Re: Isaac update...appt today 4/27

[Guest guest]

,

Glad to hear that Isaac's foot is looking good and working well--it's what we

are all after here!

I've gone back and forth and around and around with the orthotists who work with

our doctor too, so I know how amazingly frustrating that can be. In my

experience, the doctors don't seem to know too much about how the brace is to be

set up (aside from the angles the shoes should be set at) and the orthotists

tend to have " god complexes " (um, my apologies to the female O & P techs who have

" goddess complexes " --and I've heard of some terrific orthotists, but it seems

that they are few and far between). Getting them to even listen to you can be a

real chore. At the end of the day, though, *you* are the one who lives with

your child, *you* are the one who is up all night when they are uncomfortable in

the FAB.

Some children are comfortable in a shorter bar, but most are comfortable when it

is set up so that the distance between the heels of their feet (when the shoes

are turned out properly on the bar) is the same as the width of their shoulders.

Part of why this is not universally recognized has to do with how vague the

literature on setting up the FAB is. Although one of the best sources, the

Global-HELP booklet, states things very clearly (page 16 of the 2nd edition):

" The bar should be of sufficient length so that the heels of the shoes are at

shoulder width. A common error is to prescribe too short a bar, which the child

finds uncomfortable [C]. A narrow brace is a common reason for a lack of

compliance. "

Well, then.

I don't see why they won't get you 2 different sized shoes if that's what Isaac

needs. It's doing a disservice to the child to have her/him in shoes that do

not fit! Besides, Markell sells " half pairs " of its shoes--it's not like your

doctor's office would need to split up pairs. Have you looked into getting your

shoes and bar from another source? Many shoe stores will order from Markell for

you if you bring in a prescription (the prescription would just be for the

shoes, the store can do the sizing for you). If you run out of ideas though,

ask here, many of us have shoes and bars sitting around that our children no

longer use.

As for turning the clubfoot in to 45 degrees...there's no reason to do that

unless you are dealing with " loose ligament " issues (which are rare and don't

usually become a concern until the child has been walking for a while)--in fact,

you shouldn't do it. Recent studies out of Iowa are showing that the more

abduction, the better. That your doctor is even suggesting this makes me think

that she/he is having FAB compliance problems in general and that is not a good

sign. However, your son's foot is corrected, he's happy enough in the FAB, you

are doing things right. Keep at it!

Naomi

The Family, North Coast of California

Naomi Hannah(2/21/1) Jonah(6/20/3, corrected BCF, FAB 12-14/7)

lotsolove4my2babes wrote: As I have just about every

visit with every dr this past yr, I am

leaving frustrated.Not with his foot. It still looks awesome. He is

pulling up, and walking holding fingertips. He is 9.5 mnths.

Here is a list of my vents and possible problems. What are your

opinions?

Problem 1:

First the nurse asks how things were going with the shoes/brace?

I say really good, but he is starting to outgrow his shoes and needs a

longer brace soon. She gives me that condescending, I know so much

more than u look, and holds the shoes up to his shoulders. (I have

had it set on the 10 holes for almost 2 mnths- gold bar.)

She then says, " oh, no, that is way too far. he needs on the 8s or

maybe even an 8 and 6. "

I tell her that on the 8s he wouldn't sleep, and he drew his knees

together, plus would kick kick, and cry. And that we have had it on

the 10s for 8 wks. She gets upset that we moved it out, and says that

we have to talk to the dr bc putting it that far out could cause hip

damage.

I say, I measure from shoulder to shoulder, how do u typically measure.

She says the same, and holds it up. She angles her fingers in and

says see. I totally disagree with how she measures it, and there was

no way that I was going to put him back down to the 8s.

The dr agreed with me, and he stays at the 10s but they wouldn't order

me another bar bc they said that one will be fine for a long time.

Problem 2: They won't split Markell sizes. They also will not order

half sizes, so he has a pair of size twos that he probably won't fit

correctly in for a long time. He is now fitting great in a 0 and a 1.

