes now?? I

>wouldn't go with the AFO, yuck. it's unnecessary, why take the time

>and resources to bother with it? Did you see what Dr. Morcuende

>wrote to me about his results from the long term study? I think the

>rate of relapse during the 3rd year is at like 30-40%. They're

>really talking, if you're to expect the 95-98% no relapse rate that

>we go to 5yo if possible so absolutely I'd make sure he was in there

>till 4. Can't you get another year out of the doc? I am not quite

>understanding why you've had to deal with this broken brace for so

>long, I'm sorry. it sounds like a PITA. I'd really push for the PM

>brace if he is getting out of his shoes now. Darbi can't get hers

>off. It totally solved that one problem (and many more little tiny

>issues - welcome changes!) for us.

>

>Let me know what I can do to help k?

>

>Kori

>(sorry, Darbi's old shoes are all broken or I'd send them to you tomorrow!)

>

>

>

>

>

>At 12:36 AM 4/6/2006, you wrote:

> >Our son is 3 next week and I just rang our Physio (we are in the UK) who

>has

> >been treating Connor with the Ponseti method (up to now!!!) to get a new

> >pair of shoes. He had a size 4 which I have just changed to a 4.5 but they

> >seem to be the older style that first came out in the new style shoes with

> >the short strap - anyway they aren't any bigger than the 4 so I rang her to

> >ask for a bigger size and also we have an adjustable red bar which is

> >breaking around where the bolt joins the shoe. The left shoe is no longer

> >completely fixed it moves about all over the place so I was hoping to get a

> >new bar as well - no chance of that - she has decided that he can come out

> >of the shoes and she is going to 'make' a night brace for him. I have to go

> >tomorrow to get below the knee casts so she can make the mould for the

>night

> >splints - I reckon she is talking about AFO's?????? Anyway the last 6

>months

> >has been a nightmare keeping Connor in his shoes I have to say but we haven

> >t missed a night and I have been taping the shoes onto him, he doesn't undo

> >them he wriggles his foot out which is why one of them is so loose. If I

> >tape them onto his socks he pulls them off aswell, so I have to make sure I

> >do loads of tape over his pyjamas and around his shoes and then it is a

> >right mess in the morning but at least he keeps them on!!! I am reallyhi t

> >worried now what he is going to wear and I wonder if I can Steve to try and

> >sort out the bar and see if anyone has a spare size 5 or 5.5 that I can

>have

> >or buy just to get us through another 6 months at least. I was planning on

> >him being in the shoes till he was about 4 not 3.

> >

> >Rach, Steve & Connor

> >

> >

[Guest guest]

Hi Kori

We were looking at the uk website C Pro direct Ltd for the s

and we were wondering if we could get someone in USA to order them for us

but actually working it out it is the same price. You just have to click on

order so presumably that will tell me how to do it if we go down that

road????? Anyway will definately switch to the new physio if Jan won't budge

so have some options at least..... Wonder why the red bar is not up to

scratch we also had an issue with the gold fixed one which actually snapped.

I mean when they are this age they walk around and jump in them and all

sorts .......... He is a 6 in normal shoes - he has small feet that is UK

size but I cannot work out the sizes!!!!

Rach

-- Re: Shoes

>

>Rach,

>

>I talked to Stella on the phone the other day, she's here in Iowa

>(I'm in Oregon, way far!!) but she said that told her she does a

>fairly significant portion of 's business as the UK distributor

>and it seems to me, that your dr. could prescribe these for you

>easily. Darbi is very happy with hers, and I would not go back to

>the Markells ever.

>

>I would not go to the casting session, just insist on the PM's and

>say no to the AFO's. If she won't get them for you, you just call

>Naomi and get a script. Or whatever is needed to get them paid

>for over there. Stella can likely give you a doc's name to look to

>right? I just think that there's a lot of docs using these over

>there and you absolutely have choices to brace him long enough. This

>also gives a chance to take care of the heel counter in that

>size, and I'd love for you to try this new casting sock he's sent

>me. He wants to see if this whole foot impression can help him make

>the right shoe for every foot. I think they can work.

>

>Anyway, i think Connor will like them and your problems will be

>over. How is it that you can't get a new bar or shoes now?? I

>wouldn't go with the AFO, yuck. it's unnecessary, why take the time

>and resources to bother with it? Did you see what Dr. Morcuende

>wrote to me about his results from the long term study? I think the

>rate of relapse during the 3rd year is at like 30-40%. They're

>really talking, if you're to expect the 95-98% no relapse rate that

>we go to 5yo if possible so absolutely I'd make sure he was in there

>till 4. Can't you get another year out of the doc? I am not quite

>understanding why you've had to deal with this broken brace for so

>long, I'm sorry. it sounds like a PITA. I'd really push for the PM

>brace if he is getting out of his shoes now. Darbi can't get hers

>off. It totally solved that one problem (and many more little tiny

>issues - welcome changes!) for us.

>

>Let me know what I can do to help k?

>

>Kori

>(sorry, Darbi's old shoes are all broken or I'd send them to you tomorrow!)

>

>

>

>

>

>At 12:36 AM 4/6/2006, you wrote:

> >Our son is 3 next week and I just rang our Physio (we are in the UK) who

>has

> >been treating Connor with the Ponseti method (up to now!!!) to get a new

> >pair of shoes. He had a size 4 which I have just changed to a 4.5 but

they

> >seem to be the older style that first came out in the new style shoes

with

> >the short strap - anyway they aren't any bigger than the 4 so I rang her

to

> >ask for a bigger size and also we have an adjustable red bar which is

> >breaking around where the bolt joins the shoe. The left shoe is no longer

> >completely fixed it moves about all over the place so I was hoping to get

a

> >new bar as well - no chance of that - she has decided that he can come

out

> >of the shoes and she is going to 'make' a night brace for him. I have to

go

> >tomorrow to get below the knee casts so she can make the mould for the

>night

> >splints - I reckon she is talking about AFO's?????? Anyway the last 6

>months

> >has been a nightmare keeping Connor in his shoes I have to say but we

haven

> >t missed a night and I have been taping the shoes onto him, he doesn't

undo

> >them he wriggles his foot out which is why one of them is so loose. If I

> >tape them onto his socks he pulls them off aswell, so I have to make sure

I

> >do loads of tape over his pyjamas and around his shoes and then it is a

> >right mess in the morning but at least he keeps them on!!! I am reallyhi

t

> >worried now what he is going to wear and I wonder if I can Steve to try

and

> >sort out the bar and see if anyone has a spare size 5 or 5.5 that I can

>have

> >or buy just to get us through another 6 months at least. I was planning

on

> >him being in the shoes till he was about 4 not 3.

> >

> >Rach, Steve & Connor

> >

> >

[Guest guest]

Hi

I got an email from Stella about something else today and she said that she

doesn't take imprints in the UK to send to , it would take too

long and also they don't know what would happen to the imprints on the

journey from the UK to the US, she gives him measurements and he makes up

the shoes according to that.

It sounds like you're on the way to a solution, that's great.

