Bar length problem continues

[Guest guest]

Well it's been almost a week now since I e-mailed the MD in Stuttgart

and he hasn't written back yet...he might be on vacation. In the

meantime I wanted to know if it is harming anything w/ a bar length

that might be too short other than comfort problems.

I have to admit I have been liberal w/ having his bar off at night.

As in, last night he woke up crying hard when he turned over for a

position change. He has been trying new positions (lying on his

belly, on his side, legs up in the air). His legs seemed very

sensitive. I took his bar off for a couple of hours during the night.

He is fine during the night.

Also I posted one more picture of him and of course his feet. It's

very difficult to take pics of a 6month olds feet

FYI:he has a s/p unilateral left clubfoot

Thanks,

Dawn

Hi

> Kori and Kim,

> > Read you message this morning and it's the exact same question I

> > have. My son has a left clubfoot only--set at 30degrees w/ a

full

> > tilt and the right is also set at 30degrees w/ no tilt. My son

> has

> > the DBB or what is on the bar is actually " UNI-Bar " and open toe

> > shoes (Mayzaud). He has been in w/ the DBB since Feb and is now

> > 6months old today. He only required 2 castings since his foot

was

> > a " soft " deformity.

> >

> > What he has been having problems w/ lately is getting

comfortable

> at

> > night and at naptime since he wants to sleep on his side. I

have

> > tried to show him how to sleep w/ his bar propped on the side of

> the

> > crib, and even tried to put a blanket between his legs for

support

> > trying to get him comfortable. He continues to wake at

> night...I've

> > ruled out other causes such as teething, gas pains, and too

warm.

> > When I initially lay him in bed he goes for the side lying

> position.

> > I thought the bar length was possibly to be the problem but was

> > unsure about how to measure the length.

> >

> > Using the advise from Kori, I measured his bar

> > shoulders: 23 cm

> > screw to screw: 23 1/2 cm

> > heel to heel (inside): 17 1/2 cm

> >

> > Last night I took some pics to show since I've been looking at

him

> > and wondering if he is actually comfortable...his knees extend

out

> > past his ankles and his foot left foot is tilted up. Sometimes

> his

> > legs seem sensitive if I need to remove his bar in the middle of

> the

> > night to change his diaper.

> >

> > I asked my doctor about how to determine bar length since we

will

> not

> > see him until Oct (the next follow-up appt). He basically told

me

> he

> > will not require a new bar. My son is a big little guy (19# at

> > 6months and wears 12-18mo clothes) and I'm concerned we will be

> > running into some comfort issues between now and then and would

> like

> > to be sure.

> >

> > I trust our MD to some extent, but w/ the appliances I don't

trust

> > him. We ran into the same problem w/ his shoes...he told me he

> would

> > not require new shoes, even though his toes were extending from

> his

> > shoes and his foot had been in the same shoes for the previous 3

> > months. It came down to comfort one night and I had to remove

his

> > shoes for most of the night. The following day we got new shoes

> for

> > my son. (The ladies at the shoe store said definitely he needed

> new

> > shoes.) It made a huge difference!

> >

> > I put 3 pics under photos (Mathieu) ...would you mind, Kori,

> looking

> > at them for me and letting me know what your thoughts are?

> >

> > Thanks,

> > Dawn

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > See the all-new, redesigned Yahoo.com. Check it out.

> >

> >