Problem 3: 6 months until next checkup

Problem 4:

6 wks post tenotomy 18-20 dr orders (we did 21-22hr)

next 6 weeks 18-20 hr dr advised (we just completed doing 18-19 hr)

next 6 months naps and nightime no hours discussed dr advised

Problem 5:

they wanted to move the clubfoot angle to 45 degree to match the

regular foot to make it " easier " on me to get it on him, and for him

to comply with wearing it?!?!

and if we see any regression, to move it back to 70 degree.

Why mess with it if it is not bothering him now, and chance losing

flexibility only to hurt him to stretch it back out later or have to

recast??

Dr. said I could leave it if I wanted to, if Isaac was fine with it,

and I had no problems with it

His foot looks great but I don't want to chance regression, plus I am

so tired of always fighting the nurses who think they know

everything. that is the part that sucks the most. ok, vent over.

please advise.

[Guest guest]

Hi ,

I totally agree with everything that Naomi has said. But also want to

add that if it were me in your situation, putting up with an ortho

that didn't want to hear what I had to say and totally disregarded

what I KNEW to be most comfy for my daughter....I would let her have

it!! I mean you want it to be productive but ask her WHY they won't

split sizes when Jay Markell offers split sizes FREE OF CHARGE for

kids just like Isaac that have a pronounced size difference!! That is

why Markell offers it, the fact that she said that they won't do it

makes NO SENSE and just sounds like some kind of weird power trip,

can't think of any other reason why she would say no???!

And regarding the brace set-up issue....MAN this pisses me off!! This

is the most common error that ortho's make....shoe's too close

together! I would STRONGLY tell her that your son is more comfy a bit

wider and that the doctor has told you that this is FINE and that

going out an extra inch or half inch is NOT going to cause any hip

issues! Our daughter STARTED at 11 inches when she way 2 months old!

We are blessed to have an ortho that has a rcf herself and who " get's

it " .

I would DEMAND a longer ADJUSTABLE bar so that I could move him out a

bit if needed and let her know that if she dosen't want to accomodate

you, that you can take your business elsewhere! There are lot's of

ortho shops that can order the Markell's and Tarso bars right from

the Markell site for the same price...call around and talk to some

other places as Naomi suggested as well.

I would also tell your doc (who do you see again) about the problems

and concerns you are having with the orthotists working 'with' him.

He should know what is going on, tell him exactally what you stated

in your post.

You have a right to be angry/frustrated! I am just reading your post

, there is NO way that we should have to put up with those in

the medical field that don't want to listen/help us, that is a big

part of their job!

And moving him back to 45 degrees WHY for compliance issues?! I know

that you won't do that because of what you have learned here but what

about all his other paitents? I think that we'll have to find some

recent articles regarding relapse rates when feet have been moved

back to somewhere around 45 degrees. Anyone know of a recent one? I

remember hearing something about this (? or Naomi?) so that you

can present it to him. I echo your question...why mess with it at all?

Good luck oh and congrats on your little man's feet that is really

great news!

& Grace 21mos

urcf FAB 13hrs

>

> As I have just about every visit with every dr this past yr, I am

> leaving frustrated.Not with his foot. It still looks awesome. He

is

> pulling up, and walking holding fingertips. He is 9.5 mnths.

>

> Here is a list of my vents and possible problems. What are your

> opinions?

>

> Problem 1:

> First the nurse asks how things were going with the shoes/brace?

> I say really good, but he is starting to outgrow his shoes and

needs a

> longer brace soon. She gives me that condescending, I know so much

> more than u look, and holds the shoes up to his shoulders. (I have

> had it set on the 10 holes for almost 2 mnths- gold bar.)

> She then says, " oh, no, that is way too far. he needs on the 8s or

> maybe even an 8 and 6. "

> I tell her that on the 8s he wouldn't sleep, and he drew his knees

> together, plus would kick kick, and cry. And that we have had it on

> the 10s for 8 wks. She gets upset that we moved it out, and says

that

> we have to talk to the dr bc putting it that far out could cause

hip

> damage.