Moss

CEO Steps Charity

<http://www.steps.org.za> www.steps.org.za

Cell:

_____

From: nosurgery4clubfoot

[mailto:nosurgery4clubfoot ] On Behalf Of Rach

Sent: 06 April 2006 09:47 PM

To: nosurgery4clubfoot

Subject: Re: Shoes

Hi Kori

We were looking at the uk website C Pro direct Ltd for the s

and we were wondering if we could get someone in USA to order them for us

but actually working it out it is the same price. You just have to click on

order so presumably that will tell me how to do it if we go down that

road????? Anyway will definately switch to the new physio if Jan won't budge

so have some options at least..... Wonder why the red bar is not up to

scratch we also had an issue with the gold fixed one which actually snapped.

I mean when they are this age they walk around and jump in them and all

sorts .......... He is a 6 in normal shoes - he has small feet that is UK

size but I cannot work out the sizes!!!!

Rach

-- Re: Shoes

>

>Rach,

>

>I talked to Stella on the phone the other day, she's here in Iowa

>(I'm in Oregon, way far!!) but she said that told her she does a

>fairly significant portion of 's business as the UK distributor

>and it seems to me, that your dr. could prescribe these for you

>easily. Darbi is very happy with hers, and I would not go back to

>the Markells ever.

>

>I would not go to the casting session, just insist on the PM's and

>say no to the AFO's. If she won't get them for you, you just call

>Naomi and get a script. Or whatever is needed to get them paid

>for over there. Stella can likely give you a doc's name to look to

>right? I just think that there's a lot of docs using these over

>there and you absolutely have choices to brace him long enough. This

>also gives a chance to take care of the heel counter in that

>size, and I'd love for you to try this new casting sock he's sent

>me. He wants to see if this whole foot impression can help him make

>the right shoe for every foot. I think they can work.

>

>Anyway, i think Connor will like them and your problems will be

>over. How is it that you can't get a new bar or shoes now?? I

>wouldn't go with the AFO, yuck. it's unnecessary, why take the time

>and resources to bother with it? Did you see what Dr. Morcuende

>wrote to me about his results from the long term study? I think the

>rate of relapse during the 3rd year is at like 30-40%. They're

>really talking, if you're to expect the 95-98% no relapse rate that

>we go to 5yo if possible so absolutely I'd make sure he was in there

>till 4. Can't you get another year out of the doc? I am not quite

>understanding why you've had to deal with this broken brace for so

>long, I'm sorry. it sounds like a PITA. I'd really push for the PM

>brace if he is getting out of his shoes now. Darbi can't get hers

>off. It totally solved that one problem (and many more little tiny

>issues - welcome changes!) for us.

>

>Let me know what I can do to help k?

>

>Kori

>(sorry, Darbi's old shoes are all broken or I'd send them to you tomorrow!)

>

>

>

>

>

>At 12:36 AM 4/6/2006, you wrote:

> >Our son is 3 next week and I just rang our Physio (we are in the UK) who

>has

> >been treating Connor with the Ponseti method (up to now!!!) to get a new

> >pair of shoes. He had a size 4 which I have just changed to a 4.5 but

they

> >seem to be the older style that first came out in the new style shoes

with

> >the short strap - anyway they aren't any bigger than the 4 so I rang her

to

> >ask for a bigger size and also we have an adjustable red bar which is

> >breaking around where the bolt joins the shoe. The left shoe is no longer

> >completely fixed it moves about all over the place so I was hoping to get

a

> >new bar as well - no chance of that - she has decided that he can come

out

> >of the shoes and she is going to 'make' a night brace for him. I have to

go

> >tomorrow to get below the knee casts so she can make the mould for the

>night

> >splints - I reckon she is talking about AFO's?????? Anyway the last 6

>months

> >has been a nightmare keeping Connor in his shoes I have to say but we

haven

> >t missed a night and I have been taping the shoes onto him, he doesn't

undo

> >them he wriggles his foot out which is why one of them is so loose. If I

> >tape them onto his socks he pulls them off aswell, so I have to make sure

I

> >do loads of tape over his pyjamas and around his shoes and then it is a

> >right mess in the morning but at least he keeps them on!!! I am reallyhi

t

> >worried now what he is going to wear and I wonder if I can Steve to try

and

> >sort out the bar and see if anyone has a spare size 5 or 5.5 that I can

>have

> >or buy just to get us through another 6 months at least. I was planning

on

> >him being in the shoes till he was about 4 not 3.

> >

> >Rach, Steve & Connor

> >

> >

[Guest guest]

Ok Panic over !!! Been to see our Physio today and before I left I rang as

I didn't want to drive all the way down there if all she wanted to do was

the AFO casting. Anyway all I said was that I was fine to carry on with the

FAB till he was about 4 and all we needed was a new pair of shoes and she

just goes " ok, let me see if I have a 5. " She came back and said she did. I

told her I would bring the bar as it was hanging and I asked about the

s and she said the were having trouble getting the contract or

something but she was trying to get some new bar and boots from Germany.

Anyway I went down there picked up the new shoes and she handed me a new bar

when she saw the other one and that was that.......... anyway she also

checked his feet and she said they were perfect and well within normal range

......

Rach, Steve & Connor

-- Re: Shoes

>

>Rach,

>

>I talked to Stella on the phone the other day, she's here in Iowa

>(I'm in Oregon, way far!!) but she said that told her she does a

>fairly significant portion of 's business as the UK distributor

>and it seems to me, that your dr. could prescribe these for you

>easily. Darbi is very happy with hers, and I would not go back to

>the Markells ever.

>

>I would not go to the casting session, just insist on the PM's and

>say no to the AFO's. If she won't get them for you, you just call

>Naomi and get a script. Or whatever is needed to get them paid

>for over there. Stella can likely give you a doc's name to look to

>right? I just think that there's a lot of docs using these over

>there and you absolutely have choices to brace him long enough. This

>also gives a chance to take care of the heel counter in that

>size, and I'd love for you to try this new casting sock he's sent

>me. He wants to see if this whole foot impression can help him make

>the right shoe for every foot. I think they can work.

>

>Anyway, i think Connor will like them and your problems will be

>over. How is it that you can't get a new bar or shoes now?? I

>wouldn't go with the AFO, yuck. it's unnecessary, why take the time

>and resources to bother with it? Did you see what Dr. Morcuende

>wrote to me about his results from the long term study? I think the

>rate of relapse during the 3rd year is at like 30-40%. They're

>really talking, if you're to expect the 95-98% no relapse rate that

>we go to 5yo if possible so absolutely I'd make sure he was in there

>till 4. Can't you get another year out of the doc? I am not quite

>understanding why you've had to deal with this broken brace for so

>long, I'm sorry. it sounds like a PITA. I'd really push for the PM

>brace if he is getting out of his shoes now. Darbi can't get hers

>off. It totally solved that one problem (and many more little tiny

>issues - welcome changes!) for us.

>

>Let me know what I can do to help k?

>

>Kori

>(sorry, Darbi's old shoes are all broken or I'd send them to you tomorrow!)

