Re: RSS and ear infections - Tammy

[Guest guest]

Hi Tammy,

, too, had numerous ear infections. He was referred to an ENT last

Oct. He had tubes placed at the end of January. Since then, he's had several

ear infections. You can tell he has one, when there is thick yellow

fluid/pus draining out of his ears. However, he no longer seems to run a

fever, and he doesn't experience the pain that he used to. We were also told

that this would help protect his hearing.

Pat (g-ma to , RSS, 3 yrs 5 months old, 23#, 33 " , G-tube, GHT)

[Guest guest]

I want to thank everyone for your responses to having so many ear

infections. I have decided to find an ENT. I think it will probably be the

best thing to do for her right now. I will let you know what happens.

Thank you,

Tammy

pcpets wrote:

Hi Tammy,

, too, had numerous ear infections. He was referred to an ENT last

Oct. He had tubes placed at the end of January. Since then, he's had several

ear infections. You can tell he has one, when there is thick yellow

fluid/pus draining out of his ears. However, he no longer seems to run a

fever, and he doesn't experience the pain that he used to. We were also told

that this would help protect his hearing.

Pat (g-ma to , RSS, 3 yrs 5 months old, 23#, 33 " , G-tube, GHT)

---------------------------------

[Guest guest]

Hi Tammy,

Did have a fundo done when her tube was placed?? And is she on any

reflux meds??

had a fundo, and is on both a PPI (Prevacid) and an H2A (Zantac),

but is STILL refluxing. Dr H counted 6 times in 10 minutes at the convention

last year! The Pulmonologist, and the ENT think that this is one of the

major causes for all his sinus, ear, and lung infections!

We did take him to an Allergist/Immunologist. They tested him for 20 most

common allergens, and all the tests came back negative. This really

surprised us, as allergies run rampant on BOTH sides of his family!

Pat (g-ma to , RSS, 3 yrs 6 months old, 23#, 33 " , G-tube, GHT)

[Guest guest]

Pat,

did have a fundo done when her tube was placed. She is also on Prevacid

15mg and Reglan 1ml.

As long as she takes the Prevacid she doesn't reflux (as often). Before Prevacid

she refluxed at least 5-6x a day. She does have a really bad gag reflex, which

makes her throw up a lot easier. Also, when she gets congested (which is pretty

often) she tends to reflux more. I've heard that reflux can cause the ear

infections among other things.

Do you put on a feeding pump at night. Which one do you use and how do

you keep his tube in.

We use the Kangaroo 324 and use tegaderm to tape down the tubings at night.

Tammy

Mom to 19mos 14lb 13oz, 25 inches RSS, GERD, g-tube, fundo and GHT and

6 yrs and ADHD.

pcpets wrote:

Hi Tammy,

Did have a fundo done when her tube was placed?? And is she on any

reflux meds??

had a fundo, and is on both a PPI (Prevacid) and an H2A (Zantac),

but is STILL refluxing. Dr H counted 6 times in 10 minutes at the convention

last year! The Pulmonologist, and the ENT think that this is one of the

major causes for all his sinus, ear, and lung infections!

We did take him to an Allergist/Immunologist. They tested him for 20 most

common allergens, and all the tests came back negative. This really

surprised us, as allergies run rampant on BOTH sides of his family!

Pat (g-ma to , RSS, 3 yrs 6 months old, 23#, 33 " , G-tube, GHT)

---------------------------------

[Guest guest]

Hey Tammy,

is continuously tube fed, 100%, all day and night long. We tape his

tube to the front of his diaper, so that there is no way he can pull on the

button at all. It works well for us now, but I have no idea how we're going

to secure the tube when he's finally potty trained. is allergic to

adhesive. He gets a bubbly rash anywhere it touches his skin, and when you

pull the tape off, his skin comes off with it!

uses the Zevex Enteralite Pump. We LOVE it!! He was on the Kangaroo

" Pet " for several months, and we all thought we would go insane. The Pet did

nothing BUT alarm. The Zevex doesn't impede 's movement in the least.

He wears it in a small backpack (it's actually a converted camera case)

during the day, and I attach it to his toddler bed during the night.

Pat (g-ma to , RSS, 3 yrs 5 months old, 23#, 33 " , G-tube, GHT)