> I say, I measure from shoulder to shoulder, how do u typically

measure.

> She says the same, and holds it up. She angles her fingers in and

> says see. I totally disagree with how she measures it, and there

was

> no way that I was going to put him back down to the 8s.

>

> The dr agreed with me, and he stays at the 10s but they wouldn't

order

> me another bar bc they said that one will be fine for a long time.

>

> Problem 2: They won't split Markell sizes. They also will not

order

> half sizes, so he has a pair of size twos that he probably won't

fit

> correctly in for a long time. He is now fitting great in a 0 and a

1.

>

> Problem 3: 6 months until next checkup

>

> Problem 4:

> 6 wks post tenotomy 18-20 dr orders (we did 21-22hr)

> next 6 weeks 18-20 hr dr advised (we just completed doing 18-19 hr)

> next 6 months naps and nightime no hours discussed dr advised

>

> Problem 5:

> they wanted to move the clubfoot angle to 45 degree to match the

> regular foot to make it " easier " on me to get it on him, and for

him

> to comply with wearing it?!?!

> and if we see any regression, to move it back to 70 degree.

> Why mess with it if it is not bothering him now, and chance losing

> flexibility only to hurt him to stretch it back out later or have

to

> recast??

> Dr. said I could leave it if I wanted to, if Isaac was fine with

it,

> and I had no problems with it

>

> His foot looks great but I don't want to chance regression, plus I

am

> so tired of always fighting the nurses who think they know

> everything. that is the part that sucks the most. ok, vent over.

> please advise.

>

>

>

[Guest guest]

There was a short presentation at the recent meeting of the American Association

of Orthopedic Surgeons about hyperabduction of the last cast and the FAB and the

rate of relapse. The abstract is available at:

http://www3.aaos.org/anmeet2006/podium/podium.cfm?Pevent=244

My paraphrase:

320 patients (with 502 clubfeet between them) took part in the study and were

split into 2 groups. Group I (291 feet) did not receive maximum abduction,

group II (211 feet) did. I take " maximum abduction " to mean that both the last

cast and the FAB were abducted to at least 60 degrees.

Nearly all of the feet were corrected with casting and tenotomy (98% group I,

99% group II). Although the rate of non-compliance with the FAB is very similar

in both groups (65% group I, 61% group II), there were far more relapses in the

first group (58%) than in the second (28%). In addition more " extensive

surgical releases " and ATTTs were performed on feet from the first group than

from the second. The authors note that 91% of all relapses occur before 5 years

of age. They conclude that " maximum abduction of the last cast and brace

significantly reduced relapses and the need for extensive corrective surgery " .

That's what I've got for tonight.

Naomi

The Family, North Coast of California

Naomi Hannah(2/21/1) Jonah(6/20/3, corrected BCF, FAB 12-14/7)

gracesmommy04 wrote:

And moving him back to 45 degrees WHY for compliance issues?! I know

that you won't do that because of what you have learned here but what

about all his other paitents? I think that we'll have to find some

recent articles regarding relapse rates when feet have been moved

back to somewhere around 45 degrees. Anyone know of a recent one? I

remember hearing something about this (? or Naomi?) so that you

can present it to him. I echo your question...why mess with it at all?

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo!

Messenger with Voice.

[Guest guest]

See that is a major gripe that I have. My orthopedist does not deal

with orthotist. All the measuring, fitting, judgements on shoe &

bar issues are done by a regular nurse who obviously in not a

specialist in bracing or effects on the body of the bracing.

I won't see the dr again for 6 mnth barring any issues.

You know I have a very tight schedule with 2 other children in

activities, a traveling husband, and I changed drs to driving 2.5 hr

so my son could avoid surgery and get a dr that would listen to me,

but it doesn't help if he listens, but then leaves me at the mercy

of the nurse. Oh, and you can not talk to him directly. You must

go through the nurse when you call, so I can't talk to him about it

that way. GRRR. I think at my next visit, that I am going to ask

him to send our info to one of our local orthotist, so that any

issues we have can atleast be handled with someone that has some

experience. (Well, okay, that isn't necessarily true bc of our

experience with one of the local offices that gave me that crazy one

leg brace those first few months, but I can only hope the other

office is better/more experienced with clubfoot anyway.)

