Guest guest Posted November 17, 2001 Report Share Posted November 17, 2001 , a little late but nevertheless, please pass my very best wishes and a huge congratulations to your mom. Jean. 's Surgery > Hello All, > This is , 's daughter. Wanted to pass > the word that her surgery went well and she is doing > great!I will keep you updated as I find out more > thanks > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 In a message dated 11/26/01 2:40:40 PM, duodenalswitch writes: << When the surgeon got inside the bleeding had stopped on its own but not before I lost too much and had to have 2 units of blood. When they took me off the operating table I apparently had a pulmanary embolism and stopped breathing so I was put on ventilator. I stayed in the Recovery room while on vent for 3 days then transfered to a post-op ICU then finally to a regular room again on saturday. I was then discharged on monday nov. 19th. I really don't remember alot of what happened. Never really had much pain from incisions since I don't remember much of the first 5 days. >> B: {{{{gentle hugs to you}}}} Boy, you've been through alot!!! What a shock to have such an unexpected complication fall upon you during surgery... I'm so glad they found the internal bleeding and were able to correct it... AND that you are now safe and sound and feeling better... I think I would have been totally beside myself if I were your husband! Whew! Thanks for taking the time to share with us --- Just wanted you to know you continue to be in my thoughts and prayers for a smooth recovery... all the best, TEresa lap ds with gallbladder removal January 25, 2001 Dr. Gagner/Mt. Sinai/NYC 10 months post-op and still feelin' fabu preop: 307 lbs/bmi 45 now: 204 lbs (gained again! AGH)/size sweet 16/large-MEDIUM in normal people's clothing! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Well Holy Socks !!! You have been through alot--you were most unfortunate to have a pulmonary embolism, but most fortunate it happened inraoperatively. Will you be on blood thinners for awhile? There aren't any others are there? When will you have followup scans? The worst is over--hopefully the remainder of your recovery is a real bore!!! sip, walk and rest!! Glad to have you here in Switchville. Pammi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 , You are such a trooper! I'm so sorry you had those complications, but am pleased that your medical team went to work and stablized you! Congrats on being switched, and hang in there...your body has been through a lot! Keep us posted on your progress! Hugs, Amy 12/5/01 Dr. Jossart Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 lisa: thank god you are home and doing well now! that was quite a scare or two that you had. you nearly lost your life trying to save it! but your angels were watching over you, weren't they. and now the worst is over and you are home healing nicely. may the rest of your recovery be smooth and uneventful. i too fainted in the hospital and when i came to there was a whole room full of nurses! i scared the daylights out of them all. my b/p dropped really low as well, so they started a new iv and gave me fluids with potassium. tested my blood, and decided i needed a unit of blood too. so i know some of what you went thru. after that bit of excitement, i started doing a whole lot better. don't really know what caused mine, but all is well now. i am 4 mos. out and getting stronger every day. i'm back driving a school bus and it doesn't bother me at all. so give it time, take it easy, and eat that protein to get your strength back. take short walks to keep your muscles toned, or you will feel weak for a longer time. keep us posted on your progress. hugs, mary y > Hello everyone I'm Back. Sorry it's been awhile. Surgery was a > little ruff. The initial surgery 11-13-01 went well no problems. > Went to regular room after recovery. A few hours later when I tried > to get up to walk for the first time per my request things went down > hill. When I got up I felt light headed so sat back down, I > unfortunate for nurse, passed out. My blood pressure dropped very > low, resident thought it was epidural so they shut that off. A few > hours later I noticed blood on my gown and when I picked it up there > was a lot of blood so it is discovered that it wasn't the epidural > that was causing my BP to drop and in fact I had an internal bleed > going on so its back to surgery for me. When the surgeon got inside > the bleeding had stopped on its own but not before I lost too much > and had to have 2 units of blood. When they took me off the > operating table I apparently had a pulmanary embolism and stopped > breathing so I was put on ventilator. I stayed in the Recovery room > while on vent for 3 days then transfered to a post-op ICU then > finally to a regular room again on saturday. I was then discharged > on monday nov. 19th. I really don't remember alot of what happened. > Never really had much pain from incisions since I don't remember much > of the first 5 days. I am very thankful for Dr. Ren and her Resident > team. They not only took care of me but Dr. Ren was also there for > my husband who I am sure was besided himself through all this, since > we were out of state there was no family or friends around. 