>

>

>

>

>

>At 12:36 AM 4/6/2006, you wrote:

> >Our son is 3 next week and I just rang our Physio (we are in the UK) who

>has

> >been treating Connor with the Ponseti method (up to now!!!) to get a new

> >pair of shoes. He had a size 4 which I have just changed to a 4.5 but

they

> >seem to be the older style that first came out in the new style shoes

with

> >the short strap - anyway they aren't any bigger than the 4 so I rang her

to

> >ask for a bigger size and also we have an adjustable red bar which is

> >breaking around where the bolt joins the shoe. The left shoe is no longer

> >completely fixed it moves about all over the place so I was hoping to get

a

> >new bar as well - no chance of that - she has decided that he can come

out

> >of the shoes and she is going to 'make' a night brace for him. I have to

go

> >tomorrow to get below the knee casts so she can make the mould for the

>night

> >splints - I reckon she is talking about AFO's?????? Anyway the last 6

>months

> >has been a nightmare keeping Connor in his shoes I have to say but we

haven

> >t missed a night and I have been taping the shoes onto him, he doesn't

undo

> >them he wriggles his foot out which is why one of them is so loose. If I

> >tape them onto his socks he pulls them off aswell, so I have to make sure

I

> >do loads of tape over his pyjamas and around his shoes and then it is a

> >right mess in the morning but at least he keeps them on!!! I am reallyhi

t

> >worried now what he is going to wear and I wonder if I can Steve to try

and

> >sort out the bar and see if anyone has a spare size 5 or 5.5 that I can

>have

> >or buy just to get us through another 6 months at least. I was planning

on

> >him being in the shoes till he was about 4 not 3.

> >

> >Rach, Steve & Connor

> >

> >

[Guest guest]

Hi ,

I'm really glad to hear it all seems to be working out but if you still think it

might be worth trying the s why don't you email Stella directly her

email is stella@... She is the european agent for s and

although we've never ordered them direct our doctor has never had problems

ordering them through Stella so I'm not sure why your Physio would think

s are had to get hold of.

If you speak to Stella and see how they would be ordered maybe you can take the

info back to your Physio and persuade her to give them a go. I know the NHS is

reluctant to pay the extra the s cost but if you go in with a good

arguement and I think having to tape your son's shoes on to stop him getting out

of them is a good enough reason!

Which doctor do you see in the UK and where are you based? We live in Brighton

but see Naomi in Manchester.

Hope this helps

Kathy

Rach wrote: Ok Panic over !!! Been to see our

Physio today and before I left I rang as

I didn't want to drive all the way down there if all she wanted to do was

the AFO casting. Anyway all I said was that I was fine to carry on with the

FAB till he was about 4 and all we needed was a new pair of shoes and she

just goes " ok, let me see if I have a 5. " She came back and said she did. I

told her I would bring the bar as it was hanging and I asked about the

s and she said the were having trouble getting the contract or

something but she was trying to get some new bar and boots from Germany.

Anyway I went down there picked up the new shoes and she handed me a new bar

when she saw the other one and that was that.......... anyway she also

checked his feet and she said they were perfect and well within normal range

.....

Rach, Steve & Connor

-- Re: Shoes

>

>Rach,

>

>I talked to Stella on the phone the other day, she's here in Iowa

>(I'm in Oregon, way far!!) but she said that told her she does a

>fairly significant portion of 's business as the UK distributor

>and it seems to me, that your dr. could prescribe these for you

>easily. Darbi is very happy with hers, and I would not go back to

>the Markells ever.

>

>I would not go to the casting session, just insist on the PM's and

>say no to the AFO's. If she won't get them for you, you just call

>Naomi and get a script. Or whatever is needed to get them paid

>for over there. Stella can likely give you a doc's name to look to

>right? I just think that there's a lot of docs using these over

>there and you absolutely have choices to brace him long enough. This

>also gives a chance to take care of the heel counter in that

>size, and I'd love for you to try this new casting sock he's sent

>me. He wants to see if this whole foot impression can help him make

>the right shoe for every foot. I think they can work.

>

>Anyway, i think Connor will like them and your problems will be

>over. How is it that you can't get a new bar or shoes now?? I

>wouldn't go with the AFO, yuck. it's unnecessary, why take the time

>and resources to bother with it? Did you see what Dr. Morcuende

>wrote to me about his results from the long term study? I think the

>rate of relapse during the 3rd year is at like 30-40%. They're

>really talking, if you're to expect the 95-98% no relapse rate that

>we go to 5yo if possible so absolutely I'd make sure he was in there

>till 4. Can't you get another year out of the doc? I am not quite

>understanding why you've had to deal with this broken brace for so

>long, I'm sorry. it sounds like a PITA. I'd really push for the PM

>brace if he is getting out of his shoes now. Darbi can't get hers

>off. It totally solved that one problem (and many more little tiny

>issues - welcome changes!) for us.

>

>Let me know what I can do to help k?

>

>Kori

>(sorry, Darbi's old shoes are all broken or I'd send them to you tomorrow!)

>

>

>

>

>

>At 12:36 AM 4/6/2006, you wrote:

> >Our son is 3 next week and I just rang our Physio (we are in the UK) who

>has

> >been treating Connor with the Ponseti method (up to now!!!) to get a new

> >pair of shoes. He had a size 4 which I have just changed to a 4.5 but

they

> >seem to be the older style that first came out in the new style shoes

with

> >the short strap - anyway they aren't any bigger than the 4 so I rang her

to

> >ask for a bigger size and also we have an adjustable red bar which is

> >breaking around where the bolt joins the shoe. The left shoe is no longer

> >completely fixed it moves about all over the place so I was hoping to get

a

> >new bar as well - no chance of that - she has decided that he can come

out

> >of the shoes and she is going to 'make' a night brace for him. I have to

go

> >tomorrow to get below the knee casts so she can make the mould for the

>night

> >splints - I reckon she is talking about AFO's?????? Anyway the last 6

>months

> >has been a nightmare keeping Connor in his shoes I have to say but we

haven

> >t missed a night and I have been taping the shoes onto him, he doesn't

undo

> >them he wriggles his foot out which is why one of them is so loose. If I

> >tape them onto his socks he pulls them off aswell, so I have to make sure

I

> >do loads of tape over his pyjamas and around his shoes and then it is a

> >right mess in the morning but at least he keeps them on!!! I am reallyhi

t

> >worried now what he is going to wear and I wonder if I can Steve to try

and

> >sort out the bar and see if anyone has a spare size 5 or 5.5 that I can

>have

> >or buy just to get us through another 6 months at least. I was planning

on

> >him being in the shoes till he was about 4 not 3.

> >

> >Rach, Steve & Connor

> >

> >

[Guest guest]

That's great news Rach!!

