Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Hi Grace!! The thoughts and prayers are heading your way!! Let us know how it goes! HUGS!! Pat (g-ma to , RSS, 3 yrs 8 months old, 24.5#, 34 " , G-tube, GHT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Grace, I will have you and in my prayers. B 5 1/2 and Kelli 3 --- grace wrote: > im brandons mom and just wanted to let all know that > he is up for foot > surgery and we would love all of your prayers and > thoughts. he has > come a long way and we had tried to avoid this but a > reconstructive > surgion has informed us that it is now necessary. > any way..here we go. > nice to meet you all and i have been reading along > as i get time. i > have been where many of you are and it is hard > sometimes..but just > remember ...we were chosen to have special needs > children because we > were best for that person so love them well. i do my > brandon and he is > now 4'6 " and a whopping 64lbs > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 I'll keep him in my thoughts - hopefully he comes through like a champ! , mom to 5 and Emerence 2.5 22 lbs 32.5 " > im brandons mom and just wanted to let all know that he is up for foot > surgery and we would love all of your prayers and thoughts. he has > come a long way and we had tried to avoid this but a reconstructive > surgion has informed us that it is now necessary. any way..here we go. > nice to meet you all and i have been reading along as i get time. i > have been where many of you are and it is hard sometimes..but just > remember ...we were chosen to have special needs children because we > were best for that person so love them well. i do my brandon and he is > now 4'6 " and a whopping 64lbs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 What kind of surgery is he having? Max had foot surgery about 4 years ago. His was to correct severely pronated feet and lengthen his achilles tendons. He was in a wheelchair for about 6 weeks and then needed lots of therapy to begin walking again. Jodi Z Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 I hope does very well in surgery. No matter how old they are, it can be very nerve-racking. Thinking of you guys! Jodi R. Mom to , 3, RSS > im brandons mom and just wanted to let all know that he is up for foot > surgery and we would love all of your prayers and thoughts. he has > come a long way and we had tried to avoid this but a reconstructive > surgion has informed us that it is now necessary. any way..here we go. > nice to meet you all and i have been reading along as i get time. i > have been where many of you are and it is hard sometimes..but just > remember ...we were chosen to have special needs children because we > were best for that person so love them well. i do my brandon and he is > now 4'6 " and a whopping 64lbs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 I'll be praying for you and - I know how hard those decisions are!! We have more to come... Inga At 07:07 AM 8/30/2005 +0000, you wrote: >im brandons mom and just wanted to let all know that he is up for foot >surgery and we would love all of your prayers and thoughts. he has >come a long way and we had tried to avoid this but a reconstructive >surgion has informed us that it is now necessary. any way..here we go. >nice to meet you all and i have been reading along as i get time. i >have been where many of you are and it is hard sometimes..but just >remember ...we were chosen to have special needs children because we >were best for that person so love them well. i do my brandon and he is >now 4'6 " and a whopping 64lbs > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 thanks so much for the nice comments and the awesome prayers. I know he is going to be ok, its just getting thru it all. your support is greatly appreciated. grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 tonya..yes you got it right. brandon is 22 years old now and will be 23 in feb. we have come a long way and knew foot surgery was going to be at the end of our journey one day. and here we are. brandon weighed 3lbs 6 oz and didnt walk till he was 5 years old. he started school when he was 7 and weighed 14 lbs, he was so sweet and tiny. his shoes were a size 1 baby shoe. anyway.. please keep us in your thoughts as we begin this process. God bless you all. grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Grace, Thank you for telling us about & for posting pictures of him. This is the first time I have seen a picture of a RSS adult male. Other than his size, what issues is he still dealing with? Did he try growth hormone? Did he have early adrenarche or precocious puberty? Did he have regular bone ages when he was growing up? Sorry for so many questions, but I am very curious as we haven't got many adult males who have offered much info on this listserve. I would love to hear more about 's life. I am sure many other moms of RSS boys would love to hear too. Kim C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 He looks so handsome in his graduation picture. Tonya Kacey171 wrote: Grace, Thank you for telling us about & for posting pictures of him. This is the first time I have seen a picture of a RSS adult male. Other than his size, what issues is he still dealing with? Did he try growth hormone? Did he have early adrenarche or precocious puberty? Did he have regular bone ages when he was growing up? Sorry for so many questions, but I am very curious as we haven't got many adult males who have offered much info on this listserve. I would love to hear more about 's life. I am sure many other moms of RSS boys would love to hear too. Kim C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 really has come a long way. I hope everything goes well during and after his surgery. Good Luck, I'm rootin' for him. Tonya mom to Aubrey gracewithin wrote: tonya..yes you got it right. brandon is 22 years old now and will be 23 in feb. we have come a long way and knew foot surgery was going to be at the end of our journey one day. and here we are. brandon weighed 3lbs 6 oz and didnt walk till he was 5 years old. he started school when he was 7 and weighed 14 lbs, he was so sweet and tiny. his shoes were a size 1 baby shoe. anyway.. please keep us in your thoughts as we begin this process. God bless you all. grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 thank you for your reply. brandon had several issues growing up and now . . he has still got a issue with his bone age. his bones are still not finished growing at the age of 22 and his surgery is definately going to slow us down but we will make the best of it. keep in touch..deborah(grace) Quote Link to comment Share on other sites More sharing options...
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