13 days > after my first surgery I am getting around okay no incisional pain > since both surgeries were done laproscopic. I am having some trouble > getting enough water in but I am working on that. I do get worn out > fast so I can't stay on computer for long periods of time. I am sure > all of this will get better with time. Well I hope everyone is doing > well and for thoughs who are scheduled for surgery soon, I am sending > wishes your way for a safe journey and speedy recovery. God Bless > the Surgeons and all of you for the much needed support. > > BE HAPPY > B > 11-13-01 Wt.306 > 11-26-01 Wt.287.5 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Hi B., I am sorry for your immediate postop problems but I am happy to hear that you are doing well now. Take Care NYC MT. SINAI JUNE 2001 lap BPD/DS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 , It's so good to hear from you and I'm so glad that things turned out okay! I'm also happy to hear that Dr. Ren and her team were on top of things for you. Best wishes for a speedy recovery. ann 's Surgery Hello everyone I'm Back. Sorry it's been awhile. Surgery was a little ruff. The initial surgery 11-13-01 went well no problems. Went to regular room after recovery. A few hours later when I tried to get up to walk for the first time per my request things went down hill. When I got up I felt light headed so sat back down, I unfortunate for nurse, passed out. My blood pressure dropped very low, resident thought it was epidural so they shut that off. A few hours later I noticed blood on my gown and when I picked it up there was a lot of blood so it is discovered that it wasn't the epidural that was causing my BP to drop and in fact I had an internal bleed going on so its back to surgery for me. When the surgeon got inside the bleeding had stopped on its own but not before I lost too much and had to have 2 units of blood. When they took me off the operating table I apparently had a pulmanary embolism and stopped breathing so I was put on ventilator. I stayed in the Recovery room while on vent for 3 days then transfered to a post-op ICU then finally to a regular room again on saturday. I was then discharged on monday nov. 19th. I really don't remember alot of what happened. Never really had much pain from incisions since I don't remember much of the first 5 days. I am very thankful for Dr. Ren and her Resident team. They not only took care of me but Dr. Ren was also there for my husband who I am sure was besided himself through all this, since we were out of state there was no family or friends around. 13 days after my first surgery I am getting around okay no incisional pain since both surgeries were done laproscopic. I am having some trouble getting enough water in but I am working on that. I do get worn out fast so I can't stay on computer for long periods of time. I am sure all of this will get better with time. Well I hope everyone is doing well and for thoughs who are scheduled for surgery soon, I am sending wishes your way for a safe journey and speedy recovery. God Bless the Surgeons and all of you for the much needed support. BE HAPPY B 11-13-01 Wt.306 11-26-01 Wt.287.5 ---------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 Good catch Rosemary. Hospitals are scary places. I'm glad is back to his normal self today. Dawn mom of 4, 8 and under, the youngest wcf ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 OH ..MY...GOD... I dare to even think what would have been the end to THAT....What if they got so far as having him in a treatment room for whatever?????????????? Bless you. YES ! YES! Always ask. That is terrible-OR COULD HAVE BEEN . I am so glad you shared that . It will certainly point out how very important speaking up for our kids & ourselves,--even with out CF ..---really is. God bless you & thanks LOVE & HUGS, GRDMBEV 's Surgery I could deal with him throwing up blood, fainting, looking like a ghost cause he was so pale but what scared me th most was when the nurse came to take us down she said " oh, wait I have to put some numbing gell on your eye " I said " we have had this surgery 3 times I never heard of such a thing - could you go check? " Â She came back, red-faced, and said " Oh, wrong patient sorry - I got the rooms mixed up. " Â Moral of the story- ALWAYS, ALWAYS question everything!! We is awake today and feels fine!!!! No throwing up...he is back to his old self! YES!