& Grace

> > >Our son is 3 next week and I just rang our Physio (we are in the

UK) who

> >has

> > >been treating Connor with the Ponseti method (up to now!!!) to

get a new

> > >pair of shoes. He had a size 4 which I have just changed to a

4.5 but

> they

> > >seem to be the older style that first came out in the new style

shoes

> with

> > >the short strap - anyway they aren't any bigger than the 4 so I

rang her

> to

> > >ask for a bigger size and also we have an adjustable red bar

which is

> > >breaking around where the bolt joins the shoe. The left shoe is

no longer

> > >completely fixed it moves about all over the place so I was

hoping to get

> a

> > >new bar as well - no chance of that - she has decided that he

can come

> out

> > >of the shoes and she is going to 'make' a night brace for him. I

have to

> go

> > >tomorrow to get below the knee casts so she can make the mould

for the

> >night

> > >splints - I reckon she is talking about AFO's?????? Anyway the

last 6

> >months

> > >has been a nightmare keeping Connor in his shoes I have to say

but we

> haven

> > >t missed a night and I have been taping the shoes onto him, he

doesn't

> undo

> > >them he wriggles his foot out which is why one of them is so

loose. If I

> > >tape them onto his socks he pulls them off aswell, so I have to

make sure

> I

> > >do loads of tape over his pyjamas and around his shoes and then

it is a

> > >right mess in the morning but at least he keeps them on!!! I am

reallyhi

> t

> > >worried now what he is going to wear and I wonder if I can Steve

to try

> and

> > >sort out the bar and see if anyone has a spare size 5 or 5.5

that I can

> >have

> > >or buy just to get us through another 6 months at least. I was

planning

> on

> > >him being in the shoes till he was about 4 not 3.

> > >

> > >Rach, Steve & Connor

> > >

> > >

[Guest guest]

Oh you poor thing. It's not normal for a child to have these problems you

describe....

well, let me rephrase that: it's normal when other things are abnormal.

If you don't mind telling us, who is your doctor? could you give us a little

more history of the casting phase, and a description of how your brace is set

up? that could help us figure out what is going wrong at your house so we can

help you find a solution.

I am assuming you have the Markell system - white open toe shoes on a bar.

Regardless, she should be in some system of shoes connected to a bar.

Her heels ought to be set shoulder width apart. Her toes on the clubbed

feet/foot should be pointed out 70 degrees, marked on the bottom of the shoe...

It's hard to get shoulder width exactly but you can use a combination of

measuring tapes and eye-balling it pretty good. Be sure her actual heels are

shoulder width, not just the shoes, or the screws, etc. In some cases the

screws on bottom can be shoulder width making the heels too narrow.... If the

heels are too narrow apart they are very uncomfortable to a child. If she's a

hard sleeper you can maybe lay her out on the floor sound asleep and so some

measuring and comparing to her shoes to get the things set up correctly.

If you search the files and link section of this group there is a wonderful

document offering in depth tips and information regarding use of the FAB (foot

abduction brace / dennis brown bar). This is a list complied by hundred of

parents in real-life situations - edited down to be a concise document to help

future parents like you.

I am guessing there are a couple things at work here: a) her foot wasn't ready

for the brace when you started using it. the FAB is set up incorrectly so it

hurts, c) she's lost some correction making it hurt worse, d) maybe the shoe is

the wrong size, e) maybe you are not putting them on correctly. Even if you put

them on according to doctor direction, it's possible he's never used the darn

things himself and really has no clue like we do using them for years ourselves.

It becomes frustring to us how many doctors and orthos do not know how to

educate a parent to use the FAB correctly (and how many doctors and orthos just

don't know how to do it themselves!) , so the parent goes home and has issues

like you describe. The document i mention can really help you weed out the

problem yourself.

If the FAB is used correctly on feet that have been casted correctly, it's

really not a hard thing - so once we can figure out what is going wrong with

your baby adn fix it, you'll see a huge difference in her level of happiness

Something else I want to mention that you probably won't like to hear is this:

If she's gone too much with out her FAB on, there is the chance her feet have

begun to revert back to their clubbed state. In that case, no amount of

adjustment/tips/advice/ is going to help because the FAB will cause pain to an

un-corrected and/or relapsed foot. She may require one or two more casts to get

the foot back to it's corrected condition before you try the FAB again. Has

your doctor mentioned any of this? Then again you might want to seek a 2nd

opinion regarding getting her back to peak correction and holding that with

continued use of the FAB.

Dr Ponseti jokes that he only does 20% of the correction with casts - saying

parents do the other 80% at home with the brace. It's really not a joke. It's

very true. His perfect casting will do no good if parents don't maintain it

with the bracing at home. Of course if you can't get your child to tolerate the

brace you have trouble....which is why you are here today, and why we hang round

trying to help.

At your daughter's age she still has an excellent chance of full correction with

out any surgery if you can catch all this now and set to correcting it again.

Let us know what we can do for you, and please take time to visit the links and

files and photos of this group for a wealth of related information.

best of luck,

ee

Mother of 3 Clubfooted Sons:

- Bilateral Club Feet April 1998

Everett - Bilateral Club Feet September 2003

Garrison - Bilateral Club Feet March 2006

shoes

My daughter is 5 months old she has had the dennis brown bar on for 2

months, the doctor said it would be hard the first two weeks w/ her

getting use to them but now after 2 months she still hates her shoes

and bar. Some days are worse than others, she will cry the entire day,

when we take her shoes off she is a totally different baby. The doctor

said her shoes need to be on 23 hrs a day but we get an average of 12

to 18 hrs. She will not sleep at night with them on. Does anyone have

any helpful ideas??

------------------------------------------------------------------------------

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[Guest guest]

There are really only a few reasons that the DBB (or FAB - foot

abduction brace) makes a baby cranky.

1. User error

2. Brace not set up correctly

3. Feet not fully corrected

My first instinct in this case is to go with #2. The absolute, all

time, biggest mistake in brace set up is the length of the bar. Many

orthotists insist on making the bar too short for baby's comfort. The

bar should be set up so that the heels of the shoes are shoulder width

apart. The easiest way to measure this is not with a tape measure,

but by sitting the shoes on the bar down and laying baby so that her

shoulders are between the heels of the shoes. If they fit comfortably

between, i.e. are barely touching the shoes without scrunching her

shoulders they are okay. Otherwise, the bar is too short and needs to

be lengthened or if it's not an adjustable one, they need to get you a

new one asap. If this is the problem, you will notice an immediate

change in your daughter's demeanor while wearing the shoes. There are

also lots of other issues that can be wrong with the set up of the

brace & shoes. If the bar length is not the culprit then we can look

at some of the others.

Regarding #1 & #3 above, these are always possibilities but you didn't

mention her having sores or blisters which are usually caused by poor

fitting shoes or shoes that are not being applied correctly. And

finally, feet that are not fully corrected -- this too is often a

factor but we can look at all the other possibilities first and go

from there.

A few questions for you that might help us help you a bit more, first,

who is your daughter's doctor, and can you tell us a little about her

treatment up to this point, that is, before she went into the shoes

and bar. Does she have any sore spots on her feet from the shoes?

Are you having problems with the shoes slipping off or her heels

rising up in the shoes?

Welcome to the group, I'm sure we can help you get to the bottom of

this very quickly - there's no reason your daughter should be so

unhappy with the shoes. They can be trying, but after two months it

should be getting a lot better -- it's clearly not, so we'll be happy

to help you figure out why.

