Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 Jodie, Again I am so sorry if there is anything I can do please let me know Chrissy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2005 Report Share Posted October 16, 2005 hey jodi!! i am so sorry that things have been come worse again for max!! that really sucks!! let me know what i can do!! dont worry about the walk, jen and i can get things done this week for it. call me! jodie c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Oh Jodi, that is horrible. Please let me know if there is anything I can do. I'm leaving work today at 2 for Daisy's at 3 in Boonton, but I could always leave earlier if you want me to swing by your house to check on him. B Jodi Zwain wrote: I take back what I posted earlier. Things are worse now than they have been in the 4 weeks Max has been sick and hiccuping. Now Max cannot keep any food down. He tried to eat lunch, it came back up, so we had him sleep for the rest of the afternoon. At 7 I called him down to dinner and he began to eat. He suddenly ran away from the table and vomited up everything. We had him wait a little while and he tried again. Everything came up again. Now we have told him to take a break for a longer period of time. He checked his ketones and they are negative so far. But if this continues, then by the morning he will start to spill them. I know the drill. If it continues, then he will be in the hospital and on gut rest. This has been going on for so long that they may even put in a picc line so he can just go home and take things more slowly. I am so frustrated and upset. I just knew it was going to get to this point. And I'm scared. No one can tell us why this is happening. I know that it is psychogenic at this point. There has to be a component to it now. Doesn't this family ever get a break? And who in the world is going to help us? No one seems to want to at this point, or no one has answers or a plan. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 OH Jodi I am so so sorry. This is just not fair. Poor you and poor Max. As I mentioned in my email to you there is a gremlin that has stolen my emails all weekend (and I know who!! GRRR) and I didn't see this. I had to come over to the Yahoo site to find it. OK I am going to invoke some heavy duty prayers for you guys. We have in the Cathloic faith something called a Novena. It's nine days of prayer for special circumstances. I would say you guys qualify. Just know that you are not alone and we are here. Dump on us, cry with us, scream with us if you need to. Poor Max. The kid must be heartbroken. Take care of you Jodi, go for the walks or get on the glider (now that our nice weather seems to be disappearing!!) My thoughts and prayers are with you guys. Debby > > I take back what I posted earlier. Things are worse now than they > have been in the 4 weeks Max has been sick and hiccuping. > > Now Max cannot keep any food down. He tried to eat lunch, it came > back up, so we had him sleep for the rest of the afternoon. At 7 I > called him down to dinner and he began to eat. He suddenly ran away > from the table and vomited up everything. We had him wait a little > while and he tried again. Everything came up again. > > Now we have told him to take a break for a longer period of time. > He checked his ketones and they are negative so far. But if this > continues, then by the morning he will start to spill them. I know > the drill. If it continues, then he will be in the hospital and on > gut rest. This has been going on for so long that they may even put > in a picc line so he can just go home and take things more slowly. > > I am so frustrated and upset. I just knew it was going to get to > this point. And I'm scared. No one can tell us why this is > happening. I know that it is psychogenic at this point. There has > to be a component to it now. > > Doesn't this family ever get a break? And who in the world is going > to help us? No one seems to want to at this point, or no one has > answers or a plan. > > Jodi Z > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Jodi, Hey. I can't believe this. Poor Max....and you! SO, how is he today? Has hebeen able to eat. He must be doing fairly well since I have seen you are at school and I haven't heard anything on the contrary. I sure hope you guys don't end up back in the hospital. PLease keep us updated and give us one when you get a chance this evening. I hope you guys can get some help in figuring out what is causing all this. Are you getting ahold of Dr H again? Hope all gets better soon, Jodi R. > > I take back what I posted earlier. Things are worse now than they > have been in the 4 weeks Max has been sick and hiccuping. > > Now Max cannot keep any food down. He tried to eat lunch, it came > back up, so we had him sleep for the rest of the afternoon. At 7 I > called him down to dinner and he began to eat. He suddenly ran away > from the table and vomited up everything. We had him wait a little > while and he tried again. Everything came up again. > > Now we have told him to take a break for a longer period of time. > He checked his ketones and they are negative so far. But if this > continues, then by the morning he will start to spill them. I know > the drill. If it continues, then he will be in the hospital and on > gut rest. This has been going on for so long that they may even put > in a picc line so he can just go home and take things more slowly. > > I am so frustrated and upset. I just knew it was going to get to > this point. And I'm scared. No one can tell us why this is > happening. I know that it is psychogenic at this point. There has > to be a component to it now. > > Doesn't this family ever get a break? And who in the world is going > to help us? No one seems to want to at this point, or no one has > answers or a plan. > > Jodi Z > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 P.S. - how's the mouth? - H > > I take back what I posted earlier. Things are worse now than they > have been in the 4 weeks Max has been sick and hiccuping. > > Now Max cannot keep any food down. He tried to eat lunch, it came > back up, so we had him sleep for the rest of the afternoon. At 7 I > called him down to dinner and he began to eat. He suddenly ran away > from the table and vomited up everything. We had him wait a little > while and he tried again. Everything came up again. > > Now we have told him to take a break for a longer period of time. > He checked his ketones and they are negative so far. But if this > continues, then by the morning he will start to spill them. I know > the drill. If it continues, then he will be in the hospital and on > gut rest. This has been going on for so long that they may even put > in a picc line so he can just go home and take things more slowly. > > I am so frustrated and upset. I just knew it was going to get to > this point. And I'm scared. No one can tell us why this is > happening. I know that it is psychogenic at this point. There has > to be a component to it now. > > Doesn't this family ever get a break? And who in the world is going > to help us? No one seems to want to at this point, or no one has > answers or a plan. > > Jodi Z > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Jodi - Oh - I'm so sorry - I will help you. What can I do? I'm really good at getting what I need! You tell me and I'm there. What about writing some letters and demanding some answers? It always helps to put it down on paper (like journaling) but mostly - it will let the physicians know that you are documenting things, it's in writing and that you aren't going to let this slip by. That you want answers. Have you also considered getting in touch with some other GI physicians that might be able to refer you to some top- notch specialists? Such as the Mayo Clinic for example? Just a thought. I can't imagine having to deal with this for the length of time that you have. There is always hope. We are here for you. Any time - any day. Call us for anything. - H > > I take back what I posted earlier. Things are worse now than they > have been in the 4 weeks Max has been sick and hiccuping. > > Now Max cannot keep any food down. He tried to eat lunch, it came > back up, so we had him sleep for the rest of the afternoon. At 7 I > called him down to dinner and he began to eat. He suddenly ran away > from the table and vomited up everything. We had him wait a little > while and he tried again. Everything came up again. > > Now we have told him to take a break for a longer period of time. > He checked his ketones and they are negative so far. But if this > continues, then by the morning he will start to spill them. I know > the drill. If it continues, then he will be in the hospital and on > gut rest. This has been going on for so long that they may even put > in a picc line so he can just go home and take things more slowly. > > I am so frustrated and upset. I just knew it was going to get to > this point. And I'm scared. No one can tell us why this is > happening. I know that it is psychogenic at this point. There has > to be a component to it now. > > Doesn't this family ever get a break? And who in the world is going > to help us? No one seems to want to at this point, or no one has > answers or a plan. > > Jodi Z > Quote Link to comment Share on other sites More sharing options...
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