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2004 Report Share Posted February 29, 2004 One thing about CF it has made us wiser!!!!!! WAY TO GO ROSEMARY!!! DEB A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2004 Report Share Posted February 29, 2004 It has made me WIDER............LOL Rosemary in NY with 3 children (13, 11 and 7) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " my new favorite quote is Any idiot can face a crisis - it's day to day living that wears you out. Anton Chekhov Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2004 Report Share Posted February 29, 2004 I just assume, Rosemary, that you mean " breadth of vision! " Love to all, n Re: 's Surgery It has made me WIDER............LOL Rosemary in NY with 3 children (13, 11 and 7) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " my new favorite quote is Any idiot can face a crisis - it's day to day living that wears you out. Anton Chekhov Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 I missed the email that gave 's full name, and address to send cards to. Is she home yet? I've been offline the past two weeks due to bad pain and diahhrea from malabsorption, but I want to send her a card. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2004 Report Share Posted November 20, 2004 Kimber, can give you more details, but she's still in hospital. She should be out of the ICU now and here is her address. Jen Rowland Univeristy of Cincinnati Hospital 234 Goodman Avenue Cincinatti OH 45219 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2005 Report Share Posted October 21, 2005 Hi all, Just wanted to give you an update on . He had oral surgery on Tuesday to remove some permanent teeth (they ended up only removing one and may do more at a later date). He also had 3 teeth uncovered (2 of which I knew were there & 1 surprise one) and a gingivectomy in which some of his gum tissue was removed. He had a little difficulty recuperating from anesthesia this time around, but made it through ok. His mouth and cheeks are still swollen and he has stitches inside his mouth that make it difficult for him to move his lips, but he has done well with the pain (not complaining too much). is going to need much more extensive work before he can even get braces. I was wondering if anyone else had gone through a similar experience with dental and orthodontic procedures? On another note, is going to be 12 tomorrow! I can't believe how fast the years have gone by. For all you parents of young ones out there, you'll be surprised how fast the time goes despite all the difficulties you are facing now. was extremely sick when he was younger & still deals with more issues than the typical RSS kid even at his age. Despite everything we have gone through with him & what we continue to go through, the time goes by super fast, and it does get easier as the years pass. On a final note, we are again preparing for yet another hurricane. We'll be putting shutters up this weekend & hoping for the best. To everyone else in Florida, I wish you luck in weathering out the storm & that you and your family stay safe. Kim C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Kim, I happy to hear is doing better. I was thinking of him and I hope he has a wonderful birthday. Good luck with Wilma coming. B and Kelli kimc wrote: Hi all, Just wanted to give you an update on . He had oral surgery on Tuesday to remove some permanent teeth (they ended up only removing one and may do more at a later date). He also had 3 teeth uncovered (2 of which I knew were there & 1 surprise one) and a gingivectomy in which some of his gum tissue was removed. He had a little difficulty recuperating from anesthesia this time around, but made it through ok. His mouth and cheeks are still swollen and he has stitches inside his mouth that make it difficult for him to move his lips, but he has done well with the pain (not complaining too much). is going to need much more extensive work before he can even get braces. I was wondering if anyone else had gone through a similar experience with dental and orthodontic procedures? On another note, is going to be 12 tomorrow! I can't believe how fast the years have gone by. For all you parents of young ones out there, you'll be surprised how fast the time goes despite all the difficulties you are facing now. was extremely sick when he was younger & still deals with more issues than the typical RSS kid even at his age. Despite everything we have gone through with him & what we continue to go through, the time goes by super fast, and it does get easier as the years pass. On a final note, we are again preparing for yet another hurricane. We'll be putting shutters up this weekend & hoping for the best. To everyone else in Florida, I wish you luck in weathering out the storm & that you and your family stay safe. Kim C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Kim, I was thinking of you all last night. I'm so glad you posted about 's progress. I hope he recovers quickly. I know too well about oral surgery and how painful that is. Gosh, I just had a tooth removed a little over a week ago and it still hurts. I can't imagine what feels! Take care during that hurricane if it EVER arrives. My mother and her husband decided to leave Florida for what they thought would be a long weekend. They left on Thursday. I guess they will be gone longer than they thought. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 So glad that came through ok! Happy Birthday to him tomorrow and do stay safe through the storm! Dawna My is 12 turning 13 next month, 11, Kaitlyn 8, Noah 3 RSS > > Hi all, > > Just wanted to give you an update on . He had oral surgery on > Tuesday to remove some permanent teeth (they ended up only removing > one and may do more at a later date). He also had 3 teeth uncovered > (2 of which I knew were there & 1 surprise one) and a gingivectomy in > which some of his gum tissue was removed. He had a little difficulty > recuperating from anesthesia this time around, but made it through > ok. His mouth and cheeks are still swollen and he has stitches > inside his mouth that make it difficult for him to move his lips, but > he has done well with the pain (not complaining too much). > is going to need much more extensive work before he can even get > braces. I was wondering if anyone else had gone through a similar > experience with dental and orthodontic procedures? > > On another note, is going to be 12 tomorrow! I can't believe > how fast the years have gone by. For all you parents of young ones > out there, you'll be surprised how fast the time goes despite all the > difficulties you are facing now. was extremely sick when he > was younger & still deals with more issues than the typical RSS kid > even at his age. Despite everything we have gone through with him & > what we continue to go through, the time goes by super fast, and it > does get easier as the years pass. > > On a final note, we are again preparing for yet another hurricane. > We'll be putting shutters up this weekend & hoping for the best. To > everyone else in Florida, I wish you luck in weathering out the storm > & that you and your family stay safe. > > Kim C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Hi Kim, Thanks for the update on 's surgery. We went through some similar issues with Charissa, so I looked up an old post & updated it for you here. (The original reply was post #19507) Charissa didn't need to have permanent teeth removed, but had extensive dental surgery twice, in conjunction with surgery to close a hole that was left in one eardrum after her last set of tubes (took 3 tries before the hole sealed successfully). She always complained more about ear pain than her mouth after these dual-surgeries! Charissa has small, crowded teeth, and a big overbite, but is also missing many permanent teeth. She is missing the 2 on top (one on each side of her front teeth), all but 1 of her wisdom teeth, and I think a couple of other teeth too. Most of her permanent teeth were late in erupting and many of them were delayed in forming. She got her 6 year molars when she was 15 & had a bone age of 12. Her last 2 12-year molars were about 1/2 in when she was 17 and her bone age was around 15. They are all in now. Some of Charissa's baby teeth just weren't coming out & the permanent ones couldn't seem to dissolve the roots (they were " stuck " ) and were ankylosed (sp?) - the baby teeth were sinking into the gums. So she had several baby teeth pulled during 2 oral surgeries when she was around 11-12 years. (I think the total was around 8 teeth) The ped. dentist & orthodontist looked at her bone age, but there were a lot of other factors to consider too. In some instances she lost the baby teeth, but since the permanent ones weren't coming the gums got very thick & tough. One of the surgeries was a gingivectomy like had - the dentist cut away this tough gum tissue to expose the tops of the well-formed permanent ones that couldn't seem to make it through the gum tissue. We had to brush this raw gum area firmly several times a day with a special toothpaste so the gums would heal with the teeth exposed instead of heal back over the teeth. That was the worst thing I have ever had to do to her - 13 years of GH injections were a piece of cake in comparison. Charissa also had about 10 years of orthodontics to correct all of her problems. One of her upper permanent eyeteeth was actually pointing to the back of her mouth instead of down, so one of her surgeries they attached a pin & wire to the tooth while it was still up in the gum and attached it to her braces to pull the tooth into place. It worked great! She finished up the extensive dental work about a year ago, when she had dental implants to replace the two missing top teeth. It was expensive (about the same price as a year of college!) but they look great! You will be in our thoughts & prayers as you prepare for & ride out another hurricane. Stay safe & keep us posted when you can. in Alaska (mom to Charissa, *not* RSS but had all the issues, who just turned 21 last week.....!) RSS-Support wrote: Date: Fri, 21 Oct 2005 23:31:37 -0400 From: kimc Subject: 's surgery Hi all, Just wanted to give you an update on . He had oral surgery on Tuesday to remove some permanent teeth (they ended up only removing one and may do more at a later date). He also had 3 teeth uncovered (2 of which I knew were there & 1 surprise one) and a gingivectomy in which some of his gum tissue was removed. He had a little difficulty recuperating from anesthesia this time around, but made it through ok. His mouth and cheeks are still swollen and he has stitches inside his mouth that make it difficult for him to move his lips, but he has done well with the pain (not complaining too much). is going to need much more extensive work before he can even get braces. I was wondering if anyone else had gone through a similar experience with dental and orthodontic procedures? On another note, is going to be 12 tomorrow! I can't believe how fast the years have gone by. For all you parents of young ones out there, you'll be surprised how fast the time goes despite all the difficulties you are facing now. was extremely sick when he was younger & still deals with more issues than the typical RSS kid even at his age. Despite everything we have gone through with him & what we continue to go through, the time goes by super fast, and it does get easier as the years pass. On a final note, we are again preparing for yet another hurricane. We'll be putting shutters up this weekend & hoping for the best. To everyone else in Florida, I wish you luck in weathering out the storm & that you and your family stay safe. Kim C. --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Kim, Please tell that Jonathon and I say HI and more importantly, HAPPY BIRTHDAY. is such a great kid. At the convention, I love to talk with him and hear his unique view of life. Tell him We wish him the best and we will pray for safety during the storm! Pattie Warren > > Hi all, > > Just wanted to give you an update on . He had oral surgery on > Tuesday to remove some permanent teeth (they ended up only removing > one and may do more at a later date). He also had 3 teeth uncovered > (2 of which I knew were there & 1 surprise one) and a gingivectomy in > which some of his gum tissue was removed. He had a little difficulty > recuperating from anesthesia this time around, but made it through > ok. His mouth and cheeks are still swollen and he has stitches > inside his mouth that make it difficult for him to move his lips, but > he has done well with the pain (not complaining too much). > is going to need much more extensive work before he can even get > braces. I was wondering if anyone else had gone through a similar > experience with dental and orthodontic procedures? > > On another note, is going to be 12 tomorrow! I can't believe > how fast the years have gone by. For all you parents of young ones > out there, you'll be surprised how fast the time goes despite all the > difficulties you are facing now. was extremely sick when he > was younger & still deals with more issues than the typical RSS kid > even at his age. Despite everything we have gone through with him & > what we continue to go through, the time goes by super fast, and it > does get easier as the years pass. > > On a final note, we are again preparing for yet another hurricane. > We'll be putting shutters up this weekend & hoping for the best. To > everyone else in Florida, I wish you luck in weathering out the storm > & that you and your family stay safe. > > Kim C. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2005 Report Share Posted October 22, 2005 Thanks Pattie! Your kind words are much appreciated! enjoyed talking to you too at the convention! Kim > Kim, > > Please tell that Jonathon and I say HI and more importantly, > HAPPY BIRTHDAY. is such a great kid. At the convention, I > love to talk with him and hear his unique view of life. Tell him We > wish him the best and we will pray for safety during the storm! > > Pattie Warren > > > > > > Hi all, > > > > Just wanted to give you an update on . He had oral surgery on > > Tuesday to remove some permanent teeth (they ended up only removing > > one and may do more at a later date). He also had 3 teeth uncovered > > (2 of which I knew were there & 1 surprise one) and a gingivectomy in > > which some of his gum tissue was removed. He had a little difficulty > > recuperating from anesthesia this time around, but made it through > > ok. His mouth and cheeks are still swollen and he has stitches > > inside his mouth that make it difficult for him to move his lips, but > > he has done well with the pain (not complaining too much). > > is going to need much more extensive work before he can even get > > braces. I was wondering if anyone else had gone through a similar > > experience with dental and orthodontic procedures? > > > > On another note, is going to be 12 tomorrow! I can't believe > > how fast the years have gone by. For all you parents of young ones > > out there, you'll be surprised how fast the time goes despite all the > > difficulties you are facing now. was extremely sick when he > > was younger & still deals with more issues than the typical RSS kid > > even at his age. Despite everything we have gone through with him & > > what we continue to go through, the time goes by super fast, and it > > does get easier as the years pass. > > > > On a final note, we are again preparing for yet another hurricane. > > We'll be putting shutters up this weekend & hoping for the best. To > > everyone else in Florida, I wish you luck in weathering out the storm > > & that you and your family stay safe. > > > > Kim C. > > > Quote Link to comment Share on other sites More sharing options...
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