Hang in there!

Mom to Jenna (4/7/01) & Sammy (9/25/04, RCF, Dobbs brace 12hrs/day)

>

> My daughter is 5 months old she has had the dennis brown bar on for 2

> months, the doctor said it would be hard the first two weeks w/ her

> getting use to them but now after 2 months she still hates her shoes

> and bar. Some days are worse than others, she will cry the entire day,

> when we take her shoes off she is a totally different baby. The doctor

> said her shoes need to be on 23 hrs a day but we get an average of 12

> to 18 hrs. She will not sleep at night with them on. Does anyone have

> any helpful ideas??

>

[Guest guest]

Check to make sure the bar length is long enough. It should be shoulder-width

apart from heel to heel. If it's too narrow, it will be very uncomfortable for

the child.

doona_fritz wrote: My daughter is 5 months old

she has had the dennis brown bar on for 2

months, the doctor said it would be hard the first two weeks w/ her

getting use to them but now after 2 months she still hates her shoes

and bar. Some days are worse than others, she will cry the entire day,

when we take her shoes off she is a totally different baby. The doctor

said her shoes need to be on 23 hrs a day but we get an average of 12

to 18 hrs. She will not sleep at night with them on. Does anyone have

any helpful ideas??

Mommy to:

Marcus Nov. 2005 LCF ( FAB 16-18 hours/day)

and March 2001

__________________________________________________

[Guest guest]

Welcome to the group!

Although we have used the markell shoes/brace the entire time, our

son did have 2 days of transitioning in which I was ready to pull my

hair out. Make sure you read the tips/tricks document that is in the

files section-it will help you with either brace. Does Dr Ponseti

concur that your son's foot is fully corrected? If so, then I would

think and hope for your sake that the mitchell brace is more

comfortable for your tyke! Don't be surprised though if he still

needs to adjust-his feet/legs are sensitive having been casted for

so long-he's probably wondering if his feet are even there anymore-

think about it-all that added weight with the cast and then all of

sudden not feeling that anymore-it would creep me out to. Make sure

to play with him once he is in the bar-show him how to move his legs

up and down in the bar so that he becomes accustomed to the feeling.

Did dr ponseti recommend getting a cast put out to hold the

correction until the mitchells come in or are you to continue with

the fab?? You do not want to lose correction!! Hang in there, it

does get better. My little guy can not sleep at night without

his " magic shoes " .

Take care,

kathleen

mom to david bcf 22 mo old fab 12/7

and daughter edd 9/1/06

>

> Hi!

>

> My husband and I just joined the group over the weekend, as we are

> in desperate need of some support. Our son is 3 months old, has

> unilateral clubfoot, and has had the standard DBB with the white

> Markell shoes for a week now. We have already been to see our

ortho

> Dr. once, spoken to him by phone several times, and have conversed

> with Dr. Ponseti via e-mail twice.....all in the last week. Our

> lives have been a nightmare since our son got his brace. He

screams

> and cries constantly and will not sleep. I have read other

messages

> that have been posted about hanging in there through the

adjustment

> period that most babies experience with the brace, but I feel like

> our son is apparently having a MUCH more difficult time with this

> adjustment than most babies must. His crying and literal

screaming

> does not seem to let up until we take his brace off. He wants to

be

> held and walked with CONSTANTLY while his brace is on, which is

> exhausting. We have no relief, and it does not seem to be getting

> any better. If he were going to adjust to this brace, I would

> expect his crying and screaming to get a little better, but it

> hasn't. I have cried for over a week now and I feel horrible for

my

> baby...it's like we're torturing him.

>

> After speaking with Dr. Ponseti, we have ordered the

shoes,

> which he is confident will make our baby more comfortable. I'm

> praying like crazy that will be true. My question is, has anyone

> else had an adjustment period that has seemed to be much more

> difficult than the norm? Also, has anyone had a child switch from

> the Markell to the brace? Was there an improvement?

>

> Sorry for such a long post, but we are so grateful for any

> reassurance and support that may be offered.

>

> Thank you,

> Lindsey

>

[Guest guest]

Although my little guy has never been in the Markells (we started out with the

s), there have been quite a few parents on here who switched to the

s after having problems with the Markells and the children adjusted very

well to the s. They are made of super-soft suede leather so they're much

easier on the feet.

cspeanut2006 wrote: Hi!

My husband and I just joined the group over the weekend, as we are

in desperate need of some support. Our son is 3 months old, has

unilateral clubfoot, and has had the standard DBB with the white

Markell shoes for a week now. We have already been to see our ortho

Dr. once, spoken to him by phone several times, and have conversed

with Dr. Ponseti via e-mail twice.....all in the last week. Our

lives have been a nightmare since our son got his brace. He screams

and cries constantly and will not sleep. I have read other messages

that have been posted about hanging in there through the adjustment

period that most babies experience with the brace, but I feel like

our son is apparently having a MUCH more difficult time with this

adjustment than most babies must. His crying and literal screaming

does not seem to let up until we take his brace off. He wants to be

held and walked with CONSTANTLY while his brace is on, which is

exhausting. We have no relief, and it does not seem to be getting

any better. If he were going to adjust to this brace, I would

expect his crying and screaming to get a little better, but it

hasn't. I have cried for over a week now and I feel horrible for my

baby...it's like we're torturing him.

After speaking with Dr. Ponseti, we have ordered the shoes,

which he is confident will make our baby more comfortable. I'm

praying like crazy that will be true. My question is, has anyone

else had an adjustment period that has seemed to be much more

difficult than the norm? Also, has anyone had a child switch from

the Markell to the brace? Was there an improvement?

Sorry for such a long post, but we are so grateful for any

reassurance and support that may be offered.

Thank you,

Lindsey

Mommy to:

Marcus Nov. 2005 LCF ( FAB 16-18 hours/day)

and March 2001

---------------------------------

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[Guest guest]

Dear Lindsey,

I hope things do improve for you soon. I think the FAB will help. My

2 year old started out in the Markell (what you have now) and it was like you

describe, just horrible. When we changed to shoes it was awesome.

s are all I will use now and have them on both my younger boys.

Aside from that, I would only advise you make sure your child is corrected

enough to even be in a FAB at this point. Dr. Ponseti did my kids, so I knew

they were corrected despite Everett's horrible reaction to the markells - but if

your baby's feet are not ready for a brace, the brace will hurt and be horrible.

ee

Mother of 3 Clubfooted Sons:

- Bilateral Club Feet April 1998

Everett - Bilateral Club Feet September 2003

Garrison - Bilateral Club Feet March 2006

Visit us on the Web!

www.WildlifeRevivalTaxidermy.com

shoes

Hi!

