Re: 7 year old having pain

[Guest guest]

Joy,

I would be interested in speaking with you via phone as my daughter I suspect

has a leg length difference that the local ortho seems to ignore and think Im

full of it. IM NOT! As far as those pains, when I was younger and still (I didnt

have CF) I would get those pains that you are describing, and they always choked

it up as 'growing pains' and never checked me. Well when I was 17 my lower back

was hurting real bad, so I went to the Chiropractor, they did xrays and found

that I had a milder form of Scoliosis! I dont want to scare you, but her pains

may be valid. Check into that, if you find its not that, maybe check into a

slight shoe lift. I have heard that leg length differences that arnt treated by

lifts, etc. can take a toll of you skeletal structure and cause pain.

Christee

Mother of...

*Josh~Learning/Speech Delays (9)

**Aspen~ Bilateral Metatarsus Adductus (6)

***Dylan~PTSD/Anxiety (4)

****Lilee~A-Typical UCF w/Plantaris ® & Metatarsus Adductus (L)

*P/M Brace 16-18/24.Struggling w/pressure sores (8 months)

Concidering Dobbs bar & braces

---------------------------------

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[Guest guest]

Joy,

I agree with Christee's suggestion about maybe seeing a chiropractor

if your insurance covers it. I recently had at a chiropractor

too for an evaluation (just b/c it was free not b/c she had any

issues). They can check to make sure that her hips are level and

that she's got a correct stance that's not causing any issues.

Perhaps an orthotic in her shoe would help if the leg-length

difference is causing her to be off-kilter.

Did you feel or hear the popping noise that she complained of in her

ankle?

Do you notice if the complaints coincide with days where she's been

very active? When is Grant's next checkup for his feet? Maybe Dr.

Koop could take a look at Rose for you while you're there?

I understand your dilemma trying to figure out if her complaints

are " valid " or just typical kid behavior. I'm dealing with that all

the time too!

Hang in there!

>

> I've been really debating about posting this, but I need some

feedback.

>

> A little history: Rose started treatment with Dr. Ponseti after 6

months of

> casting for a unilateral left clubfoot. Dr. Ponseti did one cast,

and a week

> later he did the tenotomy. Rose was released from FAB wear at 2.5

due to loose

> ligaments. Last year, before kindergarten Rose was noticeably

weaker in her

> left leg, so she received some PT. It seemed to help. In

November Rose had a

> checkup with Dr. P, and he was very pleased with the function and

how Rose used

> her foot.

>

> About a month, or maybe even two, ago, Rose started complaining

about aches and

> pains. The top of her calf muscle ached, last week her hip hurt

(sounded like

> sciatica when she described it because the pain went down her

leg), and last

> night she complained of another ache. When she showed it to me,

she said it

> kept popping and had me feel it. It was right on, or next to her

tenotomy

> scar. When she rotated her foot while pointed, she said it would

sting like a

> bee sting (not that she's been stung, but that is what she said).

She's also

> had some knee complaints and has been complaining in gym class.

>

> Rose does have a slight leg length discrepancy, and I have to

wonder if it is

> contributing in some way. I keep wondering if it's normal aches

and pains

> (growing pains has been suggested by a couple of people), or if

it's something

> beyond that. With the arrival of Grant in our lives, who has

numerous doctor

> visits, I wonder if this is her bid for " attention " . I don't want

to dismiss

> it as that, in the event there is something wrong. I also worry

that she

> doesn't want to participate in gym for some reason. Any thoughts

or ideas??

> I'm thinking of emailing or calling Dr. Ponseti, but I thought

some feedback

> might be in order.

>

> Thanks!!

>

> Joy

>

> Rose (1-99)

http://www.geocities.com/joybelle15/rosesclubfootpage.html

> Iris (2-01)

> Spencer (3-03)

> Grant (9-05) http://www.caringbridge.org/visit/grantphilip

>

> __________________________________________________

>

[Guest guest]

Joy,

It sounds like you've thought of everything I would have suggested.

Growing pains would be my first guess. How big is her leg length

discrepancy? I have one, and I've never had any troubles directly

related to it. The thing with the achilles is odd, I don't recall

ever hearing anything like that. I would definitely email Dr. about

all of it, but especially that part.

Oh, I was also going to say that Rose is probably old enough to have a

conversation with about being in real pain vs. needing attention.

Best wishes,

>

> I've been really debating about posting this, but I need some

feedback.

>

> A little history: Rose started treatment with Dr. Ponseti after 6

months of

> casting for a unilateral left clubfoot. Dr. Ponseti did one cast,

and a week

> later he did the tenotomy. Rose was released from FAB wear at 2.5

due to loose

> ligaments. Last year, before kindergarten Rose was noticeably

weaker in her

> left leg, so she received some PT. It seemed to help. In November

Rose had a

> checkup with Dr. P, and he was very pleased with the function and

how Rose used

> her foot.

>

> About a month, or maybe even two, ago, Rose started complaining

about aches and

> pains. The top of her calf muscle ached, last week her hip hurt

(sounded like

> sciatica when she described it because the pain went down her leg),

and last

> night she complained of another ache. When she showed it to me, she

said it

> kept popping and had me feel it. It was right on, or next to her

tenotomy

> scar. When she rotated her foot while pointed, she said it would

sting like a

> bee sting (not that she's been stung, but that is what she said).

She's also

> had some knee complaints and has been complaining in gym class.

>

> Rose does have a slight leg length discrepancy, and I have to wonder

if it is

> contributing in some way. I keep wondering if it's normal aches and

pains

> (growing pains has been suggested by a couple of people), or if it's

something

> beyond that. With the arrival of Grant in our lives, who has

numerous doctor

> visits, I wonder if this is her bid for " attention " . I don't want

to dismiss

> it as that, in the event there is something wrong. I also worry that she

> doesn't want to participate in gym for some reason. Any thoughts or

ideas??

> I'm thinking of emailing or calling Dr. Ponseti, but I thought some

feedback

> might be in order.

>

> Thanks!!

>

> Joy

>

> Rose (1-99) http://www.geocities.com/joybelle15/rosesclubfootpage.html

> Iris (2-01)

> Spencer (3-03)

> Grant (9-05) http://www.caringbridge.org/visit/grantphilip

>

> __________________________________________________

>