RE: Re: Eye question - retianl detachment or some-other

[Guest guest]

So Mike, if I have this right you could be looking at a choice between Prednisone & brain surgery through your nose? Yikes, what a choice. Hopefully it will turn out to be something with better treatment options. Let us know when you get the MRI.

Ramblin' RoseCo-owner/Moderator A merry heart is good medicine. Proverbs 17:22

> To: Neurosarcoidosis > Date: Mon, 16 May 2011 02:07:54 +0000> Subject: Re: Eye question - retianl detachment or some-other> > Hello folks, (yes - its me - again )> So - as of today (sunday) I have been to see my Optometrist, an opthalmologist, and a Neurologist. The Opthalmologist has indicated Optic neuritis, and seems quite concerned that I get an MRI done on (whats keft of ) my head. A (previously identified) Pituitary Micro-Adenome may have enlarged and may be compressing on my optic nerve, or an occurence of an isolated OPticNerve N-sarc - but the MRI will gave to show what it may be. My eyesight hasnt gotten worse, but not much better. Neither mt family or myself have noticed any other functional deficits associated with my original Dx of NeuroSarc, Just my euesight.,,so her e I sit waiting for an MRI Appointment to be made. If the issue is the Pit-Adenoma being enlarged (encroaching compressing the optic nerve), that would pose issues of its own (transfenoidal pit- resection ? ), if its Sarcoid @ my optic nerve - more steroids - I'll just have to wait for the MRI and the neurologist to interpret it. > For now, nothing to do but wait, (I'll just have another cup of tea)> Hope everyone is managing > regards> Mike> > > >> > I don't post often, and I don't mean to seem like a 'whiner', but...> > ...having ben Dx'd w\ NeuroSarc Dec 1995 , I was treated w\ high doses of {rednisone, Dilantin (seizures), and Cyclosporine. August 1996 i had a Retianl Viterectomy on my left eye to remove scarring (caused by the SarcMonster), then in April 2007 Cataract surgery (left eye). both times my vision was 'saved' , restored to (almost) perfect. This past week I have had a psuedo-blind spot appear in my central vision of my (guess where !!) left eye. I do have an appointment with my eye Dr Thursday so he can have a look @ my left eye, and hopefully refer me to an opthalmomlogist (as neccessary). From what I have read online, some surgical intervention may be possible to save the vision in my left eye, but...as much as I hate to say it....I'm worried. > > I am wondering if anyone has any experience or ideas may be able to share ?> > I do not like to ask, as I know some folks have\have had issues of their own to deal with. Mant thanks in advance > > Mike @ StCatharines, Ont> >> > > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > >

[Guest guest]

Hey Mike,

On the MRI it looks like a big brain tumor that ingulfed my optic chiasm and some brain matter. but all my blood work and spinal fluid was normal so they did a brain biopsy to determine what it was. The results showed lymphocytic infiltrate with granulomatous features. The work up for systemic sarcoidosis was negative and CSF showed no evidence of infection but did show lymphocytic pleocytosis. I am on Prednisone now and slowly decreasing since the last MRI at the end of april showed no sign of inflammation in the optic nerves and brain. The swollen optic nerves took most of my sight in my left eye. Just trying to get through the side effects of the pred. and the new way of looking at things with one eye.

good luck.

To: Neurosarcoidosis Sent: Sun, May 15, 2011 9:07:54 PMSubject: Re: Eye question - retianl detachment or some-other