My husband and I just joined the group over the weekend, as we are

in desperate need of some support. Our son is 3 months old, has

unilateral clubfoot, and has had the standard DBB with the white

Markell shoes for a week now. We have already been to see our ortho

Dr. once, spoken to him by phone several times, and have conversed

with Dr. Ponseti via e-mail twice.....all in the last week. Our

lives have been a nightmare since our son got his brace. He screams

and cries constantly and will not sleep. I have read other messages

that have been posted about hanging in there through the adjustment

period that most babies experience with the brace, but I feel like

our son is apparently having a MUCH more difficult time with this

adjustment than most babies must. His crying and literal screaming

does not seem to let up until we take his brace off. He wants to be

held and walked with CONSTANTLY while his brace is on, which is

exhausting. We have no relief, and it does not seem to be getting

any better. If he were going to adjust to this brace, I would

expect his crying and screaming to get a little better, but it

hasn't. I have cried for over a week now and I feel horrible for my

baby...it's like we're torturing him.

After speaking with Dr. Ponseti, we have ordered the shoes,

which he is confident will make our baby more comfortable. I'm

praying like crazy that will be true. My question is, has anyone

else had an adjustment period that has seemed to be much more

difficult than the norm? Also, has anyone had a child switch from

the Markell to the brace? Was there an improvement?

Sorry for such a long post, but we are so grateful for any

reassurance and support that may be offered.

Thank you,

Lindsey

------------------------------------------------------------------------------

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Checked by AVG Free Edition.

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[Guest guest]

Hi ,

My daughter is 4 months old and we changed from the Markells to the

s 2 weeks ago, and we have a different baby. She HATED being

in the Markells - she would scream and scream and never seemed

comfortable. She developed nasty blisters too....

Anyway, since we got the s she is so happy - she doesn't even

cry when we put them on! The first day she was in them she was a

little bit grumpy, but by day 2 she was a happy happy baby. They

truly have been a Godsend!

>

> Hi!

>

> My husband and I just joined the group over the weekend, as we are

> in desperate need of some support. Our son is 3 months old, has

> unilateral clubfoot, and has had the standard DBB with the white

> Markell shoes for a week now. We have already been to see our

ortho

> Dr. once, spoken to him by phone several times, and have conversed

> with Dr. Ponseti via e-mail twice.....all in the last week. Our

> lives have been a nightmare since our son got his brace. He

screams

> and cries constantly and will not sleep. I have read other

messages

> that have been posted about hanging in there through the adjustment

> period that most babies experience with the brace, but I feel like

> our son is apparently having a MUCH more difficult time with this

> adjustment than most babies must. His crying and literal screaming

> does not seem to let up until we take his brace off. He wants to

be

> held and walked with CONSTANTLY while his brace is on, which is

> exhausting. We have no relief, and it does not seem to be getting

> any better. If he were going to adjust to this brace, I would

> expect his crying and screaming to get a little better, but it

> hasn't. I have cried for over a week now and I feel horrible for my

> baby...it's like we're torturing him.

>

> After speaking with Dr. Ponseti, we have ordered the

shoes,

> which he is confident will make our baby more comfortable. I'm

> praying like crazy that will be true. My question is, has anyone

> else had an adjustment period that has seemed to be much more

> difficult than the norm? Also, has anyone had a child switch from

> the Markell to the brace? Was there an improvement?

>

> Sorry for such a long post, but we are so grateful for any

> reassurance and support that may be offered.

>

> Thank you,

> Lindsey

>

[Guest guest]

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: shoes

>Date: Mon, 17 Jul 2006 18:47:31 -0000

>

>Hi!

>

>My husband and I just joined the group over the weekend, as we are

>in desperate need of some support. Our son is 3 months old, has

>unilateral clubfoot, and has had the standard DBB with the white

>Markell shoes for a week now. We have already been to see our ortho

>Dr. once, spoken to him by phone several times, and have conversed

>with Dr. Ponseti via e-mail twice.....all in the last week. Our

>lives have been a nightmare since our son got his brace. He screams

>and cries constantly and will not sleep. I have read other messages

>that have been posted about hanging in there through the adjustment

>period that most babies experience with the brace, but I feel like

>our son is apparently having a MUCH more difficult time with this

>adjustment than most babies must. His crying and literal screaming

>does not seem to let up until we take his brace off. He wants to be

>held and walked with CONSTANTLY while his brace is on, which is

>exhausting. We have no relief, and it does not seem to be getting

>any better. If he were going to adjust to this brace, I would

>expect his crying and screaming to get a little better, but it

>hasn't. I have cried for over a week now and I feel horrible for my

>baby...it's like we're torturing him.

>

>After speaking with Dr. Ponseti, we have ordered the shoes,

>which he is confident will make our baby more comfortable. I'm

>praying like crazy that will be true. My question is, has anyone

>else had an adjustment period that has seemed to be much more

>difficult than the norm? Also, has anyone had a child switch from

>the Markell to the brace? Was there an improvement?

>

>Sorry for such a long post, but we are so grateful for any

>reassurance and support that may be offered.

>

>Thank you,

>Lindsey

>

>

>

>

>

[Guest guest]

Hi Lindsey, My daughter , now almost 9 months old, started out in the

Markells and lasted only a day because they gave her a bad pressure sore.

We switched to the s and, besides some minor red spots which went

away with padding under the shoes, we have had no problems. Even with the

s, had a rough time adjusting and it took her a week or more

to really get back to her old self but nothing like you decribe. I think

you will find the s much more comfortable for your baby, even though

there may be an initial adjustment. Check back in with us after you get

them if you are still having any problems and we can help you trouble shoot

the issues. So many of us have been there, done that and lived to tell the

tale so we are here for support. Hang in there. It does get better and now

putting on 's shoes and her wearing them is really not an issue for

her at all. She crawls, pulls up, rolls over, etc. in and out of the brace.

Once your baby adjusts, it will not slow him down at all!

Carol

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: shoes

>Date: Mon, 17 Jul 2006 18:47:31 -0000

>

>Hi!

>

>My husband and I just joined the group over the weekend, as we are

>in desperate need of some support. Our son is 3 months old, has

>unilateral clubfoot, and has had the standard DBB with the white

>Markell shoes for a week now. We have already been to see our ortho

>Dr. once, spoken to him by phone several times, and have conversed

>with Dr. Ponseti via e-mail twice.....all in the last week. Our

>lives have been a nightmare since our son got his brace. He screams

>and cries constantly and will not sleep. I have read other messages

>that have been posted about hanging in there through the adjustment

>period that most babies experience with the brace, but I feel like

>our son is apparently having a MUCH more difficult time with this

>adjustment than most babies must. His crying and literal screaming

>does not seem to let up until we take his brace off. He wants to be

>held and walked with CONSTANTLY while his brace is on, which is

>exhausting. We have no relief, and it does not seem to be getting

>any better. If he were going to adjust to this brace, I would

>expect his crying and screaming to get a little better, but it

>hasn't. I have cried for over a week now and I feel horrible for my

>baby...it's like we're torturing him.

>

>After speaking with Dr. Ponseti, we have ordered the shoes,

>which he is confident will make our baby more comfortable. I'm

>praying like crazy that will be true. My question is, has anyone

>else had an adjustment period that has seemed to be much more

>difficult than the norm? Also, has anyone had a child switch from

>the Markell to the brace? Was there an improvement?

>

>Sorry for such a long post, but we are so grateful for any

>reassurance and support that may be offered.