Can u tell I am still mad? I just don't know how to handle it.

Everytime that I make waves in dr. offices things go downhill

quickly, and I don't have the luxury of just changing to another dr.

since there are not many good choices within driving. And you know,

for the most part, I actually like the dr. and Isaac's foot looks

really good, it is just the brace issues to prevent regression that

are causing issues. I just don't see how he isn't having more

problems with regression rates if he is changing the protocol that

much.

ok, enough rambling.

> >

> > As I have just about every visit with every dr this past yr, I

am

> > leaving frustrated.Not with his foot. It still looks awesome.

He

> is

> > pulling up, and walking holding fingertips. He is 9.5 mnths.

> >

> > Here is a list of my vents and possible problems. What are your

> > opinions?

> >

> > Problem 1:

> > First the nurse asks how things were going with the shoes/brace?

> > I say really good, but he is starting to outgrow his shoes and

> needs a

> > longer brace soon. She gives me that condescending, I know so

much

> > more than u look, and holds the shoes up to his shoulders. (I

have

> > had it set on the 10 holes for almost 2 mnths- gold bar.)

> > She then says, " oh, no, that is way too far. he needs on the 8s

or

> > maybe even an 8 and 6. "

> > I tell her that on the 8s he wouldn't sleep, and he drew his

knees

> > together, plus would kick kick, and cry. And that we have had it

on

> > the 10s for 8 wks. She gets upset that we moved it out, and

says

> that

> > we have to talk to the dr bc putting it that far out could cause

> hip

> > damage.

> > I say, I measure from shoulder to shoulder, how do u typically

> measure.

> > She says the same, and holds it up. She angles her fingers in

and

> > says see. I totally disagree with how she measures it, and

there

> was

> > no way that I was going to put him back down to the 8s.

> >

> > The dr agreed with me, and he stays at the 10s but they wouldn't

> order

> > me another bar bc they said that one will be fine for a long

time.

> >

> > Problem 2: They won't split Markell sizes. They also will not

> order

> > half sizes, so he has a pair of size twos that he probably won't

> fit

> > correctly in for a long time. He is now fitting great in a 0

and a

> 1.

> >

> > Problem 3: 6 months until next checkup

> >

> > Problem 4:

> > 6 wks post tenotomy 18-20 dr orders (we did 21-22hr)

> > next 6 weeks 18-20 hr dr advised (we just completed doing 18-19

hr)

> > next 6 months naps and nightime no hours discussed dr advised

> >

> > Problem 5:

> > they wanted to move the clubfoot angle to 45 degree to match the

> > regular foot to make it " easier " on me to get it on him, and for

> him

> > to comply with wearing it?!?!

> > and if we see any regression, to move it back to 70 degree.

> > Why mess with it if it is not bothering him now, and chance

losing

> > flexibility only to hurt him to stretch it back out later or

have

> to

> > recast??

> > Dr. said I could leave it if I wanted to, if Isaac was fine with

> it,

> > and I had no problems with it

> >

> > His foot looks great but I don't want to chance regression, plus

I

> am

> > so tired of always fighting the nurses who think they know

> > everything. that is the part that sucks the most. ok, vent

over.

> > please advise.

> >

> >

> >

>

[Guest guest]

,

Can you email the doctor directly? Or write him a letter? I would

wait until you are not so p.o.ed, and then write out your concerns in

a non-attacking manner and send it directly to the doc.

There is no reason they should no be able to split sizes for you, but

I agree that you are probably better off getting your shoes and bar

locally - then you don't have to deal with the drive or the

condescending attitudes if you have any problems.

Best wishes,

> > >

> > > As I have just about every visit with every dr this past yr, I

> am

> > > leaving frustrated.Not with his foot. It still looks awesome.

> He

> > is

> > > pulling up, and walking holding fingertips. He is 9.5 mnths.

