Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Natha has got an Appointment to see Dr Dobbs. on March 13th. now trying to figure out how we are goin to get up there. Andy is working on it and supposed to call me back tomorrow on that. just thought i would let yall know. Everyone has been a great help on this board. Im glad ther eis a place like this for us that dont know anything about it to come and talk to ppl that have experienced it all Amber MOther to born 12-6-05 BCF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2011 Report Share Posted February 1, 2011 That is very good news . I hope it stays that way for you.Take care. mattSubject: RE: Good NewsTo: "keith@... " , " Neurosarcoidosis " <Neurosarcoidosis >Date: Tuesday, February 1, 2011, 1:02 PMGreat news, ! Good NewsI saw the neurologist today, who told me that the NS is in remission. The ACE results were well below the max and I am to reduce the Preds over the next few weeks. Thank the Lord for His mercy.Unfortunately, there is also some not good news, in that there has been quite a lot of deterioration in the spine, which means a trip to the orthopaedic surgeon tomorrow, with the prospect of some scaffolding. But, thank the Lord, it is a known procedure that is successful - and we know that the problem can be solved.I'll be in touch as things develop.God bless,------------------------------------~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis Community Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2011 Report Share Posted February 2, 2011 , I hope you have gotten good info on risks of the surgery & what the odds of success are. I have severe degenerative disc disease--all the lumbar & cervical discs & most of thoracic. I have stenosis & disc compression causing pretty constant back & left leg pain. I almost had surgery a few years ago, but a doctor friend talked me into trying MBSR (Mindfulness-Based Stress Reduction) & it eased the pain enough to avoid surgery. I actually took classes, but there is plenty of info on the Web. I have a friend who's had similar problems for years. I didn't know until she had already had the surgery or I would have tried to talk her out of it. She had a disc decompression, which actually worsened her leg pain. After months of suffering & being unable to work more than 3-4 hrs a day, she is having more surgery. This time they will remove the disc & fuse her spine. This procedure is not always successful, but I hope & pray that it is. If your main symptom is back pain, you have a better chance of symptom relief than if leg pain is the big problem. In my case I can tolerate the back pain much better than the leg pain, so even if I'd had surgery & it helped my back, I'd still be in a lot of pain. Seeing what my friend Donna is going thru makes me very glad I didn't do it. Now there are some times the surgery is vital--if you are having loss of bowel or bladder function, footdrop, etc. But that is an emergency situation & they wouldn't wait for weeks. It's so tempting to think that you can have surgery & fix the problem. Well, that's true for appendicitis, but not back problems. The unfortunate thing is that you can always find a surgeon to do it. When my surgeon of choice refused because she felt the chance of success did not outweigh the risk, I found another surgeon that agreed to operate. I'm thankful that my friend talked me out of it. Now I have known people that were very happy with the results of back surgery, but I know many more who regretted it. So my unsolicited advice is to do lots of your own research, get another opinion (not a doc your surgeon recommends as they are likely to have similar philosophies), and get a book called " Back Sense. " i can't think of the authors, but you can find it on Amazon. I got a used copy & have loaned it out to several people. Well, that's my story & I'm stickin' to it! Re: Good News > > Thank you very much, Marla. Many thanks also for the encouragement and > advice that you and everyone else in the group has given over the past > months. > > Best regards, > > > On Mon, 31 Jan 2011 23:35:26 -0700, Marla Bramer > wro Quote Link to comment Share on other sites More sharing options...
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