>

>Thank you,

>Lindsey

>

>

>

>

>

[Guest guest]

Hi, Lindsey! Welcome to the group. You have definately come to the

right place! How long has your son been in the DBB? It does take

sometime to adjust, but usually not more than a week or two. We

experienced something very similar when our daughter was moved into

the Markells from casting. We actually " toughed it out " for about

three months with the screaming and sleepless nights, because her

ortho kept telling us that it was the nature of the beast (The

Markells), but that it was necessary. He said that all mothers

complain about this, but that we would have to suck it up until she

went into Kindergarten or so. Out of complete exhaustion, I

tearfully found this group, and eventually emailed Dr. Ponseti. You

are way ahead of the curve with that one! =0) Dr. Ponseti eventually

asked for pictures of specific views of her feet to be emailed to

him. He then determined that she was not fully corrected and that we

should seek out another doctor. Despite other doc's recommendations

from Dr. Ponseti, we decided to go straight to him. Although I

thought my daughter's feet looked corrected, there was a drastic

difference after our visits with Dr. Ponseti! He recasted her, and

then had us get the s for her. The combination of the now-

corrected feet and the more logical Birkenstock-like shoes is

heavenly. She has now been in her s for almost 6 months and

she sleeps for 12 hours straight through the night, without fail.

Since you have already ordered the s, I would encourage you

to stay strong with the DBB in the meantime. You don't want to lose

correction! There is a light at the end of the tunnel, and it

includes sleep.

Hang in there!

>

> Hi!

>

> My husband and I just joined the group over the weekend, as we are

> in desperate need of some support. Our son is 3 months old, has

> unilateral clubfoot, and has had the standard DBB with the white

> Markell shoes for a week now. We have already been to see our

ortho

> Dr. once, spoken to him by phone several times, and have conversed

> with Dr. Ponseti via e-mail twice.....all in the last week. Our

> lives have been a nightmare since our son got his brace. He

screams

> and cries constantly and will not sleep. I have read other

messages

> that have been posted about hanging in there through the

adjustment

> period that most babies experience with the brace, but I feel like

> our son is apparently having a MUCH more difficult time with this

> adjustment than most babies must. His crying and literal

screaming

> does not seem to let up until we take his brace off. He wants to

be

> held and walked with CONSTANTLY while his brace is on, which is

> exhausting. We have no relief, and it does not seem to be getting

> any better. If he were going to adjust to this brace, I would

> expect his crying and screaming to get a little better, but it

> hasn't. I have cried for over a week now and I feel horrible for

my

> baby...it's like we're torturing him.

>

> After speaking with Dr. Ponseti, we have ordered the

shoes,

> which he is confident will make our baby more comfortable. I'm

> praying like crazy that will be true. My question is, has anyone

> else had an adjustment period that has seemed to be much more

> difficult than the norm? Also, has anyone had a child switch from

> the Markell to the brace? Was there an improvement?

>

> Sorry for such a long post, but we are so grateful for any

> reassurance and support that may be offered.

>

> Thank you,

> Lindsey

>

[Guest guest]

I was going to suggest that perhaps they weren't fully corrected as well. It is

a good suggestion to email Dr. Ponseti some pics.

Chris

Re: shoes

Hi, Lindsey! Welcome to the group. You have definately come to the

right place! How long has your son been in the DBB? It does take

sometime to adjust, but usually not more than a week or two. We

experienced something very similar when our daughter was moved into

the Markells from casting. We actually " toughed it out " for about

three months with the screaming and sleepless nights, because her

ortho kept telling us that it was the nature of the beast (The

Markells), but that it was necessary. He said that all mothers

complain about this, but that we would have to suck it up until she

went into Kindergarten or so. Out of complete exhaustion, I

tearfully found this group, and eventually emailed Dr. Ponseti. You

are way ahead of the curve with that one! =0) Dr. Ponseti eventually

asked for pictures of specific views of her feet to be emailed to

him. He then determined that she was not fully corrected and that we

should seek out another doctor. Despite other doc's recommendations

from Dr. Ponseti, we decided to go straight to him. Although I

thought my daughter's feet looked corrected, there was a drastic

difference after our visits with Dr. Ponseti! He recasted her, and

then had us get the s for her. The combination of the now-

corrected feet and the more logical Birkenstock-like shoes is

heavenly. She has now been in her s for almost 6 months and

she sleeps for 12 hours straight through the night, without fail.

Since you have already ordered the s, I would encourage you

to stay strong with the DBB in the meantime. You don't want to lose

correction! There is a light at the end of the tunnel, and it

includes sleep.

Hang in there!

>

> Hi!

>

> My husband and I just joined the group over the weekend, as we are

> in desperate need of some support. Our son is 3 months old, has

> unilateral clubfoot, and has had the standard DBB with the white

> Markell shoes for a week now. We have already been to see our

ortho

> Dr. once, spoken to him by phone several times, and have conversed

> with Dr. Ponseti via e-mail twice.....all in the last week. Our

> lives have been a nightmare since our son got his brace. He

screams

> and cries constantly and will not sleep. I have read other

messages

> that have been posted about hanging in there through the

adjustment

> period that most babies experience with the brace, but I feel like

> our son is apparently having a MUCH more difficult time with this

> adjustment than most babies must. His crying and literal

screaming

> does not seem to let up until we take his brace off. He wants to

be

> held and walked with CONSTANTLY while his brace is on, which is

> exhausting. We have no relief, and it does not seem to be getting

> any better. If he were going to adjust to this brace, I would

> expect his crying and screaming to get a little better, but it

> hasn't. I have cried for over a week now and I feel horrible for

my

> baby...it's like we're torturing him.

>

> After speaking with Dr. Ponseti, we have ordered the

shoes,

> which he is confident will make our baby more comfortable. I'm

> praying like crazy that will be true. My question is, has anyone

> else had an adjustment period that has seemed to be much more

> difficult than the norm? Also, has anyone had a child switch from

> the Markell to the brace? Was there an improvement?

>

> Sorry for such a long post, but we are so grateful for any

> reassurance and support that may be offered.

>

> Thank you,

> Lindsey

>

[Guest guest]

, that is so re-assuring to hear that. My son also was in the

Markells, and hated every minute of them. We will be going in to the

s in about a month or so.

--- " amandadaze " wrote:

> > > > > > > > > > > > > >

> > >

>

>

> >

> > Hi ,

> > My daughter is 4 months old and we changed from the Markells to the

> > s 2 weeks ago, and we have a different baby. She HATED being

> > in the Markells - she would scream and scream and never seemed

> > comfortable. She developed nasty blisters too....

> > Anyway, since we got the s she is so happy - she doesn't even

> > cry when we put them on! The first day she was in them she was a

> > little bit grumpy, but by day 2 she was a happy happy baby. They

> > truly have been a Godsend!

> >

> >

> >

> >

> > >

> > > Hi!