> > >

> > > Here is a list of my vents and possible problems. What are your

> > > opinions?

> > >

> > > Problem 1:

> > > First the nurse asks how things were going with the shoes/brace?

> > > I say really good, but he is starting to outgrow his shoes and

> > needs a

> > > longer brace soon. She gives me that condescending, I know so

> much

> > > more than u look, and holds the shoes up to his shoulders. (I

> have

> > > had it set on the 10 holes for almost 2 mnths- gold bar.)

> > > She then says, " oh, no, that is way too far. he needs on the 8s

> or

> > > maybe even an 8 and 6. "

> > > I tell her that on the 8s he wouldn't sleep, and he drew his

> knees

> > > together, plus would kick kick, and cry. And that we have had it

> on

> > > the 10s for 8 wks. She gets upset that we moved it out, and

> says

> > that

> > > we have to talk to the dr bc putting it that far out could cause

> > hip

> > > damage.

> > > I say, I measure from shoulder to shoulder, how do u typically

> > measure.

> > > She says the same, and holds it up. She angles her fingers in

> and

> > > says see. I totally disagree with how she measures it, and

> there

> > was

> > > no way that I was going to put him back down to the 8s.

> > >

> > > The dr agreed with me, and he stays at the 10s but they wouldn't

> > order

> > > me another bar bc they said that one will be fine for a long

> time.

> > >

> > > Problem 2: They won't split Markell sizes. They also will not

> > order

> > > half sizes, so he has a pair of size twos that he probably won't

> > fit

> > > correctly in for a long time. He is now fitting great in a 0

> and a

> > 1.

> > >

> > > Problem 3: 6 months until next checkup

> > >

> > > Problem 4:

> > > 6 wks post tenotomy 18-20 dr orders (we did 21-22hr)

> > > next 6 weeks 18-20 hr dr advised (we just completed doing 18-19

> hr)

> > > next 6 months naps and nightime no hours discussed dr advised

> > >

> > > Problem 5:

> > > they wanted to move the clubfoot angle to 45 degree to match the

> > > regular foot to make it " easier " on me to get it on him, and for

> > him

> > > to comply with wearing it?!?!

> > > and if we see any regression, to move it back to 70 degree.

> > > Why mess with it if it is not bothering him now, and chance

> losing

> > > flexibility only to hurt him to stretch it back out later or

> have

> > to

> > > recast??

> > > Dr. said I could leave it if I wanted to, if Isaac was fine with

> > it,

> > > and I had no problems with it

> > >

> > > His foot looks great but I don't want to chance regression, plus

> I

> > am

> > > so tired of always fighting the nurses who think they know

> > > everything. that is the part that sucks the most. ok, vent

> over.

> > > please advise.

> > >

> > >

> > >

> >

>

[Guest guest]

1) I thought you could order these things directly from the Markell company?

2) Again, contact Jay markell for different sizes?

Do you have a red bar you can custom adjust as needed?

3) Nights and naps - what does that equeal? About 12 to 14 hours? Not too bad

but you could still do 16 18 if you wanted.

4) Move the foot to 45? That's nuts he would suggest such a thing! Happily

YOU know better but what about parents who do not??

5) Oops, I lost count but you probably get the picture.

If you're tired of dealing with a ignorant nurse, then don't deal with her.

Some how manage to say Thanks but No Thanks I'll speak with the doctors about

it. OR - play along with her ignorance until you can speak with a doctor, just

agree with her but do what you know is right anyway, kwim?

s.

Isaac update...appt today 4/27

As I have just about every visit with every dr this past yr, I am

leaving frustrated.Not with his foot. It still looks awesome. He is

pulling up, and walking holding fingertips. He is 9.5 mnths.

Here is a list of my vents and possible problems. What are your

opinions?

Problem 1:

First the nurse asks how things were going with the shoes/brace?

I say really good, but he is starting to outgrow his shoes and needs a

longer brace soon. She gives me that condescending, I know so much

more than u look, and holds the shoes up to his shoulders. (I have

had it set on the 10 holes for almost 2 mnths- gold bar.)

