Re: Re: Parents Support Groups on the Internet

[Guest guest]

Hi

This is Ana Teixeira from São o Brazil. For many reasons I have got no

web site yet but I moderate:

at Yahoo Brazil:

petorto@... parents support list

at Orkut:

Pé torto técnica Ponseti parents support community

at Google Groups:

Associacao-Brasileira-Pe-Torto---Tecnica-Ponseti (AT) googlegroups (DOT) com

parents support list

At Orkut there is two other communities about clubfoot but not specifically

about the Ponseti technique. It is because most of participants are adults

born with clubfoot and as they had no information at their bith time about

the technique, they need time to know it. Many mothers and I have a lot of

work to show these people that the surgery is not the only option, to me,

the worst.

You must be aware that the Brazilian Orthopaedic Society is trainning

doctors all over the country. It's still in the beginning (we have a huge

country to cover!) but it has bean yet! So, probaly there will be other web

sites and lists. I'll keep in touch to let you know all about it.

My warmest regards

Ana Teixeira

>

> Hi ,

>

> Moss now has the official Steps Charity - South Africa site up

> and running - it's www.steps.org.za

>

>

>

>

> >

> > I am trying to update a list of Parents Support Clubfoot message

> > groups on the internet around the world. If you are aware of any

> > other groups could you please post it's e-mail link, country and

> > year that it started.

> >

> > Thanks,

> >

> > and (born 3-17-1999)

> >

> >

> >

> > North American / International Web sites

> >

> > Clubfoot at Parentsplace - http://messageboards.ivillage.com/iv-

> > ppclubfoot?redirCnt=1

> >

> > Clubfoot at Yahoo - http://groups.yahoo.com/group/clubfoot/

> >

> > Ponseti - Nosurgery4clubfoot at Yahoo -

> > http://groups.yahoo.com/group/nosurgery4clubfoot/

> >

> > Adults w/Clubfoot at Yahoo -

> > http://groups.yahoo.com/group/Thefeetclub/

> >

> > French Physiotherapy at Yahoo -

> > http://groups.yahoo.com/group/clubfoot_French_method/

> >

> > Inter. Rare Disease Support Network -

> > http://health.groups.yahoo.com/group/Club_Foot/

> >

> > Clubfoot Canada http://health.groups.yahoo.com/group/clubfootcanada/

> >

> > Surgical

> > Clubfootershttp://health.groups.yahoo.com/group/surgical_clubfooters/

> >

> >

> > United Kingdom, Australian Web Sites

> >

> > STEPS - http://www.steps-charity.org.uk/ctev_discuss_frm.htm

> >

> > TIPS - http://home.vicnet.net.au/~tips/index.htm#

> > Talipes UK at Yahoo - http://groups.yahoo.com/group/talipesuk/

> > Australian Talipes at Yahoo -

> > http://au.groups.yahoo.com/group/AustFoot/

> > Clubfoot.co <http://clubfoot.co/>.uk http://www.clubfoot.co.uk/

> >

> > Spain

> >

> > Pie Zambo, Ponseti specific, Cristina and -

> > http://www.piezambo.com/

> >

> > France

> >

> > Pied Bot Free http://piedbot.free.fr/

> > Hospital Debrousse, Lyon - Ponseti Specific -

> > http://ifrance.com/piedbot/

> >

> > Germany

> >

> > Klumpfuss-Info http://www.klumpfuss-info.de/

> > Klumpfusskinder http://www.klumpfusskinder.de/

> > Klumpfuss - Ein Erfahrungsbericht - http://home.arcor.de/hhallbauer/

> >

> > Switzerland

> >

> > Klumpfuss-Info (Switzerland) - Ponseti specific http://www.klumpfuss-

> > info.ch

> >

> > Netherlands

> >

> > Vereniging Oudergroep Klompvoetjes - http://www.klompvoet.nl/

> >

> > Finland

> >

> > kampurajalka-subscribe@... -

>

> > http://health.groups.yahoo.com/group/Kampurajalka/

> >

> > Brazil

> >

> > Pe Torto - http://www.petorto.com.br/

> >

> > Portugal

> >

> > Pe Boto http://www.peboto.grupos.com.pt/

> >

> > South Africa

> >

> > karen@... - Moss http://www.clubfoot.co.za

>

> >

> > Israel

> >

> > Truly Clubfoot, Truly Yours - Oded & Idit -

> > http://truly_clubfoot.tripod.com/

> >

> > Clubfoot Israel at Yahoo -

> > http://health.groups.yahoo.com/group/clubfoot_israel/

> >

> > Sweden

> >

> > Wiggo Wikbergs lilla vrå -

> > http://w1.652.telia.com/~u65203641/baby/indexa.htm

> >

> > Bulgaria

> >

> > The Nikolova Family - http://equinovarus.hit.bg/

> >

> > Lithuania

> >

> > Jolanta Kavaliauskienë Family -

> > http://www.sleivapedyste.projektas.lt/

> >

>

>

>