> > >

> > > My husband and I just joined the group over the weekend, as we are

> > > in desperate need of some support. Our son is 3 months old, has

> > > unilateral clubfoot, and has had the standard DBB with the white

> > > Markell shoes for a week now. We have already been to see our

> > ortho

> > > Dr. once, spoken to him by phone several times, and have conversed

> > > with Dr. Ponseti via e-mail twice.....all in the last week. Our

> > > lives have been a nightmare since our son got his brace. He

> > screams

> > > and cries constantly and will not sleep. I have read other

> > messages

> > > that have been posted about hanging in there through the adjustment

> > > period that most babies experience with the brace, but I feel like

> > > our son is apparently having a MUCH more difficult time with this

> > > adjustment than most babies must. His crying and literal screaming

> > > does not seem to let up until we take his brace off. He wants to

> > be

> > > held and walked with CONSTANTLY while his brace is on, which is

> > > exhausting. We have no relief, and it does not seem to be getting

> > > any better. If he were going to adjust to this brace, I would

> > > expect his crying and screaming to get a little better, but it

> > > hasn't. I have cried for over a week now and I feel horrible for my

> > > baby...it's like we're torturing him.

> > >

> > > After speaking with Dr. Ponseti, we have ordered the

> > shoes,

> > > which he is confident will make our baby more comfortable. I'm

> > > praying like crazy that will be true. My question is, has anyone

> > > else had an adjustment period that has seemed to be much more

> > > difficult than the norm? Also, has anyone had a child switch from

> > > the Markell to the brace? Was there an improvement?

> > >

> > > Sorry for such a long post, but we are so grateful for any

> > > reassurance and support that may be offered.

> > >

> > > Thank you,

> > > Lindsey

> > >

> >

> > >

> >

>

> > > > > > > #ygrp-mlmsg {font-size:13px; font-family:

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> > > > > >

[Guest guest]

:

This all sounds so similar to what we are going through right now! Thanks

for the reassuring info.!!!

We actually are going to meet Dr. P next week, so it sounds like we are on

our way down the right path!

Thanks again

--- " cricketsmom05 " wrote:

> > > > > > > > > > > > > >

> > >

>

> Hi, Lindsey! Welcome to the group. You have definately come to the

> > right place! How long has your son been in the DBB? It does take

> > sometime to adjust, but usually not more than a week or two. We

> > experienced something very similar when our daughter was moved into

> > the Markells from casting. We actually " toughed it out " for about

> > three months with the screaming and sleepless nights, because her

> > ortho kept telling us that it was the nature of the beast (The

> > Markells), but that it was necessary. He said that all mothers

> > complain about this, but that we would have to suck it up until she

> > went into Kindergarten or so. Out of complete exhaustion, I

> > tearfully found this group, and eventually emailed Dr. Ponseti. You

> > are way ahead of the curve with that one! =0) Dr. Ponseti eventually

> > asked for pictures of specific views of her feet to be emailed to

> > him. He then determined that she was not fully corrected and that we

> > should seek out another doctor. Despite other doc's recommendations

> > from Dr. Ponseti, we decided to go straight to him. Although I

> > thought my daughter's feet looked corrected, there was a drastic

> > difference after our visits with Dr. Ponseti! He recasted her, and

> > then had us get the s for her. The combination of the now-

> > corrected feet and the more logical Birkenstock-like shoes is

> > heavenly. She has now been in her s for almost 6 months and

> > she sleeps for 12 hours straight through the night, without fail.

> > Since you have already ordered the s, I would encourage you

> > to stay strong with the DBB in the meantime. You don't want to lose

> > correction! There is a light at the end of the tunnel, and it

> > includes sleep.

> > Hang in there!

> >

> >

> >

> > >

> > > Hi!

> > >

> > > My husband and I just joined the group over the weekend, as we are

> > > in desperate need of some support. Our son is 3 months old, has

> > > unilateral clubfoot, and has had the standard DBB with the white

> > > Markell shoes for a week now. We have already been to see our

> > ortho

> > > Dr. once, spoken to him by phone several times, and have conversed

> > > with Dr. Ponseti via e-mail twice.....all in the last week. Our

> > > lives have been a nightmare since our son got his brace. He

> > screams

> > > and cries constantly and will not sleep. I have read other

> > messages

> > > that have been posted about hanging in there through the

> > adjustment

> > > period that most babies experience with the brace, but I feel like

> > > our son is apparently having a MUCH more difficult time with this

> > > adjustment than most babies must. His crying and literal

> > screaming

> > > does not seem to let up until we take his brace off. He wants to

> > be

> > > held and walked with CONSTANTLY while his brace is on, which is

> > > exhausting. We have no relief, and it does not seem to be getting

> > > any better. If he were going to adjust to this brace, I would

> > > expect his crying and screaming to get a little better, but it

> > > hasn't. I have cried for over a week now and I feel horrible for

> > my

> > > baby...it's like we're torturing him.

> > >

> > > After speaking with Dr. Ponseti, we have ordered the

> > shoes,

> > > which he is confident will make our baby more comfortable. I'm

> > > praying like crazy that will be true. My question is, has anyone

> > > else had an adjustment period that has seemed to be much more

> > > difficult than the norm? Also, has anyone had a child switch from

> > > the Markell to the brace? Was there an improvement?

> > >

> > > Sorry for such a long post, but we are so grateful for any

> > > reassurance and support that may be offered.

> > >

> > > Thank you,

> > > Lindsey

> > >

> >

> > >

> >

>

> > > > > > > #ygrp-mlmsg {font-size:13px; font-family:

arial,helvetica,clean,sans-serif;*font-size:small;*font:x-small;}

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> padding-top: 10px;

> font-family: Verdana;

> font-size: 77%;

> margin: 0;

> }

> #ygrp-vitnav a{

> padding: 0 1px;

> }

> #ygrp-actbar{

> clear: both;

> margin: 25px 0;

> white-space:nowrap;

> color: #666;

> text-align: right;

> }

> #ygrp-actbar .left{

> float: left;

> white-space:nowrap;

> }

> ..bld{font-weight:bold;}

> #ygrp-grft{

> font-family: Verdana;

> font-size: 77%;

> padding: 15px 0;

> }

> #ygrp-ft{

> font-family: verdana;

> font-size: 77%;

> border-top: 1px solid #666;

> padding: 5px 0;

> }

> #ygrp-mlmsg #logo{

> padding-bottom: 10px;

> }

> > #ygrp-vital{

> background-color: #e0ecee;

> margin-bottom: 20px;

> padding: 2px 0 8px 8px;

> }

> #ygrp-vital #vithd{

> font-size: 77%;

> font-family: Verdana;

> font-weight: bold;

> color: #333;

> text-transform: uppercase;

> }

> #ygrp-vital ul{

> padding: 0;

> margin: 2px 0;

> }

> #ygrp-vital ul li{

> list-style-type: none;

> clear: both;

> border: 1px solid #e0ecee;

> }

> #ygrp-vital ul li .ct{

> font-weight: bold;

> color: #ff7900;

> float: right;

> width: 2em;

[Guest guest]

I swear someone mentioned on here a brand of shoe that was adjustable

for 2 or 3 sizes. Does anyone remember what brand they were? I could

have imagined it. thanks in advance

Michele