She then says, " oh, no, that is way too far. he needs on the 8s or

maybe even an 8 and 6. "

I tell her that on the 8s he wouldn't sleep, and he drew his knees

together, plus would kick kick, and cry. And that we have had it on

the 10s for 8 wks. She gets upset that we moved it out, and says that

we have to talk to the dr bc putting it that far out could cause hip

damage.

I say, I measure from shoulder to shoulder, how do u typically measure.

She says the same, and holds it up. She angles her fingers in and

says see. I totally disagree with how she measures it, and there was

no way that I was going to put him back down to the 8s.

The dr agreed with me, and he stays at the 10s but they wouldn't order

me another bar bc they said that one will be fine for a long time.

Problem 2: They won't split Markell sizes. They also will not order

half sizes, so he has a pair of size twos that he probably won't fit

correctly in for a long time. He is now fitting great in a 0 and a 1.

Problem 3: 6 months until next checkup

Problem 4:

6 wks post tenotomy 18-20 dr orders (we did 21-22hr)

next 6 weeks 18-20 hr dr advised (we just completed doing 18-19 hr)

next 6 months naps and nightime no hours discussed dr advised

Problem 5:

they wanted to move the clubfoot angle to 45 degree to match the

regular foot to make it " easier " on me to get it on him, and for him

to comply with wearing it?!?!

and if we see any regression, to move it back to 70 degree.

Why mess with it if it is not bothering him now, and chance losing

flexibility only to hurt him to stretch it back out later or have to

recast??

Dr. said I could leave it if I wanted to, if Isaac was fine with it,

and I had no problems with it

His foot looks great but I don't want to chance regression, plus I am

so tired of always fighting the nurses who think they know

everything. that is the part that sucks the most. ok, vent over.

please advise.

[Guest guest]

-

We drive 3 hours to see our orthotist-and are also at 6 mo checkups.

At his recent checkup-his shoes were fine length wise but we had our

doc write a prescription for new shoes so that at our convenience

and to save ourselves the 3 hour trip just for shoes, we could go to

the local orthotist to get the shoes. It was about 2 months that we

held onto the script but we then ordered the new shoes through a

local shop. Just wanted to let you know that it is an option to go

locally with the shoes!!! Now mind you, the local orthotist did not

know how to set them on the bar correctly and I had to redo his work

but we got shoes that fit and will last us for a while!!

Take care,

kathleen

mom to david bcf fab 12/7

and baby girl edd 9/4/06

> > >

> > > As I have just about every visit with every dr this past yr, I

> am

> > > leaving frustrated.Not with his foot. It still looks

awesome.

> He

> > is

> > > pulling up, and walking holding fingertips. He is 9.5 mnths.

> > >

> > > Here is a list of my vents and possible problems. What are

your

> > > opinions?

> > >

> > > Problem 1:

> > > First the nurse asks how things were going with the

shoes/brace?

> > > I say really good, but he is starting to outgrow his shoes and

> > needs a

> > > longer brace soon. She gives me that condescending, I know so

> much

> > > more than u look, and holds the shoes up to his shoulders. (I

> have

> > > had it set on the 10 holes for almost 2 mnths- gold bar.)

> > > She then says, " oh, no, that is way too far. he needs on the

8s

> or

> > > maybe even an 8 and 6. "

> > > I tell her that on the 8s he wouldn't sleep, and he drew his

> knees

> > > together, plus would kick kick, and cry. And that we have had

it

> on

> > > the 10s for 8 wks. She gets upset that we moved it out, and

> says

> > that

> > > we have to talk to the dr bc putting it that far out could

cause

> > hip

> > > damage.

> > > I say, I measure from shoulder to shoulder, how do u typically

> > measure.

> > > She says the same, and holds it up. She angles her fingers in

> and

> > > says see. I totally disagree with how she measures it, and

> there

> > was

> > > no way that I was going to put him back down to the 8s.

> > >

> > > The dr agreed with me, and he stays at the 10s but they

wouldn't

> > order

> > > me another bar bc they said that one will be fine for a long

> time.

