Re: Thanks for all the prayers, conrats and info for Summer

[Guest guest]

My son's feeding problems were way too severe for this, but I was offered

this feeder that is supplemental to breast feeding - it is either pumped

breastmilk or formula in a bag with a tube coming out which is taped to the

side of the breast to help get milk available to the baby which is easier

to suck.

We later realized that Tim had (and has) severe appetite problems from the

RSS, but he also had a very small chin and a weak muscle tone as a baby, so

that's why the breastfeeding clinic suggested these things, I think...

Inga

At 08:05 PM 7/16/2005 +0000, you wrote:

>Hi I am hoping this will post, have had a lot of trouble posting have

>tried a few times over last couple of days. She has been diagnosed

>with reflux and malacia and now she is struggling to gain weight

>because her feeds are so difficult for her. Theya re talking tube in

>the nose or pumped milk (she is breasfed) with added stuff in it...not

>sure which to do. She gets so worn our from feeds she can't maintain

>them...hopefully will be home in a couple of days, will keep you

>updateda as I can. Only one post I have tried has gone through so I am

>keeping my fingers crossed this will too. Thanks for everything.

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[Guest guest]

I know I can't help but I have been thinking of you hoping it all works

out well soon...

, mom to 5 and Emerence 29mo 21lb 32 "

> Hi I am hoping this will post, have had a lot of trouble posting have

> tried a few times over last couple of days. She has been diagnosed

> with reflux and malacia and now she is struggling to gain weight

> because her feeds are so difficult for her. Theya re talking tube in

> the nose or pumped milk (she is breasfed) with added stuff in

it...not

> sure which to do. She gets so worn our from feeds she can't maintain

> them...hopefully will be home in a couple of days, will keep you

> updateda as I can. Only one post I have tried has gone through so I

am

> keeping my fingers crossed this will too. Thanks for everything.

>

>

[Guest guest]

,

I got your email, too, but wanted to let you know that I am glad that

they found out what was going on with Summer. I knew it sounded just

like with his malacia. Just go with your gut on what to do.

Just make sure she does get the extra calories because that will help

her endurance as well once she starts putting on some more weight and

gets stronger. got really worn out when I tried to breastfeed

him, too. Even the bottle was too hard for him. He would sleep forever

after a session. It as just the right decision for us to continue to

give him the breastmilk with human milk fortifier added to it. I had

to pump my milk, but it was so worth it. It was the only thing he

could tolerate successfully. The other stuff made his reflux worse. I

still to this day think he had some milk intolerance. Even now he is

on a formula that is good for kids that have milk intolerance. Let us

know what you decide to do. I hope she continues to improve daily. I

know this is very hard for you. Take care and know that we all care

and are thinking about you and your family.

Jodi R.

> Hi I am hoping this will post, have had a lot of trouble posting have

> tried a few times over last couple of days. She has been diagnosed

> with reflux and malacia and now she is struggling to gain weight

> because her feeds are so difficult for her. Theya re talking tube in

> the nose or pumped milk (she is breasfed) with added stuff in

it...not

> sure which to do. She gets so worn our from feeds she can't maintain

> them...hopefully will be home in a couple of days, will keep you

> updateda as I can. Only one post I have tried has gone through so I

am

> keeping my fingers crossed this will too. Thanks for everything.

>

>