Hello folks, (yes - its me - again )So - as of today (sunday) I have been to see my Optometrist, an opthalmologist, and a Neurologist. The Opthalmologist has indicated Optic neuritis, and seems quite concerned that I get an MRI done on (whats keft of ) my head. A (previously identified) Pituitary Micro-Adenome may have enlarged and may be compressing on my optic nerve, or an occurence of an isolated OPticNerve N-sarc - but the MRI will gave to show what it may be. My eyesight hasnt gotten worse, but not much better. Neither mt family or myself have noticed any other functional deficits associated with my original Dx of NeuroSarc, Just my euesight.,,so her e I sit waiting for an MRI Appointment to be made. If the issue is the Pit-Adenoma being enlarged (encroaching compressing the optic nerve), that would pose issues of its own (transfenoidal pit- resection ? ), if its Sarcoid @ my optic nerve - more steroids - I'll just have to wait for the MRI

and the neurologist to interpret it. For now, nothing to do but wait, (I'll just have another cup of tea)Hope everyone is managing regardsMike>> I don't post often, and I don't mean to seem like a 'whiner', but...> ...having ben Dx'd w\ NeuroSarc Dec 1995 , I was treated w\ high doses of {rednisone, Dilantin (seizures), and Cyclosporine. August 1996 i had a Retianl Viterectomy on my left eye to remove scarring (caused by the SarcMonster), then in April 2007 Cataract surgery (left eye). both times my vision was 'saved' , restored to (almost) perfect. This past week I have had a psuedo-blind spot appear in my central vision of my (guess where !!) left eye. I do have an appointment with my

eye Dr Thursday so he can have a look @ my left eye, and hopefully refer me to an opthalmomlogist (as neccessary). From what I have read online, some surgical intervention may be possible to save the vision in my left eye, but...as much as I hate to say it....I'm worried. > I am wondering if anyone has any experience or ideas may be able to share ?> I do not like to ask, as I know some folks have\have had issues of their own to deal with. Mant thanks in advance > Mike @ StCatharines, Ont>

[Guest guest]

I'm sorry Mike, pls take care and try not to get to far down in the pit. It's like I have always told my children, "As long as your still breathing, things can get better"

To: Neurosarcoidosis Sent: Sun, May 15, 2011 10:07:54 PMSubject: Re: Eye question - retianl detachment or some-other

Hello folks, (yes - its me - again )So - as of today (sunday) I have been to see my Optometrist, an opthalmologist, and a Neurologist. The Opthalmologist has indicated Optic neuritis, and seems quite concerned that I get an MRI done on (whats keft of ) my head. A (previously identified) Pituitary Micro-Adenome may have enlarged and may be compressing on my optic nerve, or an occurence of an isolated OPticNerve N-sarc - but the MRI will gave to show what it may be. My eyesight hasnt gotten worse, but not much better. Neither mt family or myself have noticed any other functional deficits associated with my original Dx of NeuroSarc, Just my euesight.,,so her e I sit waiting for an MRI Appointment to be made. If the issue is the Pit-Adenoma being enlarged (encroaching compressing the optic nerve), that would pose issues of its own (transfenoidal pit- resection ? ), if its Sarcoid @ my optic nerve - more steroids - I'll just have to wait for the MRI

and the neurologist to interpret it. For now, nothing to do but wait, (I'll just have another cup of tea)Hope everyone is managing regardsMike>> I don't post often, and I don't mean to seem like a 'whiner', but...> ...having ben Dx'd w\ NeuroSarc Dec 1995 , I was treated w\ high doses of {rednisone, Dilantin (seizures), and Cyclosporine. August 1996 i had a Retianl Viterectomy on my left eye to remove scarring (caused by the SarcMonster), then in April 2007 Cataract surgery (left eye). both times my vision was 'saved' , restored to (almost) perfect. This past week I have had a psuedo-blind spot appear in my central vision of my (guess where !!) left eye. I do have an appointment with my

eye Dr Thursday so he can have a look @ my left eye, and hopefully refer me to an opthalmomlogist (as neccessary). From what I have read online, some surgical intervention may be possible to save the vision in my left eye, but...as much as I hate to say it....I'm worried. > I am wondering if anyone has any experience or ideas may be able to share ?> I do not like to ask, as I know some folks have\have had issues of their own to deal with. Mant thanks in advance > Mike @ StCatharines, Ont>