> > >

> > > Problem 2: They won't split Markell sizes. They also will

not

> > order

> > > half sizes, so he has a pair of size twos that he probably

won't

> > fit

> > > correctly in for a long time. He is now fitting great in a 0

> and a

> > 1.

> > >

> > > Problem 3: 6 months until next checkup

> > >

> > > Problem 4:

> > > 6 wks post tenotomy 18-20 dr orders (we did 21-22hr)

> > > next 6 weeks 18-20 hr dr advised (we just completed doing 18-

19

> hr)

> > > next 6 months naps and nightime no hours discussed dr advised

> > >

> > > Problem 5:

> > > they wanted to move the clubfoot angle to 45 degree to match

the

> > > regular foot to make it " easier " on me to get it on him, and

for

> > him

> > > to comply with wearing it?!?!

> > > and if we see any regression, to move it back to 70 degree.

> > > Why mess with it if it is not bothering him now, and chance

> losing

> > > flexibility only to hurt him to stretch it back out later or

> have

> > to

> > > recast??

> > > Dr. said I could leave it if I wanted to, if Isaac was fine

with

> > it,

> > > and I had no problems with it

> > >

> > > His foot looks great but I don't want to chance regression,

plus

> I

> > am

> > > so tired of always fighting the nurses who think they know

> > > everything. that is the part that sucks the most. ok, vent

> over.

> > > please advise.

> > >

> > >

> > >

> >

>

[Guest guest]

Hi ,

> Problem 2: They won't split Markell sizes. They

> also will not order half sizes, so he has a pair of

> size twos that he probably won't fit correctly in

> for a long time. He is now fitting great in a 0

> and a 1.

Just a thought, do you have to return the old shoes?

If not then I suppose you could always use one of the

new size 2's and the old size 1 to make up the next

pair. If you've got the straight last shoes then

there's no difference between the left and right shoe.

I guess if the shoe is already quite worn in for the

other foot then that's not really an option though...

Anyway, I'm sorry that the nurse is giving you such

grief, hopefully it'll get better in future.

All the best,

with (3.5y)

and Alister (3.5y, right CF, Ponseti method, UK)

Send instant messages to your online friends http://uk.messenger.yahoo.com

[Guest guest]

No, we keep the shoes. When he was first fitted for the DBB he was

given 1's which the people on here quickly realized was way too big

for his cf. I adapted one of the size 0's that came with his other

brace contraction to work with the DBB, and that is what we have

been using...one 0 and one 1. So when he is ready to move up

probably in a month or so, I will use the leftover 1 and the new 2

(or keep his regular foot in the 1 if the 2 is overly big). Since

he is only wearing them naps/nightime, no one is going to care if

his toes hang off, as long as the shoe doesn't slip bc it is too big.

Thanks for responding!

I just don't see why they won't let me order them split since it is

allowed by the company, and I am the one paying. Oh, they also only

offer the open heel in the smallest size. Wait, answer to both of

those...they are using up their old stockpile. grr.

Isaac is loving this new freedom to pull up, and trying to cruise.

He got to feel grass on his toes and loves it!

>

> Hi ,

>

> > Problem 2: They won't split Markell sizes. They

> > also will not order half sizes, so he has a pair of

> > size twos that he probably won't fit correctly in

> > for a long time. He is now fitting great in a 0

> > and a 1.

>

> Just a thought, do you have to return the old shoes?

> If not then I suppose you could always use one of the

> new size 2's and the old size 1 to make up the next

> pair. If you've got the straight last shoes then

> there's no difference between the left and right shoe.

> I guess if the shoe is already quite worn in for the

> other foot then that's not really an option though...

>

> Anyway, I'm sorry that the nurse is giving you such

> grief, hopefully it'll get better in future.

>

> All the best,

>

> with (3.5y)

> and Alister (3.5y, right CF, Ponseti method, UK)

>

>

>

>

> Send instant messages to your online friends

http://uk.messenger.yahoo.com

>